I need people to tell about their t-3 only experience

I would appreciate it if people could tell me about their t-3 only experience. I am starting to go on t-3 only after failing on t-4 hormone medications. Please tell me how you take it, and you can function normally.

[shaws Administrator]

I am one who has recovered their health on T3 only. I did take a higher dose, but it is now reduced. My experience of having T3 added was 'miraculous'. That is a perfect word for it as - like many people-we're given levo and I was in/out of the A&E at all hours as heart wouldn't be at ease.

Eventually, the cardiologist said he would have to put an implant in my heart as he couldn't figure out was was wrong. A week later I had T3 added and it was amazing. Not all people have the same reaction. I never needed to see the cardiologist again.

I will look for my favourite doctor's site (now deceased) and I'm sure it will be helpful. Unfortunately for us Dr Lowe had an accident that caused his death. He was also an Adviser to TUK as well as a researcher, expert on T3 and also took T3 himself.

Links are within this post:-

healthunlocked.com/thyroidu...

[Hidden in reply to shaws]

ShawsThank you for the response! I don't know how to explain, but t4 stopped working for me. I feel the t3 has given a boost to be functional, and I don't know why the medical community act like t3 is bad because it was used for decades before Synthroid. I hope it can help me metabolize my other medicines that I take for other health conditions.

[shaws Administrator in reply to Hidden]

I think the main reason not to prescribe T3 is that, if you're in the UK it is very expensive now (it never used to be) and NHS not willing to pay.

NDT (natural dessicated thyroid hormones - the very original that saved livessince 1892 and now withdrawn as well as T3 but they had to state lies in order to do so).

[Hidden in reply to shaws]

Cytomel being harder to get is terrible. I hate to hear people who need access to their medicine can't get access. I know it's frustrating to get hold of the medication that it works the best.

[Hidden in reply to shaws]

Shaws, Thank you again for the help. I am trying this new regime, and I am pushing to get my life back on track. I wonder if your issues with metabolizing other medicine with Cytomel.

[shaws Administrator in reply to Hidden]

If you want to draw attention of a member within a post put an @ before putting their name Hidden and a selection will appear and the person will be alerted.

[shaws Administrator in reply to Hidden]

I only take T3 alone.

If I had to take other medications I would leave a long gap between T3 and it. I wouldn't want any interference of T3.

[SlowDragon Administrator]

First step is usually to add SMALL doses of T3 alongside levothyroxine

Many people find levothyroxine is fine, if they are also prescribed T3 as well

Have you tried adding 5mcg T3 x 3 separate doses spread through day as FIRST step

Usually T3 must be added VERY slowly at 5mcg initially and slowly adding 2nd and 3rd doses after week or so

[Hidden in reply to SlowDragon]

Slow dragon

I believe your on t-3 only, and I am wondering how did it take for you to feel normal on your t-3 only.

[SlowDragon Administrator in reply to Hidden]

I am not on T3 only

I am on mainly levothyroxine (125mcg) and 3 small doses T3 at 8 hour intervals (20mcg total per day, as 10mcg at 7am, 5mcg at 3pm and 5mcg at 11pm)

Like many, I have found through experimentation, that I need GOOD Ft4 and Ft3 levels. Both at least 70% through range

[Meanbeannyc in reply to SlowDragon]

2 weeks***

[IndigoPixie12]

I was on T3 for years. Like Slowdragon said, introduce T3 to your system slowly as it is like a double espresso going in at once. It gave me a boost and cleared the mental fog created by t4 only. I took split doses of 10mcg at 7am, 10mcg at noon and then 75mcg t4 at night. This kept me going for years until the NHS stopped prescribing T3 due to their supplier charging around £380 for 28 tabs (i later found out that the real cost of T3 was only 5% of this but thats a story for another day).

[SlowDragon Administrator in reply to IndigoPixie12]

Price is now £138 per 28 tablets of 20mcg

...(down from highest price of £270approx)

so reducing, but still extortionate

[IndigoPixie12 in reply to SlowDragon]

That’s a lot! After my prescription was stopped, I flew to Northern Greece and brought back a few months’ supply for under £5! After that i switchef to NDT

[Pixielula]

My own experience with T3 is, I was doing very badly on t4 still loads of hypo symptoms on 250 mcg. My GP at the time just stopped my levo one day and put me on to 60mcg liothyronine the next. Almost instantly I felt the effects, the sludge I had been dragging myself through for ten years was gone I lost 4 stone in a year and have not looked back since..... I still take the 60mcg, first thing with my coffee. Sometimes I eat but mostly I don’t, I’m one of those people that couldn’t be fussed with cutting up pills and taking them at different times of the day. My T3 bloods are always under range, but I generally feel well.... I’m 58 and can still work and walk the dogs I look after my grandchildren and spin to keep my muscle mass. I would not be doing any of this were I still on levo!!! I have other health issues so it’s always a bit of a juggling act but yes T3 saved my life basically, or at least gave me my life back....

[puffyface]

T3 made me feel normal again! My history is that I was feeling rubbish for a while and was put on T4. Then I started to feel really rubbish. I ballooned and my body hurt. A brilliant endocrinologist did some blood tests, guessed what else was wrong and sent me to a rheumy... and put me on T3. The first day I tried it I remember feeling something like electricity in my legs. I started on 40, and now take 60mcg a day. 40 when I waken and 20 early evening. I don’t feel the energy surge any more, but I feel good. Good luck with it! X

[Judithdalston]

I had hoped T3 would cure my aches, pains, exhaustion...as well as hypothyroidism for 15 plus years, I also had diagnosed fibromyalgia and am insulin dependent diabetic (due to sepsis following a routine gallstone procedure). However though I introduced it slowly along with levothyroxine, then went onto T3 only up-to 75 mcg, it didn’t create any improvements after initial dosing, but sent my blood sugar up alarmingly. I am still on 1/2 Tiromel pill daily, with levo, but even that upsets my GPs with very low TSH! Hope you get a ‘cure’ with T3.

[jersey-jazz]

I was diagnosed in the States with Hashimoto's Disease over forty years ago and started on llvothyroxine. My energy level resurged and I was good for a while. I went from 108 lbs to less than 100 lbs (5' 2"). Then, after moving to Scotland, I was sagging, becoming sluggish, losing hair and gaining weight. I went up to over ten stone, more than my pregnancy weights.. The NHS finally investigated, acknowledged the condition of Hashimoto's Disease and changed the prescription from levothyroxine to liothyronine. For approximately fifteen years, the NHS in Scotland kept me on liothyronine, solely . Once again, I thrived. Then, my Scottish husband died and I returned to the States. Since then, I have been on a combination of liothyronine and livothyrozine. I know that it is the liothyrone that is effective in my body, not the livothyroxine. However, I feel that I must take what is prescribed, as long as they don't take away the liothyronine from me. That is what keeps me going. We are at the mercy of the doctors who know less than we do about our condition. Incidentally, my thyroid gland has been destroyed by the antibodies. I hope this helps.

[Hidden in reply to jersey-jazz]

jersey-jazz

I am incredibly appreciative of your sharing your experience, and I hope to stay on liothyronine with or without levothyroxine. I had a terrible experience and misdiagnosis, which messed up my thyroid. I am glad to hear your doctors at least keep you on liothyronine, and my experiences have been positive with liothyronine too.