Hi guys
Have been up and down with my meds stopped taking them in November am now a week into 50mg of levo. My energy level is back up but I feel like I am over heating like a fever my joint are killing me again . I can't seem to get any help from gps hence me ditching it last November. Is anyone taking a more natrual approach I take all my sups but seem to be banging my head against brick wall
Please add most recent thyroid and vitamin results
Reading previous post, looking like you have autoimmune thyroid disease also called Hashimoto’s
healthunlocked.com/thyroidu...
Are you on dairy free diet?
If yes you will need lactose free levothyroxine
That’s Teva or Aristo (only 100mcg tablets)
Or liquid levothyroxine
Teva brand upsets many people, but for some (often if lactose intolerant) it’s by far the best brand
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
What vitamin supplements are you currently taking
Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis. Both are autoimmune and generally called Hashimoto’s.
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid
It’s common to feel “a bit over medicated “ as dose is increased. It should settle after 1-3 weeks
Important to get vitamins tested and at optimal levels
Retest thyroid levels 6-8 weeks after each dose increase
Recommended on here that all thyroid blood tests early morning, ideally before 9am last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
NHS easy postal kit vitamin D test £29 via
If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease). Ord’s is autoimmune without goitre.
About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s.
Link about thyroid blood tests
thyroiduk.org/getting-a-dia...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
List of hypothyroid symptoms
thyroiduk.org/if-you-are-un...
HiAm gluten free still use butter nothing else
It' s levo thyroxine sodium 50mg Mercury pharma
Last bloods January
B12 418
Folate 15.8
Ferrtian level 10ug
Seruim TSH LEVEL 10.1
VIT D 117 /l
Serum C 0.9
Everytime I go on levo my joints kill
I think I just need private test to be honest
B12 418
Folate 15.8
Ferrtian level 10ug
Seruim TSH LEVEL 10.1
VIT D 117 /l
Please add ranges on these results
Ferritin is extremely deficient
Make an appointment with GP for full iron panel test
Exactly what vitamin supplements are you currently taking
You may need iron infusion, almost certainly need iron supplements
Are you vegetarian or vegan
Or suffer heavy periods
cks.nice.org.uk/topics/anae...
In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency
Look at increasing iron rich foods in diet
Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption
List of iron rich foods
Links about iron and ferritin
An article that explains why Low ferritin and low thyroid levels are often linked
preventmiscarriage.com/iron...
irondisorders.org/too-littl...
davidg170.sg-host.com/wp-co...
Great in-depth article on low ferritin
oatext.com/iron-deficiency-...
drhedberg.com/ferritin-hypo...
This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.
Thyroid disease is as much about optimising vitamins as thyroid hormones
healthunlocked.com/thyroidu...
restartmed.com/hypothyroidi...
Post discussing just how long it can take to raise low ferritin
healthunlocked.com/thyroidu...
Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.
It’s possible to have low ferritin but high iron
Medichecks iron panel test
medichecks.com/products/iro...
Iron and thyroid link
healthunlocked.com/thyroidu...
Posts discussing why important to do full iron panel test
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
Chicken livers if iron is good, but ferritin low
healthunlocked.com/thyroidu...
Good explanations of iron
theironclinic.com/iron-defi...
theironclinic.com/ironc/wp/...
Why low ferritin needs improving
healthunlocked.com/thyroidu...
Hi
b12 418 (108.0 /915.0)
Floate 15.8 ug (3.1—19.9)
Ferrtin 10ug (11.0-307.0) pre menopausal 15-200
Seruim TSH 10.1 ( 0.38 —5.33)
VIT D 117 /l (50.0)
I am pre menopausal my ferritin level was 5 ug (11.0—307.0) last year but I have a 6 cm fibroid as well am pre menopausal and was bleeding so badly have a marina coil in for best part of a year.
My weights gone up from 82.5 kg to a whopping 101 kg I was a competing athelite up untill 2018 honestly font recognise myself.
Sadly we can't see a Dr face to face still in my area
Sorry forgot I only really eat fish
Well no thyroid hormones are going to work well with such dire ferritin
See/email GP copy of these guidelines and request full iron panel test
cks.nice.org.uk/topics/anae...
Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency.
Look at increasing iron rich foods in your diet. Red meat regularly and liver or liver pate once a week
thyroidpharmacist.com/artic...
atlii.com/thyroid-and-fibro...
drlamcoaching.com/blog/shri...
Thank you some great information you given me more hope in 2 message then the Drs I have seen. I will get my bloods done start introducing high iron foods. the article on shrinking fibriods I will research many thanks
Your GP needs to do full iron panel.
Fibroids frequently lead to anaemia
britishfibroidtrust.org.uk/...
Levothyroxine needs good iron and ferritin levels
Very high TSH! How long were you on Levo before and why did you stop?
Increase NDT or Switch back to Levo+T3?
Thinking of switching back to Levo from NDT
Adding back some levo; how much Levo to T3?
Dr wants me to go back on levo
Changing back to levo
