What side effects hang around?: I’m Taking 100mcg... - Thyroid UK

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What side effects hang around?

DG82 profile image
DG82
6 Replies

I’m Taking 100mcg of levo - fluttering in my chest, is this normal? Really finding sleep difficult too. Anyone else have the fluttering? BPM and BP are normal

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DG82
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SlowDragon profile image
SlowDragonAdministrator

27 days ago your post suggests you were taking 100mcg only once every 2 days ....very odd dosing regime

Bloods should be retested 6-8 weeks after unchanging dose and brand of levothyroxine

What vitamin supplements are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

Have you had thyroid antibodies tested

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

DG82 profile image
DG82 in reply to SlowDragon

My dose was changed to 100 daily and I started 27 days ago. Next blood test for all of the above is due on Tuesday.

SlowDragon profile image
SlowDragonAdministrator in reply to DG82

Likely too soon to test

Bloods should be retested 6-8 weeks ideally

Make sure you do test as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Essential to regularly retest vitamin D, folate, ferritin and B12 too

DG82 profile image
DG82 in reply to SlowDragon

Thanks. So is the feeling on my chest something I should just put to the back of my mind for now?

SlowDragon profile image
SlowDragonAdministrator in reply to DG82

Get test as it’s booked .....see what results show

Which brand of levothyroxine are you currently taking

Has this changed recently?

Many people find different brands are not interchangeable

Could be low vitamin levels too

vienna2010 profile image
vienna2010

I get palpitations when under medicated. I also used to get palpitations on levo and that stopped when I changed to NDT. However, the brand of NDT I take also affects how my heart behaves. So it may also be a question of the drug or brand not suiting you.

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