tsh how hig can it go : want to ask is tsh 1... - Thyroid UK

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tsh how hig can it go

morcan54 profile image
14 Replies

want to ask is tsh 14.45 too high for eldery woman ..or there is higher

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morcan54 profile image
morcan54
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14 Replies

I don’t know about age range but mine swung from 0.1 to 36 in March! 36 was a shock, didn’t realise it could go that high.

tattybogle profile image
tattybogle

TSH of 14 is too high for anyone , of whatever age,

it should be within the reference range, and most TSH ranges are aprox 0.4 - 4.5 (ish)

but yes .....TSH can go much higher , up to 100 or even higher.

Anyone with TSH of 14 needs to see their Doctor about it urgently .

PurpleNails profile image
PurpleNailsAdministrator

Generally test have limit - up to >100 for example.  

It’s possible someone  can function better than someone with lower or in range TSH as TSH isn’t responsible for symptoms It where the FT4 & FT3 is.  

Over 10 is considered overtly hypothyroid

SlowDragon profile image
SlowDragonAdministrator

Anyone with TSH over 10 is hypothyroid

She needs second test including thyroid antibodies and vitamins

Low vitamin levels very common as we get older

Starting on 25mcg levothyroxine initially if over 65mcg

Dose levothyroxine is increased slowly upwards over 6-12 months until TSH always below 2 and symptoms resolved

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

 

For full Thyroid evaluation she needs TSH, FT4 and FT3 tested 

Also both TPO and TG thyroid antibodies tested at least once 

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

morcan54 profile image
morcan54 in reply to SlowDragon

i have some blood test but i got to have them in a month it will be tsh / ft4/ft3/ tpo /b12 vit d

SlowDragon profile image
SlowDragonAdministrator in reply to morcan54

and folate and full iron panel test for anaemia including ferritin

shaws profile image
shawsAdministrator

Despite my TSH being 100 - the GP told me that I had no problems. He obviously did not know or take any notice of symptoms. I cried as I didn't know what to do to alleviate symptoms or the reason for them.

Thanks to Thyroiduk I learned about a dysfunctional thyroid gland and the symptoms we could develop and slowly, slowly improved health.

I was fortunate to consult the last two of the 'old-school doctors' i.e. Dr Barry Peatfield and Dr Gordon Skinner and people travelled from all over the UK to consult with them - they are now deceased.

We haveThyroiduk.org and Lyn Mynott is the person who started it which has enabled many thousands to recover their health. Members who've been helped can also become members of Thyroiduk as the more members the stronger TUK's voice.

McPammy profile image
McPammy

A TSH above 2.5 and you’ll have Hypo symptoms. When I was first diagnosed mine was 36! It shouldn’t be higher than 2.5 and preferably around 1.00 when on correct doses of medication/s. A healthy persons TSH is normally 1-2 To get to your personal sweet spot you need to be on levothyroxine T4 medication. If that doesn’t feel better then test TSH , T4 and T3 levels to check if you are converting T4 to the most important hormone T3. Also check vitamin levels B12, D, folate and ferritin. Vitamins are often low for people living with thyroid conditions.

It can take time finding your right levels.

Stourie profile image
Stourie

when I was in my early 40’s my number was 9. I’m presuming it was my tsh as that’s the usual test. Nothing was done until my mid 50’s when my tsh was over 100. I had been back and forward for years and especially in the last 6months. My symptoms were ignored even though I’d put on nearly 3stones Jo xx

morcan54 profile image
morcan54 in reply to Stourie

i have many symptoms and a lot of depresion anxiety tried a lot of times to take thyroxine i get the worse side affects and i stop taking it , i tried euthyrox and t4 neither help me now i am serchin on line to find something that i could feel beter after i will do blood test

SlowDragon profile image
SlowDragonAdministrator in reply to morcan54

If you are lactose intolerant you need lactose free levothyroxine

Teva is lactose free but contains mannitol

Thybon Henning is lactose and mannitol free

So is Aristo

Aristo now called Vencamil

morcan54 profile image
morcan54 in reply to SlowDragon

can i buy this on line in cyrus is only euthyrox and t4 levothyroxine... tky

SlowDragon profile image
SlowDragonAdministrator in reply to morcan54

No idea

Your Dr could specify Thybon Henning or Vencamil brands of levothyroxine on your prescription

Ask Pharmacy if they can source either

morcan54 profile image
morcan54 in reply to SlowDragon

he is not very talkeble but i will ask him i did ask if it was other thyroxine ke can pescripe and he aaid no and sent me to alergyologist to get alergy pils to be able to take euthyrox i will try on line and see what i can find tky i apreciate al your advice pointing out the corect direction tky very much

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