hypothyroid: id like to know your experience... - Thyroid UK

Thyroid UK

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hypothyroid

codghosts profile image
10 Replies

id like to know your experience with use of t3 after 5 years using it

prescribed by experienced endocronologist .

greetings ,

cod

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codghosts
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10 Replies
SlowDragon profile image
SlowDragonAdministrator

You mean you have been using T3 five years

Or you want members experience of taking T3 more than 5 years

codghosts profile image
codghosts in reply to SlowDragon

didnt use T3 ever

i live in belgium , i have hypothyroid because of pitutuary gland is not working

and is not making tsh , and others.

thats why i want members experience of taking T3 more than 5 years

SlowDragon profile image
SlowDragonAdministrator in reply to codghosts

So you need full thyroid and vitamin testing

TSH, Ft4 and Ft3

Have you had TPO and TG Thyroid antibodies tested

Essential to test vitamin D, folate, ferritin and B12

Presumably you also have adrenal and testosterone levels tested too

You need all these test results gathered up together before considering booking any endocrinologist

Thyroid U.K. has for list of U.K. based thyroid specialist endocrinologists and doctors who will prescribe T3 if clinically appropriate 

email the office

tukadmin@thyroiduk.org

codghosts profile image
codghosts

thx a lot !!

FAB-jellybean profile image
FAB-jellybean

I've been prescribed levothyroxine (T4) for 20 years and T3 along with T4 for almost 5 years. I have a conversion issue which meant my fT3 levels were always below range despite my fT4 levels being high. I haven't looked back. I was badly disabled with pain and actually got a fibromyalgia diagnosis, but am now functioning again. It's not perfect, the damage that was done in my body, I think will forever be a challenge but I was doing really well until perimenopause hit and now I'm having problems again in fine tuning my doses.

My GP is also unhappy about my TSH being suppressed despite my ft3 and fT4 being well within the range. T3 around 50% and T4 about 20%. I'm currently experiencing anxiety that originally started in Oct/Nov due an adverse effect to progestin in the HRT as well as ashwagandha supplements so they think it's the TSH causing the anxiety as well as my prolactin being slightly high although it's much lower than it was (now 602). All my other symptoms are my typical hypo symptoms though (pain, dry skin, hair loss, my eyebrows not growing and really poor condition and ridged nails). I've changed HRT and all the other side effects caused by the progestin have gone, it's only the anxiety that remains. Waiting on new meds for that helping.

Having said all that, as SlowDragon said you need to see your full blood profile to see if you actually need T3 because if you don't, it will cause more problems than it would solve.

Litatamon profile image
Litatamon in reply to FAB-jellybean

FAB-jellybean,Did you have any issues with T4 monotherapy all those years that no longer existed with T4/T3 therapy, when the levothyroxine was of course still there in your body to produce side effects?

I am asking about side effects that are more levothyroxine focused then the pluses of simply raising t3.

Imaaan profile image
Imaaan in reply to Litatamon

PM chat has been behaving a little differently so just want to let you know that I've responded back to your pm and hopefully you've received it.

FAB-jellybean profile image
FAB-jellybean in reply to Litatamon

Hi Litamtamon, I only ever had issues/side effects with T4 when I was swapped and changed brands at the pharmacy. Some people have particular issues with the excipients in T4 rather than the T4 itself, eg many people have problems with Teva T4 (I also happen to have problems with Teva T3). I have now found a brand of both T4 and T3 that I stick with all the time and don't appear to have any side effects with T4 or T3 itself.

SlowDragon profile image
SlowDragonAdministrator

You can read members profiles.

Often gives details on their own experiences with T3

codghosts profile image
codghosts

thx for your info , im happy to find people with the same or nearly same problems.

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