I am looking for advice as I have come to another fork in the road of my health journey, 14 months ago my cat almost died, antibiotics and being on a drip at the vets for 7 days saved her life, I was only told she tested positive for mycoplasma felis and bordatella (kennel cough) although she had no cough. 2 weeks later, we moved house and I developed debilitating chest pains, bladder pain and leg pain, at my worst I couldn't get off the sofa and I spent months struggling with body pain so bad I wanted to die.
Symptoms: Chest pain that changes, from stabbing, burning, stinging, aching and the worst is bruised lungs feeling, when taking deep breaths in and moving alot. Shortness of breath and dizziness last year. Ocular Migraine for first time in my life.
Bladder pain, similar to cystitis and burning. Leg pain: feels like leg is being dipped in water sometimes, but more often just aching like I have been to the gym too much and in one particular spot on my left leg. Aching joint as well. Extreme tiredness. The pains move throughout my body, switching from one system to another as if a light switch is being turned off and on.
Fast forward 14 months, many drs, naturopaths and health tests later, I currently spend £400 a month on supplements for mitochondria, detox and energy based on lab testing of deficiencies and also take prescription drugs and my pain is manageable but still suffering with some form of pain every day. I was put on proton pump inhibitors which did help the chest pain, but a gastroentolorogist who did my endoscopy and PH studies said I absolutely do NOT have acid reflux.....then why do proton pump inhibitors help the chest pain somewhat?
The more you look, the more you find: so far we have found low natural killer cells, positive IGA and IGG antibodies for mycoplasma pneumoniae with weak positive for the same infection using ELISPOT testing, positive hydrogen SIBO, previous positive for lymes disease which now appears negative after herbal treatment, dysbiosis of the microbiome & high mycotoxins load (which indicates mould toxicity). I spent alot of time and money focussing on SIBO, I cleared it temporarily by not eating for 3 weeks (elemental diet) but my pain was still there, so I am confident the pain is not SIBO. I've had a CT scan and an MRI of my whole abdomen and chest, an endoscopy, a manometry, colonoscopy, you name it! Despite not having any histamine issues - I have tested for this privately, I am currently on MCAS mast cell stabiliser medication on the assumption that an infection or mould is causing radiating body pain that moves and changes randomly. In order to get off meds and get my immune system working, instead of putting a band aid on the problem, I need to fix it as I am on hardcore pharmaceutical drugs and I don't want to be.
Since finding out my IGG and IGA antibodies are positive for mycoplasma pneumoniae, my DR has prescribed azithromycin but does not know if this is the problem, it's just a trial and error situation as my naturopath ordered all the testing as conventional drs aren't very aware of these things. But nobody has ever told me what exactly my pain is, so how can I fix it if I don't know what exactly is causing it?? I have so many questions, if I did catch mycoplasma off my cat, she was positive for mycoplasma felis NOT mycoplasma pneumoniae, Drs tell me I can't be tested for that, so if I do in fact have the exact one she had, will azithromycin work? it's been prescribed for my positive mycoplasma pneumoniae, I think my naturopath told me it is possible that the weak positive ELISPOT was only weak positive because I may have the mycoplasma felis infection my cat had, not the one I was actually tested for (pneumoniae) so there can be cross reactivity? Antibiotics are a last resort for me as on my stool test I have extreme low akkermansia and other key gut bacteria which I am scared of losing completely and of course antibiotics makes SIBO ten times worse and I still have active SIBO which I can't clear permanently after 1 year of trying everything. My natural killer cells are very low as well and the lab report states that chronic immune suppression is usually caused by things like mycoplasma pneumoniae. Even after 1 year of trying to boost my immune system, I still can't. I've done everything from IV immune boosting drips and glutathione/phosphalipids to colostrum, LDN, daily high dose vitamin C and glutathione, phosphatidylcholine, zinc, vitamin D3, infrared sauna, massage, trampolining, everything!
I know I have a mould issue and yes my house last year was a bit mouldy but nothing out of the ordinary, still I moved house anyway, threw alot of stuff away and bought air filters for our new place. I believe mould issues are something I've had for years in all honesty, my memory problems and fatigue has been going on for many years but the nose dive in my health was last year when moving house after my cat was ill and THAT is the thing I need to figure out. Is it possible to have a mycoplasma infection that lasts over 14 months, without a cough or mucus? Would it be really stupid to take antibiotics at this point when my pain is manageable on mast cell stabilisers for mcas? I will probably need to come off most of my drugs when I get pregnant (when I am pain free and improved) but terrified there's still lots of pain hiding under the tablets I am taking which will resurface when it stops. I have also tried SO many potent herbs over the past year for SIBO and lymes, these obviously didn't kill the mycoplasma infection and they certainly never cleared my sibo infection. As my mycoplasma IGG antibodies are high still, should I assume this is still a current infection and it may be the thing that allows my immune system to recover once cleared? There is also the possibility that my pain is actually totally gut related as I have bacterial imbalances, so antibiotics would be a huge step backwards, despite working on my gut with professionals and being 100% gluten free and dairy free my stool test now looks worse than 12 months ago. My dr friend thinks mycoplasma pneumoniae isn't a big deal and it wouldn't cause these debilitating issues. Please help, I am so lost.
Alas, we frequently find here that labs within the laboratory reference range are far from perfect but you maybe already know all that... please just say if I’m barking up the wrong tree. 
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