sore mouth and tongue

[Mtraynor]

hi does anybody else suffer with splits to tongue and ulcers to tongue I seem to be getting them more often

[SlowDragon Administrator]

See this list of Low B12 symptoms 

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

When was B12, folate, ferritin and Vitamin D levels last tested

What vitamin supplements are you currently taking

How much levothyroxine are you currently taking and do you always get same brand levothyroxine at each prescription

Please add most recent results and ranges

[Mtraynor in reply to SlowDragon]

hi I have regular vit D and have for a few years are unable to retain it

I’m on 112.5 levo and no they don’t always give me the same brand I have requested this but they say it’s what’s in at the time

I’ve recently had bloods I haven’t yet recieved the results I’ll ask for a list and then post them

Thanks for the info I recently had legionella and on my discharge info they asked the GP to investigate anaemia

[SlowDragon Administrator]

are you on strictly gluten free diet

If not get coeliac blood test done too

nice.org.uk/guidance/ng20/c...

1.1 Recognition of coeliac disease 

1.1.1 Offer serological testing for coeliac disease to:people with any of the following: 

persistent unexplained abdominal or gastrointestinal symptoms 

faltering growth

prolonged fatigue unexpected weight loss

severe or persistent mouth ulcers

unexplained iron, vitamin B12 or folate deficiency

type 1 diabetes,

at diagnosis autoimmune thyroid disease,

at diagnosis irritable bowel syndrome (in adults)

first‑degree relatives of people with coeliac disease.

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common. 

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's test positive for coeliac, but a further 80% find strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link) 

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies 

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first 

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

[McPammy]

I had a sore tongue when my b12 was too low. I now get regular B12 injections. And feel better for that. Have your B12 bloods checked. I’m a vegetarian and don’t eat enough b12 in my diet. Also I found my ferritin was too low, again from not eating meat.

[Batty1]

did you have a sore tongue prior to having legionella ?

[Mtraynor in reply to Batty1]

Yes at times

[Hidden]

yes I have geographical tongue, it is usually when I eat something processed that it flairs up