change of meds ??: After living in France for 1... - Thyroid UK

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change of meds ??

22121960 profile image
6 Replies

After living in France for 14 years and taking T3 only for 5 years for my Autoimmune Thyroiditis it was necessary to move back to the U.K. With the stress of parents with dementia, Mum severe sectioned in a mental health unit and Dad about to be diagnosed and living alone the stress is enormous.

Having registered with a GP here who took one look at my medication and didn’t know what to do. He consultantes an endo who replied that only Levo is allowed. I am still in dispute with the GP practice.

l am already depressed and tearful so am sure a change in meds will make things worse.

can anyone suggest a way forward. ? Maybe l need to self medicate ? Any helpful advice gratefully accepted.

Thank you ,

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22121960
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SlowDragon profile image
SlowDragonAdministrator

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors who will prescribe T3 (or NDT )

tukadmin@thyroiduk.org

Roughly where in U.K. are you going to be based

Likely to need to pay for private consultation

It’s approx year wait to see NHS endocrinologist

Vast majority of endocrinologists are diabetes specialists and useless for thyroid anyway

BEFORE considering booking any consultation strongly recommend getting FULL thyroid and vitamin testing done yourself

Day before test split T3 into 3 doses spread through the day with last 1/3rd of daily dose approx 8-12 hours before test

Always test thyroid levels early morning, ideally around 9am

What vitamin supplements are you currently taking

Are you currently on strictly gluten free or dairy free diet

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Private prescription enables access to Thybon Henning 20mcg tablets via specialist pharmacies in U.K.

cost is approx 50-60p per tablet. Boxes are in 100 tablets

Has anyone tested your Mum for Hashimoto’s and low vitamins ?

Something to consider

Your Dad also probably needs vitamin levels testing

SlowDragon profile image
SlowDragonAdministrator

Also show your new GP printed copy of this

59,000 prescriptions for liothyronine in England in last year

openprescribing.net/analyse...

liothyronine is allowed on NHS, but has to be approved by NHS endocrinologist and prescribed via endocrinologist hospital pharmacy for 3-6 months before getting prescription on NHS via GP

Difficult to jump through the hoops, but increasing numbers of people are being prescribed, but usually that’s as small dose alongside levothyroxine

Rarer, but not impossible, to be prescribed just T3

Brightness14 profile image
Brightness14

Hi I live in France. How much T3 were you taking?

Brightness14 profile image
Brightness14

i have just read your other posts you were taking 3 grains of Armour per day., then changed to T3. You stated that you were taking 5 pills per day split. Is this correct and have been taking this much or did you make a mistake.

Marnlef profile image
Marnlef

Perhaps insist politely on accepting your prescription from France. GPs often have accepted prescriptions from EU health systems and even other countries. Even with T4 here they can be funny sometimes (people have told me they get T4 and T3 sent to them by friends and relatives). Don’t loose hope, I am sure you’ll sort it out.

HashiFedUp profile image
HashiFedUp

have you tried a private endo? Who prescribes t3 and or NDT?

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