T3 only

[Hookie01]

Hi all, I was just curious, those on T3 only, how did you go about switching to T3 only, what dose do you take and do you feel much better than on levo? This is the only thing I haven't tried other than NDT. Just thinking about it.

Thank you.

[AKatieD]

Started on just below the equivalent dose to the NDT I was taking following the detsils on Stop the Thyroid Madness website and adjusted to see if a little more made any difference.

Settled on 75mcg until began HRT them had to increase to 100mcg, where I am now.

[Hookie01 in reply to AKatieD]

Thank you, I'm only on levo at the moment, so guess I will have to reduce and add slowly. Trying to avoid the HRT route at the moment 🙄

[susieibbo1]

Best advice I can give is to follow Paul Robinsons protocol in his book Recovering with T3. Personally, having been on combo for some time, I reduced T4 to nothing and then increased T3 slowly up to 60mcg. You also need to test cortisol before this. But everybody is different and dosing is different for everyone. I also have the help of a private thyroid specialist . Susie x

[Hookie01 in reply to susieibbo1]

Thank you very much, I will have a look.

[shaws Administrator]

I was prescribed Levothyroxine (T4) initially but it gave me intense palpitations especially during the night.

I had to connect to the Cardiologist in the local hospital but he couldn't figure out why palpitations were occurring.

When I was prescribed T3 (liothyronine) it resolved the palpitations and I have had no palpitations since.

More important - is that T3 restored my health and I feel well.

[Hookie01 in reply to shaws]

Thank you

[CTmama in reply to shaws]

I am so glad to hear this. I am about to start t3 finally after many years of trying to figure out my thyroid issues. I really hope it helps make me feel better. Depression and anxiety have been the worst recently.

[shaws Administrator in reply to CTmama]

I hope you have a similar affect that you find an enormous help.

My palpitations stopped and my body was relaxed and felt 'normal'.

I follow the advice given by TUK's Adviser and I will give you a link. Unfortunately Dr Lowe had a bad fall that caused his brain to bleed but he still answered questions up until his demise - some days later.

[shaws Administrator in reply to CTmama]

I apologise that I didn't give Dr Lowe's website.. His advice also covers other symptoms that others may have. I follow his advice and take my one daily dose with one glass of water when I awake . If having a blood test, I have an early a.m. blood draw and no liothyronine until afterwards.

drlowe.com/thyroidscience/c...

[CTmama in reply to shaws]

thank you so much! My thyroid specialist has prescribed and will take it according to her suggestion. Fingers crossed!

[Babette]

I was on 100 mcg of T4 but felt really unwell. My bloods showed my T3 levels were low so pointed it out to the endo, who agreed to add 20 mcg of T3. I felt really well to start with but symptoms of over-medication in less than 2 weeks so stopped the T4 and just took 10 mcg twice a day. Taking it all in one go felt as though the dose was too high.

I'm 35 mcg now and take it 3 times a day, which takes some planning around mealtimes.

[Hookie01 in reply to Babette]

Thank you

[Hashiboy]

Hi Hookie01 I was shifted rapidly from 125mcg T4 to 60mcg T3 over a six week period by a private endo. I ended up with debilitating palpitations. Advice on here and from new endo was to go slow. So in the end I reduced T3 right down and reintroduced slowly and then added 25mcg T4, I feel so much better and can tolerate 50mcg T3 well with no palpitations.But overall it took any months. Glad I did it and would now be very patient between dose changes. Good luck.

[Hookie01 in reply to Hashiboy]

Thank you

[thyr01d]

Under an endocrinologist I stopped the Levothyroxine and started on a very small dose of T3, I think it was 5 mcg twice a day (might have put it in my profile), and that was with a TSH of over 95 with 95 being coma level, which indicates how important this endo believes it is to start low. After about a year it was increased and then gradually increased more. Now I take 40mcg each day, 20 am, 10 late am and 10 around 4 pm (unless, say, driving to the airport at night in which case I take it just before driving). Best of luck.

[Hookie01 in reply to thyr01d]

Thank you. Endo has said I'm not allowed T3 only as I would have to take too much! Only allowed T3/T4 combo, so that's the end of that!!