Confusion?

[Jeza59]

Oh my gosh,I don't know what's going on with my thyroid. I thought I was doing OK,then bam,problems with my "parathyroid glands" Has anyone seen an endocrinologist about this? Thanks

[SlowDragon Administrator]

Quote from your profile

GP advised I had a problem with my Parathyroid glands and her parting sentence was " it could be a brain tumour" I was shattered,how could she say that with no proper proof.

If you might have parathyroid issue you need Vitamin D, calcium and parathyroid levels tested together

GP could/should organise this NOW

Read all about parathyroid here

parathyroid.com

Thyroid is nothing to do with parathyroid

Parathyroid glands sit inside thyroid (that’s the only connection)

Thyroid levels if hypothyroid

First step is to get FULL thyroid and vitamin testing done

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. Both are autoimmune and generally called Hashimoto’s.

In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease (and they usually ignore the autoimmune aspect)

Recommended on here that all thyroid blood tests early morning, ideally before 9am last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease). Ord’s is autoimmune without goitre.

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

[Jeza59 in reply to SlowDragon]

Thanks for your advice,have an appointment with new GP. Will ask about all these tests. Thanks again.

[SlowDragon Administrator in reply to Jeza59]

Why did GP say you had parathyroid problem

If they haven’t tested calcium, vitamin D and parathyroid levels they couldn’t have any idea

[Jeza59]

New GP mentioned that he wanted calcium levels tested,I had bloods taken last week. I think he wanted to assure me I had no brain tumour. The previous GP had mentioned having the parathyroid levels checked as I had had been recently diagnosed with diabetes and wanted a whole panel of bloods taken in conjunction with parathyroid. Thats as about as much as I'm aware of.

[Spangle15]

Yes, I had parathyroid issues 4 years ago. My pth was high but calcium normal. Turns out I had two parathyroid tumours, both benign as is the case with most of them so try not to worry.

[Jeza59 in reply to Spangle15]

Morning,thank you for your message. Fingers crossed something will be found and this whole mess will be sorted 🙏

[meme]

All you need right now is vitamin D, calcium and parathyroid tested from the same blood draw. Stop any vitamin D or biotin supplements a few days before test.

[Jeza59 in reply to meme]

I gave a telephone appointment with GP this morning,I will ask him about these tests. Thank you.