Query liver test and timing reg bloods in Graves Disease

[Michellear]

Hi all,

Posted on here sometime ago, I have since had a thyroid uptake scan and diagnosed definite Graves.

I started on Carbimazole and propranolol around 7 weeks ago by endo in A and E. I have a blood form from hospital to check thyroid function, but the liver isnt mentioned.

Can anyone please advise me of my liver need to be checked regularly along with thyroid function and if so go often?

Waiting for GP to call back. Seems like every health issue one has to be proactive!!

Thanks

Michelle

[PurpleNails Administrator]

I had liver profile just before my first hospital clinic appointment with the endocrinologist. I’d been taking carbimazole almost 2 months, Liver & full blood count is not routinely monitored by NHS. Although it should be checked once especially within the first few months of commencing medication, and if you have any symptoms.

It’s only my thyroid levels which are checked while taking carbimazole. Usually around 6 weekly.

[Michellear in reply to PurpleNails]

Thank you Purple Nails!

[micadog]

Hello, I am still at the stage of getting the carbamizole dosage correct so an having bloods every 4 weeks or so. I have had my liver checked a few times. However my enzymes were slightly raised anyway and have actually improved now my thyroid is more in check. Personally I would want it checked when just starting the drug and then again a short while after just to make sure all is okay. I don’t know if this is routine though!

[Angel20]

Have bloods done privately, full blood count, liver etc, stay in control.

[pennyannie]

Hey there again :

You might like to read around Graves Disease and if you do I believe this the most well rounded website, written and run by Elaine Moore .

20 odd years ago Elaine was diagnosed Graves and went through RAI treatment, and then, finding no help with her continued ill health, and being a medical technologist, started researching this poorly understood and badly treated auto immune disease herself.

Elaine has several published books and now a website offering all things Graves for Graves sufferers, family, friends and loved ones world wide., and there is much research and suggestion into other, more holistic and alternative options that have been used in other countries, that you may like to read of and think of alongside your current understanding of what Graves is all about for you.

It does appear to be a stress and anxiety driven AI disease and although I've have had to learn of my situation back to front, 12 years after RAI treatment for Graves, it has helped me understand my own " triggers " and how to try and manage my immune system response to situations and life triggers.

[Michellear]

Hi Pennyannie,

Many thanks for your support and informative messages. Very mu CJ appreciated.

Sounds like you’ve been through a lot. Shout out to strong women like yourself! X

[pennyannie in reply to Michellear]

I hope you now have the written, medical evidence of the over range and positive antibodies unique to Graves Disease :

There should be either a TSI ( worded as a thyroid stimulating ) and or a TR ab ( worded as a thyroid receptor blocking ) antibody reading.