Long story simplified...have been going to gp for well over ten years..told borderline thyroid problem and always retested but never anything done. April 2022 got private testing done on all elements of thyroid and two sets of antibodies came in at TgAB 516.7 and TPOAb 344.4. I have just had more private testing done as i feel like absolute dung 24/7 and i am struggling..doctor tested funtion of thyroid only few weeks ago and again has ordered retesting but no more indepth tests so i questioned this and now will get an appointment...lucky me. In meantime my recent testing results arrived yesterday and the TgAB is now 618 and the TPOAb is 410
Has anyone similar experiences and what they have done etc...just want someone to tell me their story
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Melei
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Have had levels tested for vit d etc and have a recurring low level of folate and always get it treated with tablets and then usually within a year or so they drop again and need retreated which always results in doctor throwing list of foods to eat because they dont seem to connect that possible my body isnt able to absorb properly.
Tsh is needing monitoring according to gp but they wont test other parts which is why i have private tests done on all elements
Thank you for all this valuable information. I have been using Medichecks for checking my levels for some time now. After the last test on 16 November which showed I was still hypothyroid and I had symptoms, as stated before I increased my Metavive. I had my blood test results back from my surgery and also now have the NHS app and a printed copy of the blood test results. My TSH which on 16 Nov was 4.91 is now down to 2. Their range was 0.27 - 4.20. I will order more comprehensive blood testing of all the thyroid components after Christmas. I had an ECG this morning which did not show anything untoward although I am now being monitored as a new patient to this surgery including my blood pressure for which I started a low dose tablet last Friday. All the readings came back within normal range i.e. Full blood count, B12, Folate and Ferritin levels, cholesterol, bone profile, urea and electrolytes all good except for HbA1c which shows I am border line diabetic but that is the same as it was four years ago. I have signed up for a group consultation at the practice which will give information about being pre diabetic. I already have a healthy lifestyle but I can always do better and may learn from others who attend and share ideas. I am taking steps to sort out the issues with meds and once my thyroid is functioning optimally I hope I will lose more weight. I lost around 9lbs this past week following the UTI. I will post results after the next thyroid testing. Thank you to everyone who has taken the time to respond.
Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
Thank you. I make my own almond milk and have done for some time. I have limited dairy anyway but generally haven't had a lot of problems with my stomach in the past. I have tried a gluten free diet but now just limit my bread intake. I have the book Wheat Belly. I need more tests I know. Thank you again.
You are legally entitled to printed copies of your blood test results and ranges.
The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results
UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
Thank you. I recently got the NHS app. I haven't seen anything on there so far from the hospital but I will ask at the GP surgery tomorrow. I haven't been with this surgery long so will set things up.
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