Just wonder...need of one other scan be different output after a few years later.

[Verde1]

Good morning just s curiosity and try to understand, after I managed just now get a picture of my last scan. The doctors they say no need to do another one.

This scan means that my thyroid is complete damaged ? With no chance to restore? The outcome of new scan will be the same or worse or can improve? Thank you for your help.

[SlowDragon Administrator]

Would be interesting to see if thyroid has shrunk or more visible damage

ada.com/conditions/thyroidi...

Ord’s thyroiditis

Also known as Ord’s disease, this autoimmune condition is characterized by atrophy of the thyroid gland and hypothyroidism. It is very similar to Hashimoto’s disease, apart from the shrinking of the thyroid gland instead of the development of a goiter. Ord’s disease and Hashimoto’s disease have historically been classified as separate disorders, but research suggests that they may instead be different manifestations of autoimmune thyroiditis, with some medical practitioners calling for the combined term Ord-Hashimoto’s disease to be used.

[Verde1 in reply to SlowDragon]

Thank you SlowDragon. Yes I was thinking the same special after I am researching on myself the levothyroxine need and effects. As I never felt completely right. As can also be the menopause start to join my "Thyroid party"... see my reply to PurpleNails to understand my reply.

Do you think I have Ords-Hashimoto? Go read more about.

Thank you

[Verde1 in reply to Verde1]

Ahh, but have to mention that when I was first diagnose in 1992 I had nodules on my thyroid scan (that time done in Portugal as I just came to UK in 2000)not remember how many, or big as I don't have the scan or access to it.

[PurpleNails Administrator]

Diffusely heterogeneous means it’s variable throughout thyroid & tiny hyperechoic nodules means, many dense area eg scarring from damage. This doesn’t repair / regenerate & why the function is low requiring replacement.

Your previous post show very high TPO antibodies so this explains the source of the damage is autoimmune.

It’s possible to continue to worsen but the treatment to manage levels will not be different based on scan information so there is no benefit to repeating scan.

[Verde1 in reply to PurpleNails]

Oh purplenails, thank you for your reply. That kind confirm my conclusion...

I am asking this, as I have been trying to improve my TPO values to see if I would feel better as they are always >1300 .

I started a new tentative...

After I went gluten free and lactose free in April. Last month decided to try stop the levothyroxine to see what happens.... after 3 weeks my face was suffering like I am having myasthenia gravis, still not right until now, after a week also start feeling numbness and tingling on my 4 members... I have just now this results.. then ... had to go back into levothyroxine.... but not introducing straight away the 100 mcg, as doctor told me to get back into, I am broken into two... I am trying now the teva version instead the accord. They ask anyway to start with 50mcg....

Collected: 28 Sep 2023-15:40pm

Received: 28 Sep 2023

Serum T3 level < 0.5 nmol/L [0.9 - 2.5]; Below low reference limit.

Report Date: 29 Sep 2023

Collected: 22 Sep 2023 – 9:05am

Received: 22 Sep 2023

Serum free T4 level 1.8 pmol/L [10.0 - 20.0]; Confirmation of hypothyroid profile. Below low reference limit

Serum TSH level > 150 miu/L [0.2 - 4.0]; Above high reference limit

Serum thyroid peroxidase antibody concentration > 1300 iu/mL [< 100.0]; Above high reference limit

Report Date: 23 Sep 2023

last April my TPO were also >1300, then hard to know how higher they were....or are...can give me some advice? Then decided to ask for a copy of my scan, as because I didn't improve my conclusion was that my thyroid gland is irreversibly damaged... ask for another scan doctors just said there is no need...

Thank you