Pain and hypothyroidism: ncbi.nlm.nih.gov/pmc... - Thyroid UK

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Pain and hypothyroidism

DippyDame profile image
6 Replies

ncbi.nlm.nih.gov/pmc/articl...

Uncommon presentation of a common disorder

I'm not sure it's totally surprising that they found this pain/ hypo connection but I discovered it by chance when searching for further info on a back pain/ low T3 connection

I'm on high dose T3 only and I think my cellular T3 levels must have dropped again resulting in debilitating back pain.....it has happened before but smugly I thought it was behind me. Oh! No pun intended

Just thought it might be of interest to someone!

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DippyDame profile image
DippyDame
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Charlie-Farley profile image
Charlie-Farley

Hi Dippy

I’m not surprised at all either. When undiagnosed and under medicated, I suffered an array of aches, pains and dysfunction. I couldn’t grip with my hands and was dogged with pains (back included).

Nerve conduction tests found nothing. I felt like I was falling apart. One could have put it all down to approaching menopause and the changes in the female hormones were it not for the fact that once adequately medicated- pretty much everything resolved itself - Oh, apart from creaky knees (that do not hurt) and my ring finger on my right hand which my husband affectionately calls my ‘parsnip finger’. 😂

We have a friend who originated in India and they apparently are way more enlightened. If a person is ‘off’ the thyroid is the first thing they check- not the last.

Wired123 profile image
Wired123 in reply toCharlie-Farley

Indians have a high incidence of thyroid disease hence doctors there are always on the lookout, they can actually diagnose it just by looking at your face for telltale signs - an Indian doctor friend of my mother’s diagnosed her in 2 minutes after they met after many years! Obviously blood tests came next which confirmed it.

I also had a lot of forearm pain as I work in a desk job, tried physio for many years and even T3 did not correct it. I then also developed some shakiness in my hands which led to nerve conduction studies, diagnosing carpal tunnel syndrome. Doctors offered operations and injections but I refused and have it under control by strengthening my arms with weight lifting.

Charlie-Farley profile image
Charlie-Farley in reply toWired123

Wow! Wired123,

I had the exact same symptoms. I lost my grip in my hands when undiagnosed. So interesting.

I personally think many people in this country are missed through obsession with using TSH and the ‘treatable thresholds’ set. Pretty sure my mother was hypo, never diagnosed though and autoimmune diseases do run in her side of the family. So many markers. Dad was diagnosed and I wholeheartedly believe he got it from his mother. She died in her 40’s of an unrelated illness, but what little I know does point to her being the carrier.

I was wondering if I would be able to access her records and try to get an insight to help me. It is on my mind.

Brightness14 profile image
Brightness14

I have already known about this through my own Thyroid journey.

Because I was 68 when my thyroid was removed and it was working perfectly prior. Never had any thyroid issues at all, in fact never knew anything until I joined this site.

Anyway I noticed when on NDT that when it was nearly time to take the second dose, if I was walking the dog after lunch my left ankle started to really hurt.

I had broken my ankle when I was 32 years old and had never ever had a pain in it since then.

I soon realised that it was low T3. Since then I have had a pain in my knee which I fell down on in my forties. I pain in my gallbladder, which actually doesn't exist.

Weird but true.. My brain is having a laugh, or Pain on me I cannot figure out how.

These are very old injuries. strange.

AKatieD profile image
AKatieD

Yes, for me random aches and pains always mean thyroid low.

Brightness14 profile image
Brightness14

I forgot to say thank you for the info, sorry.

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