Latest results

[Minky70]

I am posting my latest results for opinions from people with much greater knowledge 😃.

Still on 5mg Carbimazole. Brother and Grandpa are/was hypo. Hospital aware of this history and keeping an eye on it for me.

[Jaydee1507 Administrator]

With these results you are now hypo. Your bio says you have taken carbimazol but what is your medication situation now?

[Minky70 in reply to Jaydee1507]

Thank you for replying. I am still on 5mg of Carbimazole.

[Jaydee1507 Administrator in reply to Minky70]

I'm actually a Hashi hypo person so I won't say anything about treatment for hyper. Might be an idea to outline your meds situation in your post by editing it so those with experience can comment better.

[Minky70 in reply to Jaydee1507]

Thank you. My brother and grandfather are/was hypo. Hospital knows this and have acknowledged this history and are keeping an eye on whether this may be the case for me in the future.

[Jaydee1507 Administrator in reply to Minky70]

Did you find out which antibodies were tested? I mean so far you could still be a Hashi hypo person just like me, although currently going through an initial hyper phase before heading into hypo land.

How do you feel?

[Minky70 in reply to Jaydee1507]

They tested them all because of family history. Feeling better than I did. My original results were only slightly raised and antibodies negative. They have said that obviously I can still have an autoimmune with negative antibody results. They are still calling it thyroiditis at the moment. No racing heartbeat or breathlessness now.

[Jaydee1507 Administrator in reply to Minky70]

Aren't our bodies weird that you can have an autoimmune condition and yet the antibodies aren't positive. Feeling better is a good thing, just hope that hypo symptoms don't catch up with you with those results.

While I'm here I'll just say it's kind of nice to see other thyroid people with male relatives with thyroid disease. I was told by a number of doctors that it's a 'womens' condition and I'd always respond sharply that my father had Hashi's which shut them up. They do generalise far too much!

[Minky70 in reply to Jaydee1507]

Exactly! Thank you for responding 😊

[SlowDragon Administrator]

Ft4 and Ft3 low and TSH too high

you need vitamin D, folate, ferritin and B12 levels tested

Suggest you discuss lowering dose Carbimazole to 2.5mcg daily

[Minky70 in reply to SlowDragon]

Are the results suggesting hypo?

[SlowDragon Administrator in reply to Minky70]

certainly heading that way …if not already getting hypothyroid symptoms

[Minky70 in reply to SlowDragon]

Don’t have any noticeable ones at the moment. All joint pain I had before diagnosis has disappeared.

[pennyannie]

Hello Minky :

What were your brother and Grandpa diagnosed with and did they have any invasive treatment to make them hypothyroid or did the condition simply burn itself out over time ?

Your results do look like you are heading towards hypo territory and your metabolism slowing down :

Trouble is we never have any results from when well to know where we need our T3 / T4 to be sitting.

[Minky70 in reply to pennyannie]

Sorry for late reply. My brother had very little attention for his …. diagnosed himself, asked for tests a few weeks after ending up in A and E. GP then ran tests and funnily enough he was Hypo. Only told it probably started with a virus 😡 I have no idea about my Grandpa’s situation. My mum doesn’t know much about it at all.

[PurpleNails Administrator]

Exactly which thyroid antibodies were tested & results?

TPOab (Thyroid Peroxidase antibodies) 

TGab (Thyroglobulin antibodies) 

TRab (TSH receptor antibodies - measures stimulating, neural & blocking antibodies)

TSI (Thyroid-Stimulating Immunoglobulin)

TPO & TG are “autoimmune markers” - appears with BOTH Hashimoto’s & Graves.  Hashis causes transient elevated hyper levels prior to under active.  

TRab (TSH receptor antibodies) - measures stimulating, neural & blocking antibodies)

TSI (Thyroid-Stimulating Immunoglobulin) Positive TSI or TRab is confirmation of Graves - this causes continuous hyper & thyroid levels tend to very high.  

Given family history of hypo, elevated levels, & very low starting dose of carbimazole which is causing levels to be driven down, looks far more like autoimmune thyroiditis (Hashimoto’s).

The manufactures advice is carbimazole shouldn’t be split - although I found it worked fine.  Other option you could try is take every other day.

[Minky70 in reply to PurpleNails]

thank you 😊

[Minky70 in reply to PurpleNails]

she said she would test for both hyper and hypo antibodies due to family history and I mentioned Hashimoto with which she said was a consideration.

[PurpleNails Administrator in reply to Minky70]

They may mean both TPO & TG antibodies - even specialist think as autoimmune markers  both are sufficient to diagnose Graves as if TSH is low it mean hyper Graves.

I’ve read of members been told antibodies negative, & after being advised on this forum to obtain results come back with non thyroid antibodies test results.

[Minky70 in reply to PurpleNails]

Does this help?

Further information on tests

[PurpleNails Administrator in reply to Minky70]

Well it’s does mention TPO & TRAb but doesn’t show range for TRab & result for TPO.

Trab is likely positive but need lab range to be certain.  

What did the radiologist report state for nuclear scan results?  

The uptake images are very distinct.  Nodules show a specific concentrated area & it’s only noted no nodules. The image will also show if thyroid has low / normal / increased uptake and therefore conclusive as to thyroid function.  

[Minky70 in reply to PurpleNails]

I was told it was regular uptake.

[Minky70 in reply to PurpleNails]

just found letter and it says uniform uptake of 1.7%

[PurpleNails Administrator in reply to Minky70]

It’s should have a % range of what’s normal.  Will be different depending on how the procedure is done.  There would be a set time lapse from administration of contrast (orally or injection) to when image taken. 

If the % is below range or very low in range - then function is low.  The opposite if uptake % high.  You’d expect to see high uptake uniformly throughout thyroid - if hyper Graves.  

Sounds low @ 1.7% but you’d need range to interpret.

[Minky70 in reply to PurpleNails]

Thank you for all your responses. I’ll ask with my next set of bloods in November.