Copy of letter sent to gp

[Minnie43]

Have just received a copy of letter sent to my gp and I personally thought it was pretty good and he has picked up the hashis

[SlowDragon Administrator]

Well ….no clear request to GP to run coeliac blood test, etc

Or were tests done at the hospital

No mention of low Ft3

Your Ft4 was only high as you took levothyroxine just before blood test and many thyroid patients have TSH that low when adequately treated

Likely now becoming under medicated/low Ft3

[Minnie43 in reply to SlowDragon]

It says coeliac serology and b12 and auto antibodies to be tested at the bottom of letter my gp reduced me to 100mg on 22 nd Dec and private rests were done 5th jan

[SlowDragon Administrator in reply to Minnie43]

As long as GP understands endocrinologist is requesting GP organise these tests

So Medichecks test was only 2 weeks after dose reduction

May see Ft3 drop lower at next test

[greygoose]

What's good about it? He doesn't actually say anything that your GP - presumably - doesn't already know. He doesn't lay out a treatment plan, just talks about reducing levo due to suppressed TSH, which isn't in the least bit good when your FT3 is so low. And, if he already knows you have Hashi's, why is he retesting the antibodies? That's just a waste of time and money.

[SlowDragon Administrator in reply to greygoose]

I guess endocrinologist has to repeat tests as they “won’t accept “ private test results……even though private tests are frequently done at same lab as NHS use

[greygoose in reply to SlowDragon]

What a waste of resources!

[SlowDragon Administrator in reply to greygoose]

I know …..utterly ludicrous

[nellie237 in reply to greygoose]

I don't think Minnie43 has ever been told whether her antibodies......either Graves or Hashi's have been tested......

[Edit] Oops, yes a few posts back - Hashi's confirmed

[greygoose in reply to nellie237]

Yup. And it says at the top of the letter: Hashimoto's Thyroiditis. So, he knows.

[Minnie43 in reply to greygoose]

What would he mean by other autoimmune diseases?

[greygoose in reply to Minnie43]

Coeliac Disease, diabetes, Shogren's syndrome, Pernicious Anemia, there are many, many other autoimmune diseases you could have. And, if you have one, you're more likely to develop another. Although that doesn't always happen. I have Hashi's, but no other autoimmune diseases.

[Minnie43 in reply to greygoose]

Thanks hopefully I don't have any ore either

[greygoose in reply to Minnie43]

I hope so too.

[nellie237 in reply to Minnie43]

As greygoose said, there are many, but we don't get screened for them on the NHS, unless we present with symptoms for a particular condition (the only exception is coeliac) Labtests online are useful for initial research. Here's what they say about autoantibody profile testing.

labtestsonline.org.uk/tests...

I doubt a GP has the authority to do this testing. The Endo is not expecting your NHS GP to do this test.

[Minnie43 in reply to nellie237]

He said as I was seeing him privately he could only recommend to my gp what he thinks should be tested He has given me a form to get them done privately but said let's see how you go with gp first

[SlowDragon Administrator]

How long had you been on 100mcg levothyroxine when did Medichecks test

This doesn’t show improvement…it shows dropping Ft4 and low Ft3

TSH: 0.24 (0.27-4.20)

FT4: 16.3 (12-22)

FT3: 4.37 (3.1-6.8)

Ft4 only 43% through range

Ft3 on 33% through range

Helpful calculator for working out percentage through range

chorobytarczycy.eu/kalkulator

Folate was deficient in Medichecks test.

Post with Medichecks results

healthunlocked.com/thyroidu...