Best NDT?: Good morning. I have an appointment... - Thyroid UK

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Best NDT?

Angie10116 profile image
17 Replies

Good morning. I have an appointment today with my doctor and I think he might recommend ndt. If he does, what brand is the best? I am aware of the fact there have been recalls of specific ones, so I’m just wondering what the best one is in your opinion. Thank you

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Angie10116
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17 Replies
shaws profile image
shawsAdministrator

We are all different and one NDT may suit one person and not another. It is trial and error for many members. Once you find that the one you're taking has relieved/or is relieving your clinical symptoms, ask the pharmacist to order it for you in the future.

Angie10116 profile image
Angie10116 in reply to shaws

Of course. I’m just wondering what one is more stable. As I mentioned, I’ve heard that a lot aren’t good anymore and keep getting recalled

shaws profile image
shawsAdministrator in reply to Angie10116

It's very difficult to know because our bodies can react differently to thyroid hormone repacements.

SeasideSusie profile image
SeasideSusieRemembering

If you mean prescribed NDT there's not a lot of choice, maybe Erfa and Armour. If without prescription there now only seems to be Thyroid-S from Thailand.

Angie10116 profile image
Angie10116 in reply to SeasideSusie

Yes I meant prescribed. Thank you!

Anthea55 profile image
Anthea55 in reply to Angie10116

Erfa is a lot cheaper than Armour. I suggest that you try that first. Prices vary, so come back here once you know what you are getting. It's unlikely that you will get it on the NHS unfortunately.

Angie10116 profile image
Angie10116 in reply to Anthea55

Thank you! Yeah I’m seeing a private endo bc my doctors wouldn’t even consider anything other than Levo

TSH110 profile image
TSH110 in reply to SeasideSusie

Angie10116 Also NP thyroid/Acella is available. I took it a few years back and found it to be effective. It may have been reformulated since then tho.

Angie10116 profile image
Angie10116 in reply to TSH110

Thank you for your answer!

SlowDragon profile image
SlowDragonAdministrator

For any replacement thyroid hormones to work well we need OPTIMAL vitamin levels

What were most recent vitamin D, folate, ferritin and B12 results and ranges

What vitamin supplements are you currently taking

Angie10116 profile image
Angie10116 in reply to SlowDragon

Vitamin d was 50 last time, folate can’t remember, ferritin was 40 and b12 was 650. I’m simply wondering about which brand is best because of all of the recalls😁. I don’t have the ranges

SlowDragon profile image
SlowDragonAdministrator in reply to Angie10116

vitamin D 50nmol (U.K. units) presumably….if so needs improving to at least around 80nmol and around 100nmol maybe better

Ferritin obviously needs improving too. Have you had full iron panel test for anaemia?

Angie10116 profile image
Angie10116 in reply to SlowDragon

I’m taking 800 iud of vitamin D daily. Maybe I’ll try taking more. Yes iron panel was all good, just the ferritin was low. I was told to take iron supplements for it

SlowDragon profile image
SlowDragonAdministrator in reply to Angie10116

You are legally entitled to copies of your test results

If iron is low GP should prescribe iron and essential to regularly retest full iron panel at least every 3-4 months

Vitamin D

Likely to need at least 1000iu-2000iu daily

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Angie10116 profile image
Angie10116 in reply to SlowDragon

Thank you so much for all of that info! I really appreciate it. Yeah I’ve had my results, just don’t have access to them right now see. I will look at that spray! Thank you so much

Incoguto profile image
Incoguto

I would recommend Armour, but yes, it is expensive unfortunately

Angie10116 profile image
Angie10116 in reply to Incoguto

Thank you!

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