Waving across the hills from Dorset

[WildDeer]

Dear Jane,

I'm over the border in West Dorset and am groaning to hear that the Exeter Endocrinology team and CCG are singing from the same hymn book as the Dorset ones. I had thought they were a bit more enlightened. But perhaps they perceive prescribing 10mcg as rather bold given the kind of propaganda warnings that the CCGs send out about the use of T3.

Like so many people with complex thyroid problems I am treated by my local GPs with extreme defensiveness and dismissiveness. If I didn't buy my own T3 and manage it, they would take me off it. I should be grateful that the extent of the rudeness drove me to find an

"outlier" NHS Endocrinologist who dares to think and read the research. And that I can afford to buy my T3 from Hong Kong at a tenth of the price that the NHS is willing to pay for it. His hospital is a long journey away. Unfortunately that seems to be the situation we are currently having to deal with. I don't ask him to prescribe but he potentially could I think. And his directions have taken the strain off the GP I am now with who would be in trouble if she did too much thinking. In these rural localities it's not possible to change surgeries.

I wrote to our MP about all this before the elections and then lockdown.

I lived in East Devon until 3 years ago and was originally diagnosed in Exeter.

Please let me know if I can help Best Wishes!

[SeasideSusie Remembering]

WildDeer

Your post would appear to be in reply to another member's post. For them to know you have responded you need to reply directly to their post, not start another thread. Maybe you can locate the original post, copy and paste this reply in that thread, the original poster will then be alerted to your response, then you can delete this post.

[Marz]

JaneChapple posted ... click onto her name in blue and you should be able to find her post 🌻

[Hidden]

Every thyroid suffering patient should be made fully aware of the GMC's position relating to EVERY drug or health product available legally in this country, including T3/Liothyronine.This is included in the following publication, available readily to anybody on the GMC website.

"Consent - patients and doctors making decisions together";

part 2 "making decisions about investigations and treatment, Sharing information and discussing treatment options" states:

"(9) You MUST give patients the information they want or need about:

(l) any treatments that you believe have greater potential benefit for the patient than those you or your organisation can offer."