So my new monitoring ring has shown me loads of new information about the ups and downs of my body 😬 and has opinions on most things!
Last nights sleep graph HR (much the same all week) which ideally ought to be hammock shaped for maximum r & r.... so I'm going to move my 10pm 5mcg T3 to earlier in the day and see how it effects sleep.... feeling like a lab rat 🐀
That will be an interesting experiment.
I also get heart rate changes in my sleep. A while a go I did have a full sleep polysomnography, hooked up to many wires + CPAP and the whole thing monitored. My autonomic nervous system changes many times an hour. Includes blood pressure too. Thats when I got diagnosed with Periodic Limb Movement Disorder.
Fascinating isn't it being monitored... takes the guess work out of it all 😅
You'd think the NHS would like to fit us all with them 😬
If I showed you the selfie I took you would be scared. Very scared. 😂
It really wasn't easy actually sleeping hooked up to so many wires!
Must have been a nightmare when you need a wee 😳
I just found the selfie. Decided to post it because even if I hadn't blocked my eyes out you wouldn't recognise me in a line up!
If I remember rightly the multiple leads all went into one lead as is shown on the photo so you just had one or two things to unplug to go to the loo.
In case you're interested PLMD is often linked to neurodiversity. neurodivergentinsights.com/...
Also it can be helped by keeping ferritin over 80. 100 best.
OMG! Takes me back to Dr Who and hiding behind the sofa 😱🤣
I don't really have a big issue with sleeping but I might tonight 😨
Indeed. The CPAP mask was just the icing on the cake really. A very scary look indeed and strangely enough I didn't sleep well. 🤔😅
Don't all those things on your head make you sweat like crazy? It looks like there is a hell of a lot of plastic involved.
They were just fine wires that were glued to my scalp, then the plastic netting to help hold them in place did let my scalp breath. I'm used to the CPAP anyway but have to say this set up was a whole new level of weird!
Very grateful to the NHS and my very good sleep clinic for getting to the bottom of my sleep issues of which I have 3 diagnosed now. Complete validation for me after years of struggling with sleep and GPs putting it all down to psychological. This test would have been around £1000 to get done privately.
what do you do for periodic limb movement disorder
I did try the treatment - it's Parkinsons medication and I couldn't tolerate it. I now have extra melatonin.
I will also be able to get an iron infusion onthe NHS as my sleep doctor wants my ferritin at 75+ and I'm not good with taking iron.
Is PLMD a step up from Restless Leg syndrome because I’m sure my husband suffers from it. What’s the cure, not that he’s likely to take it - it doesn’t disturb his sleep but it certainly disturbs mine.
Yes I suppose it is a step up from RLS although I wouldn't swap it as RLS keeps people awake becuase of it and I don't suffer form that thank goodness.
Similar to RLS though it does respond somewhat to good iron/ferritin levels so worth him getting those checked. Sugar affects my sleep terribly too.
There may not be a cure as such although I think the Parkinsons type meds really do help those they work for. That said they can suddenly stop working and you have to wean off them. Its not an easy condition to help.
Thanks for the info, I’ll get him to check his iron levels if possible 😁 He’s quite happy to stab and “milk”my finger when I do a blood test but when I offered to do the same for him if he ordered a test, he said no “I’m ok” 😂 so I think there’s a fat chance of that happening. The twitching legs start the minute he relaxes, ie lying on the sofa watching telly, lying on a sunbed in the garden and worst of all, in bed. I have videoed him doing it because he doesn’t know he’s doing it, it drives me crazy.
Blokes eh. lol
The trouble with RLS/PLMD is that often they do affect the sleep partner more than the actual sufferer. See if you can coax him into speaking to his GP. Good luck!
Either that or knocking him out with a big hammer 😂😂
The ultimate step is separate beds. 😴
I've got an extreme downward slope since adding T3 to my Levo. You could throw someone off a cliff with my slope. Even if I take it at 8pm it's still downward. When I was on T3 only my heart rate pattern was chaotic.
⛷️crazy isn't it, do you take a morning dose too?... last month I swapped to splitting my dose 6am, 2pm and 10pm thinking it would be kinder on my body... from my previous 2/3's 6am 1/3 2pm.... so I'm going to revert to the 2 doses and see what effect it will have.
When I first started taking T3 I found 1 dose first thing suited me best lasting longer and no lag so I'll trial that again after.... now I have some way of gauging my bodies response 👩🔬🔬
I've been splitting my Levo at 8pm and upon first waking then once I get out of bed I'll take the first T3 dose, a second in the afternoon and then last around 8pm. I noticed this slope began after I added more than 5mcg or so of T3. If I only take the 112mcg Levo then my heart rate is in the 60s and lower 70s with no downward slope but when I start adding the T3 my resting heart rate creeps up to 78 with downward slope. I've tried to lower the Levo a little but this doesn't help in fact my heart rate is only normal if I take 112mcg Levo. Not really sure what to do!
HiI've just started taking all my t3 in one go. For the first time in years my palpitations have resolved, my heart rate has also dropped both during thr day and the night. I generally feel better as well!
This was my finding when I first started but felt obliged to start splitting the dose... silly mind games we play with ourselves🤷♀️... it would be lovely to go back to a one shot wonder 🙏
It's way more convenient!!
Just for interest, this is mine from last night (midnight to just after 06:00). I think the gap might be when I had my arm at an awkward angle or something like that.
do I have a hammock? I think I have a hammock… this is not every night mind you, last night I was up more than down 😳🙃
Took me a moment to realize this was a 24hr chart... thought you must be having some amazing dreams!! 😏... ⭐go to the top of the stairs, you have the best hammock so far 👏 but can you remember what you did 3 weeks ago so that you can repeat it?
Yeah I can’t work out how to only show the night bit. I do know I had my watch on that night but that’s about it! 🤣 I will repeat and record. 🌱
Very interesting you guys. Thank you.
Very interesting thread 
which ring is it TiggerMe please?
I've pm'd you 🤗
ok, thanks muchly
Can you not mention the ring on the forum, after all, I don’t suppose you’re selling them ?
I'm not really sure? I got 'reminded' yesterday for putting up a voucher code for a certain brand... but we often talk about various ones that have worked for us?... I'll pm you 😉
No, I'm not dealing in anything... my customer skills are awful 😆
Because I know how much we all love data. 
Here's mine from a couple of nights ago.
So what technology are you using to create that graph of your heart rate?
I wear a Garmin watch and it's all collated in the app.
Sleep abnormalities after starting levothyroxine? 
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