Growing official recognition of the condition and pathology that is popularly known as Pans / Pandas

[HowNowWhatNow]

The story linked to below relates to a campaign by patients and parents for recognition by and real help from the responsible health authorities and doctors who still choose to believe that their own patients either don’t exist, are mad or, when they realise they can’t ignore these patients altogether, choose to decide they must learn to live with disabling symptoms because their symptoms don’t fit in with the medical literature currently accepted by the NHS, even though science does and should evolve over time. Sound familiar?!

Yesterday was a good day for those patient and patient advocates who have PANS / PANDAs and for their parents and carers.

I thought I’d share a) to raise awareness of this little-understood but very real conditions which like hypothyroidism is too often dismissed as all in the mind (and who cares about those people’s minds?!) and b) to remind us that there are people in politics who want to be well informed and change things for the better.

I don’t know Maria Caulfield at all so if she is a hopeless constituency MP you also have my sympathies! On this occasion at least, she did a good thing.

panspandasuk.org/post/polit...

Yesterday was a good day for this particular movement.

[radd]

HNWN,

Thank you for posting this info.

[HowNowWhatNow in reply to radd]

You’re welcome. Have you come across it before?

[radd in reply to HowNowWhatNow]

Nope.