TSH too low result in becoming hyper? - Thyroid UK

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TSH too low result in becoming hyper?

aptucxet profile image
8 Replies

I was diagnosed with hypothyroid and Hashimoto's a few months ago ....with the TSH around 4.5 .......and placed on 25 mcgs. My TSH is now 1.2 and my doc tells me if it gets too low, I will get shaky and hyper. Is she correct with that determination? I see lots of folks on here with TSH lower than 1. I will be tested again in 6 weeks...and will be tested for F4 and TSH at that time. Thanks very much......love this forum with so many knowledgeable folks. My best wishes to all.

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SeasideSusie profile image
SeasideSusieRemembering

aptucxet

my doc tells me if it gets too low, I will get shaky and hyper. Is she correct with that determination?

No, not really. She should choose her terminology better, that is if she understands about hypothyroidism.

If you are hypOthyroid it's a physical impossibility to become hypERthyroid. However, you can be overmedicated which may cause those symptoms.

The aim of a treated hypo patient on Levo only, generally, is for TSh to be 1 or below with FT4 and FT3 to be in the upper part of their reference ranges, if that is where you feel well.

What determines overmedication is the FT3 result which, unfortunately, is rarely done here in the UK although I see it was included in the recent results that you posted last month. So if you have TSH alone tested, or TSH and FT4 tested then look at the FT4 level - is it top of range, is it mid-way, is it low in range? If it's mid-way or low then FT3 is hardly likely to be high so never agree to a reduction in dose on TSH alone or TSH plus FT4, insist on FT3 being tested and only agree to a reduction if FT3 is over range.

Looking at your results your FT3 - Triodothyronine (T3) Free - this was 2.7 (2-4.4) which is 27.17% through which is low so nowhere near overmedication.

aptucxet profile image
aptucxet in reply to SeasideSusie

Thank you very much for that explanation......for some reason, I just couldn't see her reasoning about becoming hyper......or "shakey" ......and it would be rather difficult to reduce the 25 mcgs that I am now taking daily. (Unless taking every other day.....or some such approach to reducing the dose. Thanks again, Susie

BrynGlas profile image
BrynGlas

My GP thought I was over medicated if my TSH was high. I had to explain to him that it was my body calling for more T4 to be produced. And TSH wasn 't even a thyroid hormone!

apelila profile image
apelila

No not correct. If your frees get too high you will get hyper. My TSH was suppressed below one for more than ten years on desiccated thyroid, never hyper. When I can changed docs he refused to treat me unless I agreed to let the TSH come up in range. These docs don't know what they are talking about.

aptucxet profile image
aptucxet in reply to apelila

Thanks for reply, apelila ......I hope you convinced your new doc to let you continue on just what you were doing. We need to advocate for ourselves, that's for sure!

apelila profile image
apelila in reply to aptucxet

Ended up having to fire that doc, he was closed minded as could be and was basically putting a warning in my medical file as if I was in there asking for opioids. Just insane. I tried another practice and was trying to interview the doc as a "new patient" and when I said, I am expecting you to let me continue my current dose of thyroid hormone since I've been on it for MANY years, she cut me off and said I will NOT allow you to have a TSH under 1 you better understand that from the start. I left of course. She billed my insurance $500 and got paid $300 as a contracted provider. :( It's just horrible.

aptucxet profile image
aptucxet in reply to apelila

OMG.........that's insane!! Just the opposite with me......I want to increase from 25 mcgs to 50 mcgs..........she won't do it.........at least, not yet.

apelila profile image
apelila in reply to aptucxet

No it's the same...a higher dose is going to be more likely to suppress your TSH.

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