Need advice or positive thoughts maybe… - Thyroid UK

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Need advice or positive thoughts maybe…

Nath27 profile image
14 Replies

Hello everyone,

I increased my levo from 125 to 137.5 just over 3 weeks ago. My symptoms were extreme tiredness, dizziness, feeling weak (legs), stiff neck, headaches, feeling cold …

I ‘m a bit better, I ‘m still tired but not as much.Headaches are better. But I still feel weak and the dizziness is still there ( even if it’s marginally better).

This morning, I did some house cleaning, not that much…and I felt dizzy and weak. Is it normal ? I get really anxious… I don’t want to go out anymore…

Do I need to be more patient ? I was hoping to be much better by now after increasing my levo..

Please kindly let me know what you think? Thank you.

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Nath27
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14 Replies
SeasideSusie profile image
SeasideSusieRemembering

Nath27

It can take up to 6 weeks to feel the benefit of a dose increase, your levels have probably not yet settled so it could still be early days. Some people do feel worse before they feel better when increasing. Finding the optimal dose can be a long, slow journey.

Nath27 profile image
Nath27 in reply to SeasideSusie

Thank you for your reply. Sometimes I feel like I’m never to get better. There are so many setbacks. I will do a blood test in 3 weeks. I try to stay positive but it does get me down.

Nath27 profile image
Nath27 in reply to SeasideSusie

Sorry to bother you again, but I’m getting really stressed the last few days. I feel really weak and the dizziness is quite constant. I feel like a mad woman. It does scare me. Can dizziness lasts that long, it has been a couple of months…Can Hashimoto’s do that? My mind is going into dark places… I’m probably an idiot to ask this….but I don’t understand why I got this symptom the last few weeks and why it doesn’t go away. Sorry again about my rambling.

SeasideSusie profile image
SeasideSusieRemembering in reply to Nath27

I don't have Hashi's so no personal experience to draw on, but there can be a few reasons for dizziness, have you seen your GP about it, got ears checked, etc. Wjen I had dizziness it turned out to be BPPV - Benign Paroxysmal Positional Vertigo - which was sorted with the Epley Manoeuvre.

Nath27 profile image
Nath27 in reply to SeasideSusie

I haven’t spoken to my GP. She is not great. Maybe I should. I don’t know how to explain it very well… I feel so low that I don’t want to see anybody, I know it’s not logical. Anxiety makes everything worse…Thank you for replying.

RedApple profile image
RedAppleAdministrator

Nath27, the symptoms you describe could also be caused by excess T4 (i.e. over medication). If you add in more info here about what your full thyroid test results were before you increased your levo, members will be better able to offer their thoughts.

Nath27 profile image
Nath27 in reply to RedApple

Thank you for your reply. I posted my results 4 weeks ago. My T3 was about 41% through range and T4 was 51%. I tried to re-post my results but I have an issue with my laptop, sorry.

Espeegee profile image
Espeegee

How is your B12? Many similar symptoms if you have a deficit and it goes hand in hand with hypo.

Nath27 profile image
Nath27 in reply to Espeegee

My b12 was ok, I was 97% through range.

McPammy profile image
McPammy

what was your TSH prior to the dose increase??

Nath27 profile image
Nath27 in reply to McPammy

hello, tsh was 0.117

McPammy profile image
McPammy in reply to Nath27

Your TSH suggests that you are over medicated. Not sure why they would suggest an increase when you are over medicated with suppressed TSH? Was this the result before you increased your dose?

Nath27 profile image
Nath27 in reply to McPammy

yes, it was. But my symptoms were worse before the increase. My FT3 and FT4 are only 41 and 51% through range. So I don’t think I’m over medicated.

McPammy profile image
McPammy in reply to Nath27

maybe not then?? Might be worth a try to get your bloods done 2hrs after you have ingested your medications. To see where the levels can get to. TSH is normally suppressed when you’ve taken too much over a period of time. It’s a good check.

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