Test results : Underactive for a few years now... - Thyroid UK

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Test results

kim1965 profile image
6 Replies

Underactive for a few years now .Was undermedicated for a while , but things have been 'stable ' for a bit.

However my last couple of tests are showing my tsh to be quite low.

Currently on 100 levo

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kim1965 profile image
kim1965
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6 Replies
Jaydee1507 profile image
Jaydee1507Administrator

It's on the low end of normal but thats perfectly fine and nothing to be concerned about.

How do you feel?

Your FT4 is only 65% o fits range and most people need their on Levo only at 80-90% so your FT4 is on the low side.

What supplements are you taking?

What are you most recent results for ferritin, folate, B12 & D3?

It's ideal if you can always get the same brand of levo at every prescription. You can do this by getting GP to write the brand you prefer in the first line of the prescription. Many people find that different brands are not interchangeable.

Do you know if you had positive thyroid antibodies? Many with autoimmune thyroid disease aka Hashimoto's benefit from a gluten free diet. A smaller percentage of those also need to remove dairy from their diet to feel well. These are intolerances and will not show up on any blood test.

Did you do the test as per the protocol recommended here? Recommended blood test protocol: Test at 9am (or as close as possible), fasting, last levo dose 24hrs before the blood draw, last T3 dose 8-12 hours before blood draw & no biotin containing supplements for 3-7 days (Biotin can interfere with thyroid blood results as it is used in the testing process)? Testing like this gives consistency in your results and will show stable blood levels of hormone and highest TSH which varies throughout the day. Taking Levo/T3 just prior to blood draw can show a falsely elevated result and your GP/Endo might change your dose incorrectly as a result.

Delgor profile image
Delgor in reply to Jaydee1507

Sorry Jaydee but I disagree with you saying that intolerances don't show up on any blood test. I did the Cambridgeshire Nutritional Science finger prick blood test (discount on Thyroid UK). It informed me that I was highly intolerant to cows milk, goats milk, sheeps milk, casein, and egg whites but not yolks; certain nuts but not all, one particular vegetable; wheat, barley and corn but not rice - I could go on. I wanted a short cut to find out what foods may have been affecting me and I certainly got a comprehensive list which now tallies with the various diseases and conditions I have found myself with so for me it was money well spent. This has been said in a very kindly way as I know how easy it is to misconstrue e-mails.🤗

Jaydee1507 profile image
Jaydee1507Administrator in reply to Delgor

No food intolerance test is validated apparently, the only exception being lactose.

For instance if you had histamine intolerance likely none of the high histamine foods would show up in a test yet you would be unable to eat high histamine foods.

Similarly with gluten there are several reasons you might be intolerant other than coeliac and at least one form may not show up in a test.

bda.uk.com/resource/food-al...

Delgor profile image
Delgor in reply to Jaydee1507

Thank you for the link, however, I am of the opinion that there are lots of things that aren't validated and yet do work for people. I certainly don't think that the medical profession has all the answers to everything and indeed that is why most of us are driven to find alternative therapies in order to help ourselves. I certainly don't wish to upset you in any way but I was very pleased with the level of detail my food intolerance test went into as things were mentioned that I hadn't even heard of before. I can't answer you on histamine intolerance as I clearly don't have a problem with this and my intolerance to dairy was actually far greater than gluten which wouldn't of been helping with other issues that I have. Anyway, thanks again for your reply👍

Heloise profile image
Heloise

What is your worry, Kim? Remember your thyroid stimulating hormone level is a pituitary test and your result says that it is satisfied with the output of your thyroid gland although if you are not feeling optimal your FT4 could be higher. Your dose is a little lower than average as well but it depends on how you feel. It's always good to know your FT3 level as well. That would tell you how efficiently you are converting your inactive FT4 into the active FT3. That would be a better indicator of whether that TSH is actually optimal.

farrellkl68 profile image
farrellkl68

Ivd just had my annual results of TSH 0.1 and T4 18.9 , current dose levo is 125.

Last year o had TSH 0.9.

Unfortunately, I had my bloods taken mid morning but my last levo dose was 13 hours earlier .

I’m going to see endo in a few weeks privately . Hoping to get the whole bloods done . In 2022 my B12 was 433 and folate 8.84 .

No supplements apart from D3.

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