eye test and hypothyroidism : I have a cyst on my... - Thyroid UK

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eye test and hypothyroidism

Funkygibbons profile image
6 Replies

I have a cyst on my thyroid waiting to find out what they are going to do. My hormones are also making anti bodies and attacking my thyroid. I have a lot of the symptoms of hypothyroidism, dr wants to wait to see what they do with the cyst before medication.

I am having an eye test next week should I wait until thyroid sorted out?

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PurpleNails profile image
PurpleNailsAdministrator

Your last post said your TSH? Was high? “thyroid level 6.6 but hormone levels ok”

Did you ever get exact results or repeat the test. What are recent results?

Thyroid hormones don’t make anti bodies. Your immune system attacks thyroid & antibodies are made to clean up the damage. If you have positive antibodies then it even more likely you need replacement.

Thyroid cyst is a separate matter. It won’t have impact on function. It is the rest of the working thyroid which either functions sufficiently or not.

ENT may monitor or recommend draining or removing cyst but surgery will likely lower function which already appears low. Starting on replacement is likely best approach.

I would still have eye test. Thyroid can affect eyes eg causing dry eyes but eye health & vision will always be assessed separately.

Funkygibbons profile image
Funkygibbons in reply to PurpleNails

Thank you very helpful

Sorry new to this and keep getting things wrong. Normal hormone on both tests 6.6 then 1.5, Thyroid peroxidase antibod lev:

66 IU/mL, dr said I will end up being hypothyroidism. She wants to wait for outcome of thyroid cyst before meds. Repeat bloods early March. I’ve just had a cyst removed from my nasal passage for biopsy but confidant nothing sinister.

I will continue and get my eyes tested as I have noticed a decline but thought it maybe due to all else going on. Feel absolutely rubbish, by mid afternoon I really struggle at work, so tired, muscles hurt, hips, ankles feel like an 80 yr old

PurpleNails profile image
PurpleNailsAdministrator in reply to Funkygibbons

Presumably ENT are looking at cyst as a physical issue. They likely won’t do blood test & will assume GP will monitor this side of things.

Sounds to me like GP want to pass everything to another specialist instead of dealing with something they normally would.

If you meet criteria for replacement GP should not delay. point out you have symptoms.

SlowDragon profile image
SlowDragonAdministrator

dr wants to wait to see what they do with the cyst before medication.

What were your most recent thyroid and vitamin results

Low vitamin levels likely and you could be working on improving these now

High thyroid antibodies confirms autoimmune thyroid disease aka Hashimoto’s

GP should do coeliac blood test too

Have you been tested yet. If not get tested now BEFORE considering trial on strictly gluten free diet

nice.org.uk/guidance/ng20/c...

1.1 Recognition of coeliac disease

1.1.1 Offer serological testing for coeliac disease to:

people with any of the following:

persistent unexplained abdominal or gastrointestinal symptoms

faltering growth

prolonged fatigue

unexpected weight loss

severe or persistent mouth ulcers

unexplained iron, vitamin B12 or folate deficiency

type 1 diabetes, at diagnosis

autoimmune thyroid disease, at diagnosis

irritable bowel syndrome (in adults)

first‑degree relatives of people with coeliac disease.

See my reply in the recent post re testing

healthunlocked.com/thyroidu...

Funkygibbons profile image
Funkygibbons in reply to SlowDragon

Dr is doing bloods in early march, I've had IBS for years and a couple of years ago had microscopic colitis. Haven't had vitamin tests. Was tested for Coeliac a couple of years ago. Would I benefit from going private?

I have many symptoms, but put them down to menopause. I just would like to feel normal again and have energy and enthusiasm again.

SlowDragon profile image
SlowDragonAdministrator in reply to Funkygibbons

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

As your coeliac test is negative you can immediately go on strictly gluten free diet 

Trying gluten free diet for 3-6 months minimum

If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

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