Weight gain after years on Levothyroxine 100 - Thyroid UK

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Weight gain after years on Levothyroxine 100

Docu20 profile image
23 Replies

I cannot understand why after having had an under-active thryroid since 2000, and lost so much weight once taking the tablets, that a couple of years ago weight just piled back on. I have bloods tests but thyroid levels come back normal. It is frustrating as I always eat healthily. Any help please???

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Docu20 profile image
Docu20
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23 Replies
PurpleNails profile image
PurpleNailsAdministrator

Welcome to forum

Do you have any blood test results?

When GPs say “normal” range results could be anywhere in the range.

What was tested? Often GP only tests the TSH thyroid stimulating hormone which is a pituitary hormone which signals the thyroid to produce. It’s assumed if this is in range so will actual thyroid hormone will be. That test isn’t not fool proof and not sufficient. You need FT4 - the thyroxine & FT3 - the triiodothyronine test.

Do you have access to tests results online? or you can obtain copies of results. Best to obtain printed copies via receptionist (not verbal / handwritten).

Buddy195 profile image
Buddy195Administrator

‘Normal’ and ‘within range’ are not the same as optimal, so as PurpleNails has outlined, do get your printed results from your GP and post them on the forum.

What is your current dose of Levothyroxine? How long have you been on this dose? Have you ever tested key vitamins (ferritin. Folate, vit B12 and vit D)?Having these at optimal levels is essential for thyroid health, but please don’t supplement without checking your current levels first. You can ask your GP to do this, or test privately (as many members of this forum do).

Lalatoot profile image
Lalatoot

Ah but what size of normal are you? In shoes I am a normal 7 so if the GP kept supplying me with shoes a normal 4 size things would not go well. The bunions would play up, my feet would ache and I hobble

Thyroid test results come with a normal range. Anywhere in that set of numbers is considered normal. Free t4 thyroid hormone can have a normal range of 10 to 22. Like the shoes if your normal is 19 but if the GP is maintaining your level at a normal 15 you will put on weight and have symptoms.

Please ask for your results and their ranges. Pop them on here and we will tell you just how normal your GPS normal is.

Buddy195 profile image
Buddy195Administrator in reply toLalatoot

I’m loving the shoe analogy Lalatoot 🤣

Staffsgirl profile image
Staffsgirl in reply toLalatoot

I smiled, as at first I read that comment as, ‘how normal your GP is’ 😉!

SlowDragon profile image
SlowDragonAdministrator

Also it’s common dose levothyroxine needs adjusting over time

Very important to test vitamin D, folate, ferritin and B12 at least once a year

Lower vitamin levels are common as we get older

On levothyroxine we need OPTIMAL vitamin levels

Do you always get same brand levothyroxine at each prescription

Many people find different brands are not interchangeable

ALWAYS test thyroid levels early morning, ideally before 9am and last dose levothyroxine 24 hours before test

Is this how you do your tests?

elwins profile image
elwins

I always get a printed copy of results, I keep them for my own records. Just so I can compare them each time I get a blood test done. My surgery is very good at printing them out for me.

Arigna profile image
Arigna

If you are female could you possibly be going through the peri menopause now? Many, many women put weight on at this stage of life..

csj113 profile image
csj113

My GP thought my results looked “normal” 5 years ago after she reduced my Levo from150 to 100 mcg. Unfortunately my body disagreed and I developed severe hypo symptoms, including weight gain of 1.5 stones in about 6 weeks (on my 5’ 2 frame). Agree with comments above.

If not thyroid I’d be checking for anaemia, ferritin deficiency and peri-menopause to name a few other possibilities, all of which can also cause weight gain if no other lifestyle changes.

Sorceress29 profile image
Sorceress29 in reply tocsj113

My doctor did the same to me and I lost hair, eyebrows, eyelashes all over again like when I first got Hashimotos.

I gained weight and after 2 years of needing help, writing letters, making phone calls.. I am still not getting the help

Sorceress29 profile image
Sorceress29 in reply toSorceress29

TOTAL EMPATHY

Docu20 profile image
Docu20 in reply toSorceress29

I have had under active thryroid since 2000 and have gained weight just recently quite severely and other symptoms have occurred so I completely empathise, I am looking to ask the Doctor to up my Levothyroxine dosage - I am on a 100 at the moment and have been for several years.

Cup-cake7 profile image
Cup-cake7 in reply toDocu20

Yes agree with constant researcherMy summary is as ostregens decreased my thyroid hormones changed along the way as happened as a PND

But then they replenish

And lots of steady weight gain when they don’t sadly it’s unfortunate for some but can be replaced

Great help here and past posts to search through

Best Wishes

Docu20 profile image
Docu20 in reply toCup-cake7

Many thanks for your reply much appreciated. Will seek Doctor's advice to up my dosage of Levothyroxine.

Cup-cake7 profile image
Cup-cake7 in reply toDocu20

👍🏼 If new here you will learn importance of your folate b12 D and iron levels If perimenopausal as peeped but couldn’t see age group May be worth asking about hormones 🤔

Docu20 profile image
Docu20 in reply toCup-cake7

Thankyou so much for this it helps prior to my speaking to a Doctor, I hope to learn on here a lot more about something that I have had for 12 years, so thanks once again.

Cup-cake7 profile image
Cup-cake7 in reply toDocu20

👍🏼 You’re at a helpful place 😊

Cup-cake7 profile image
Cup-cake7 in reply toDocu20

& T3 levels being the well being factor

san_ray70 profile image
san_ray70 in reply toDocu20

My doctor told me I could lose weight as my dose of levothyroxine was correct. I did I lost 2st 3 years ago, but I put a stone back and I am struggling.

Docu20 profile image
Docu20 in reply tosan_ray70

Thankyou so much for your reply, I emphathise totally - I lost loads of weight and as I said put it back so hence a visit to the doctor or at least a phone call. Have you decided to ask your GP why you have put weight on?

TickTockTock profile image
TickTockTock in reply toSorceress29

Have you tried splitting your levo dose? I was able to massively lower my dose and improve my health by splitting the dose.

Docu20 profile image
Docu20 in reply toTickTockTock

Hi - Thankyou so much for your advise will try anything at the moment, although going for bloods on Wednesday - but do appreciate it and I will see if it works, its just controlling it again I suppose. Tx

Yes….as another asked…are you perimenopausal? Menopausal? This shifts hormone levels of all kinds and can cause weight gain. Also what are your cortisol levels? High cortisol causes weight gain around the middle.

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