Increased dose and crazy head: Hi me again, it’s... - Thyroid UK

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Increased dose and crazy head

Cade83 profile image
12 Replies

Hi me again, it’s now been 4 weeks tomorrow since I upped my levothyroxine, I’m still getting tired however my head has been extremely out of sorts. Like I’ve been thinking a lot about past traumatic events the last couple days but it’s like rolling around in my head and I can’t seem to shift it. I feel like I’m going crazy to be honest the feeling is not nice at all. I feel like things are spinning around in my head and I can’t make it stop. I know when I went up to 100mcg I was getting spinning thoughts a lot and this freaked me out and it’s really freaking me out this time as well. I don’t really want to drop my dose again cause I do think I need to up it for my energy levels but I really don’t feel right at all. I’m not even sure I’m making sense but I just know this doesn’t feel great. Occasionally I’ll be able to take my mind of it but it’s making me really anxious as well. Sometimes I feel like my head is gonna explode but not with pain just the feeling. Has any one experienced similar or am I going insane?

TIA

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Cade83 profile image
Cade83
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12 Replies
jgelliss profile image
jgelliss

I'm so sorry that your going through this. You might want to ask your Dr to lower your T4 and add some T3 and see how that works for you. You might also try to split your T4 dose too. Try half before sleep and the rest when you wake. Your dose all at once dosing might be too much for you at one time. Spliting your T4 dose may work better for you.For now try some magnesium some four hours away from your thyroid meds. That can help with your headaches.

Wishing you better days ahead.

greygoose profile image
greygoose

Going over and over past events is a hypo symptom. It's something I sometimes get, even though I'm well medicated, but not to the extent you appear to have it. But, I don't think anyone can make any informed suggestions without more information, such as:

* by how much did you increase your dose?

* what were your last blood test results?

* you say you had the same experience when you increased to 100 mcg, so did it go away eventually? How long did it take to go away?

It does rather sound like you're still not on your optimal dose, but you have to increase slowly, I'm afraid. :)

Cade83 profile image
Cade83 in reply togreygoose

I only increased by 12.5mcg to 87.5mcg. My last lot of blood tests are on a previous post but have put them below. I stopped the 100mcg and went back down to 75mcg, I think it was around 6-8 weeks I lowered it again. My head is calm sometimes but I just assume the increase speeds things up and maybe it takes a while to level out a bit.

Blood test results
greygoose profile image
greygoose in reply toCade83

So, those results are on 75 mcg? Well, you're obviously under-medicated on that dose. And your high cholesterol is saying your FT3 needs to be much higher. It's only 37.84% though the range. Most hypos need it up in the top third of the range. And your FT4 is even lower at 24%. So, given that what you are experiencing is a hypo symptom, you should perhaps stick with the higher dose and try and ride it out.

Did you start the B complex? Does it seem to be helping with anything?

Cade83 profile image
Cade83 in reply togreygoose

Yeah started it the same time as the increase, erm I don’t know really. Mind you I’ve stopped waking up in the middle of the night with a dead arm that was freaking me out a bit. Was only 1-3 times a month but haven’t had that since (touch wood). I am feeling more alert but still tired at the same time.

Gingernut44 profile image
Gingernut44

What a pity you didn’t get a TSH result for the full picture. Also, I notice your folate result is low. How long have you been taking your Vit B complex?

Cade83 profile image
Cade83 in reply toGingernut44

Yeah it really would of healed having the TSH but they said there was insufficient blood. I’ve been taking b complex same time as the increase so 4 weeks.

Gingernut44 profile image
Gingernut44 in reply toCade83

The only thing to do is stay with your current dose for a few more weeks then do a blood test to see where your levels are. Don’t forget to stop your B complex 7 days before your test.

Cavapoochonowner profile image
Cavapoochonowner

hello there, I have graves and am currently taking carbimazole and levothyroxine as block and replace treatment.At the moment I am slightly overmedicated(T4 is slightly over range) and am waiting for a call from my endo to slightly reduce my levothyroxine.At the monent I too am having alot if repetitive thoughts.One night when I couldn't sleep I was trying to remember the names of everyone I used to work with in one particular office( I haven't worked there for over 20 years) Also songs going round and round in my head.I get this when I have a migraine too.For me I think it is just that I get hypersensitive when my levels are too high.It's a delicate balancing act isn't it.Too low and I feel sluggish and tired and my hair starts falling out, too high and I feel jittery and twitchy.Maybe just a small reduction will help.That's what I'm going to ask for.Hope you feel better soon.

marvalrus profile image
marvalrus

Hi, so sorry you're feeling like that. I was wondering about the brand/type of Levo you're taking. From what I've learned, each is a bit different from the next and they can effect your thoughts and mood. Not sure what you're taking, but maybe you should try a different one.

Cade83 profile image
Cade83 in reply tomarvalrus

It’s so hard to get the right dosage. It’s very frustrating. I’m now getting strange palpitations as well. Like I’m used to ectopic heart beats but this feels slightly different. Just want things to be normal.

marvalrus profile image
marvalrus in reply toCade83

How much are you taking right now? 87.5? Pick a dose that you think may be what you need based on most recent labs, and stick with it for a while, then follow up w/basic labs to see how it's going. In the meantime, try to work on the supplements.

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