lethothyroxine side effects: hi anyone get belly... - Thyroid UK

Thyroid UK

139,473 members163,713 posts

lethothyroxine side effects

sotolol profile image
6 Replies

hi anyone get belly bloat taking lethothyroxine.????

Written by
sotolol profile image
sotolol
To view profiles and participate in discussions please or .
6 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Levo doesn't cause side effects unless its a brand that doesn't suit you or you are taking too much.

Which brand do you take? Do you always get the same brand at each prescription?

Bloating is more likely to be a symptom of a food intolerance. Possibly gluten or a FODMAP.

Do you have a copy of your latest blood results that you can share with us? You are legally entitled to a printed copy of your results, ask at GP reception. In England you can get the NHS app and ask for permission to see your blood results on that by asking at GP’s reception.

Do you know if you had positive thyroid antibodies? Many with autoimmune thyroid disease aka Hashimoto's benefit from a gluten free diet. A smaller percentage of those also need to remove dairy from their diet to feel well. These are intolerances and will not show up on any blood test.

When hypo we get low stomach acid which means we cannot absorb vitamins well from our food, regardless of a great diet. For thyroid hormone to work well we need OPTIMAL levels of vitamins. Have you recently or could you ask your GP to test levels of ferritin, folate, B12 & D3? Private tests are available, see link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/help-and-supp...

There is also a new company offering walk in & mail order blood tests in London, Kent, Sussex & Surrey areas. Check to see if there is a blood test company near you. onedaytests.com/products/ul...

Only do private tests on a Monday or Tuesday to avoid postal delays.

Recommended blood test protocol: Test at 9am (or as close as possible), fasting, last levo dose 24hrs before the blood draw, last T3 dose 8-12 hours before blood draw & no biotin containing supplements for 3-7 days (Biotin can interfere with thyroid blood results as it is used in the testing process)? Testing like this gives consistency in your results and will show stable blood levels of hormone and highest TSH which varies throughout the day. Taking Levo/T3 just prior to blood draw can show a falsely elevated result and your GP/Endo might change your dose incorrectly as a result.

Me1157 profile image
Me1157

yes lots of digestive issues, brain fog, joint pains, and chronic fatique

sotolol profile image
sotolol in reply to Me1157

Thank you I have all that from other medication. Can’t win can you? Now more happy days!

SlowDragon profile image
SlowDragonAdministrator

welcome to the thyroid forum

Bloating particularly common when not on high enough dose levothyroxine and/or low vitamin levels and/or food intolerances

How long have you been on levothyroxine and what is current dose and how long on this dose

Which brand levothyroxine

Do you always get same brand at each prescription

ALWAYS take levothyroxine on empty stomach and only water for at least an hour after

No other medications or supplements within 2 hours

Some at least 4 hours away…eg calcium, magnesium, iron, HRT or PPI like omeprazole

Please add most recent thyroid and vitamin results

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

sotolol profile image
sotolol in reply to SlowDragon

Wow thank you so much to check. Cheers

SlowDragon profile image
SlowDragonAdministrator in reply to sotolol

How long have you been on levothyroxine and what is current dose and how long on this dose

Which brand levothyroxine

Do you always get same brand at each prescription

Not what you're looking for?

You may also like...

Levothyroxine side effects

this. So I stopped taking it. This has now heightened my anxiety too. Has anyone else had a...

Horrible side effect of Cytomel

and I have to force myself to breathe). I tried taking 10mcg of Cytomel instead of 5mcg thinking I...

Carbimazole side effects

Liothyronine side effects

I’m now taking my liothyronine 2.5mcg morning and 2.5mcg around 4 in the afternoon. I take my levo...

Thybon T3 side effects

Hi all, I started taking Thybon T3 2.5mg just over 2 weeks ago (prescribed by my Endo). The...