I have had hypothyroidism for 25 years. I’m in 125mg and have been for most of that time. In the past few years I have been told I am over medicated and I have cut back slightly at times. After a few weeks I feel absolutely awful so go back to 125mg.
in the past year or two I’ve started feeling crushingly tired a LOT. I am falling asleep during the day and finding on walks I often hit a wall and just can’t go any further. It’s scary. My feet are painfully cold all winter and even when it’s not particularly cold. My body aches, I have brain fog and feel very depressed. I am four stone overweight.
I had assumed these symptoms are the result of high blood sugar but am now wondering if there is something more going on.
I have asked the doctor to test my T3 levels. Apparently it’s never been done before.
If I go private, what should I ask for and where should I go? I just don’t know what to do. I feel there is something very wrong with me.
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lemonsqueezy33
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Do you always get same brand levothyroxine at each prescription
What vitamin supplements are you currently taking
Do you know if your hypothyroidism is autoimmune thyroid disease
Approx how old are you
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
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HELP PLEASE
Help with what to do with meds:
Results and help with T3/T4 dosing, please!
Hashimoto’s help!
TSH levels
