GP says I'm "normal"

[greeneyes31]

Well, another update to my ongoing saga re the blood tests I posted on here last month. I had blood and urine tests done by my GP and I had to call them for the results 4 weeks later. I spoke this morning with someone I hadn't spoken to before who was obviously just reading my notes of the computer. She informed me my urine tests were normal and they had ruled out Cushings disease after speaking to an endo at the local hospital. The endo seemingly also said that my high ferritin was nothing to worry about either as the blood tests showed no signs of anything abnormal. She said the surgery had decided just to keep an eye on me and if I wasn't feeling any better in the next 6 months I was to go back and see them?!?!? I won't relate our whole call here but essentially they were happy with what the endo said and that was all they could do. I told her that I had had it with them and it was unlikely that I would contact them again. She replied, I'm sorry you feel that way........They make me want to scream. So I think I need to find a private endo. Any advice is welcome. Thanks for letting me get this off my chest.

[SlowDragon Administrator]

As per previous post

healthunlocked.com/thyroidu....

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologists

[Hidden]

Firstly your previous cortisol results were much higher than what they should be at that time of day, even though your 24 hour urine came back as normal you can still have Cushing's. I'm guessing your local hospital won't have a lot of experience of Pituitary/adrenal issues so you need to find an Endo who is conversant with Cushing's. Where in the country are you? let me know & I'll message you some names of private Endo's.

[greeneyes31 in reply to Hidden]

Hi, I'm in Yorkshire. My local hospital is York which you would assume would have experience with pituitary/adrenal issues? I would appreciate any help finding a private endo.

[Hidden]

I've sent you a personal message.

[Bearo in reply to Hidden]

Would you be kind enough to send me the same recommendations? Preferably NHS. I may need to be investigated for Central thyroidism and assume the same endos might be useful. I’m in East Sussex but I expect it’s all remote at the moment anyway. Thank you.

[greeneyes31]

Hi Scrumbler, as I said in my post, they said they had done all the tests and there was nothing to report. I have my test results and liver function results says normal. My serum iron level is 21.1 within a range of 5.80-34.50.

[shaws Administrator]

The fact is - and I am always surprised by the medical professionals responses - that they have no understanding of the clinical symptoms we have if hypothyroid.

Once-upon-a- time, when there were no blood tests available (before 1892), we were all diagnosed upon our clinical symptoms alone and given a trial of NDT (natural dessicated thyroid hormones) from 1892 onwards but nowadays a blood test has superseded our clinical symptoms and we're left to 'get on with it'.

They do not consider how our lives are affected, either through relatives not understanding how 'we feel' and the fact that 'we're taking medications but still complaining'.

This is an excerpt from the following link:

"The first major development of thyroid function testing was the measurement of the basal metabolic rate (BMR) in the 1890s by Magnus-Levy, who described the elevation of the BMR in a patient with a toxic goitre. He followed this up in 1895, describing the influence of the thyroid on the BMR.4 These classical studies by Magnus-Levy were later expanded by Aub, Dubois, Benedict and Harris, who introduced the measurement of BMR as a routine clinical method in 1918. Until the development of radioimmunoassays in the 1960s for the measurement of blood thyroid hormone concentrations, the BMR was the only important clinical measurement used to assess the thyroid status of patients. In hindsight, it is important to note that none of the tests that have supplanted BMR measurement directly assess the metabolic impact of thyroid hormones on peripheral tissue because it is this function of thyroid hormones which determines the clinical thyroid status."

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