So after over 10 years on levothyroxine, I had a review with my consultant, who queried my other medication and advised I needed to take thyroxine on its own without any of my other medications. I started when I was very 19 and am now on 150mcg at aged 29. I was never once told that I couldn’t take it without my other medication. I knew it had to be before food and first thing but they always knew I took my medications all together!
ANYWAY - I have started a new routine of taking it in the morning on its own with no other medications etc and have been doing so for about a month or so.
We have been trying for a baby for some time and still had all my normal symptoms I usually have throughout my cycle, however, I am now 10 days late. I had mild pulling cramps, extreme fatigue, sore boobs etc but not like my usual period symptoms at all.
I took a test on day 3 of my missed period and it was negative (I must add that it was also late afternoon and after 3ltrs of water, so probably not very reliable) but now I’m wondering if I should take another test this week??
We have been trying for so long that I am really scared to take a test because I don’t want to get excited over something that might not be actually happening! I have spoken to my consultant on the phone and she said straight away she thinks I am pregnant but that’s without any tests, so she is sending a blood test for me to have done!
I just wanted to know if anyone else has experienced this? My dose did not change, just the routine in which I take it, so maybe, for the first time it is actually working properly and this is actually just kickstarted a new cycle??
I don’t know, but I’m just a bit lost and all over the place, so anyone experiencing/experienced similar, I would love to chat! X
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LulaBelle93
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bless you, I’d pee on a stick if it was me! I’ve got everything crossed for you xxx Ps my boobs were sooooo sore when I was pregnant (both times), sense of smell was heightened too although not on Levo at the time, I was diagnosed at 48 despite symptoms from teenage xxx
thank you so much! I think I am going to test again tomorrow morning just to see! I think when you’ve been trying for so long, every little possible symptom becomes exciting 😭 X
I was never once told that I couldn’t take it without my other medication. I knew it had to be before food and first thing but they always knew I took my medications all together!
EXACTLY what other medications?
What were your most recent thyroid results
TSH, Ft4 and Ft3
Retest 6-8 weeks after changing now you take your levothyroxine correctly
Do you know if your hypothyroidism is autoimmune thyroid disease also called Hashimoto’s usually diagnosed by high thyroid antibodies
When were vitamin D, folate, B12 and ferritin levels last tested
I have several autoimmune conditions but not sure if this is officially diagnosed as Hashimotos as it’s never been labelled that on any of my records. I have bloods for my levels every 4 weeks anyway, so I am due to have them again in two weeks time, so hopefully have them all tested again then. I have B12 injections every 6 weeks as I have pernicious anaemia. I have had a blood test request to test my hormone levels for pregnancy for this Monday coming, so hopefully there is more results then
Thank you so much for the links to the information!
I am on Sertraline and Lanzoprazole, take vitamin D, probiotics and folic acid.
Autoimmune thyroid disease is also called Hashimoto’s
Here in U.K. medics rarely call it anything other than hypothyroidism
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is technically called Ord’s thyroiditis. Thyroid shrinks and shrivels up.
Most hypothyroid patients have LOW stomach acid. Virtually identical symptoms to high stomach acid….but very different treatment
Lansoprazole lowers stomach acid
Many, many autoimmune thyroid patients find strictly gluten free diet gives significant benefits ……and may enable to ween off /stop lansoprazole (a PPI)
Especially once on correct dose levothyroxine and stable
PPI significantly affects absorption of levothyroxine and should be taken as far away as possible from levothyroxine
This is incredible - thank you so much! I’ve never had so much advice regarding everything but have always had issue with both my thyroid and gut health!
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
non coeliac gluten sensitivity (NCGS) and a gluten free diet and successful pregnancy
It's quite common to get a negative test hun so I really hope you're pregnant. It happened with my 3rd baby and I had experienced being pregnant before so really rooting for you xxx
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