Can someone please explain what this means. I do feel that sometime when I swollow I feel like lump or tinny ball in a way. I don't feel it all the time as well. Weirdly it actually went alway when I was on levothyroxine. Ive been taken off levothyroxine as doctors believes I have post patrum thyroiditis.
Thank you
No I am not. I am in absolute bits because I've seen 4 of them. two diagnosed me with PPT and the other 2 endos with permenant hypo
Some endocrinologists can be, um, arrogant, ill informed and stupid. Often they disagree with each other and are oblivious to the patient's situation. Your ultrasound suggests your thyroid gland is like a lot of thyroid glands in people with hypothyroidism. Here's what the American Thyroid Association says about your thyroiditis (either postpartum or otherwise):
"The only real difference between them is that postpartum thyroiditis occurs after the delivery of a baby while painless thyroiditis occurs in men and in women who have not recently been pregnant. Not all patients demonstrate evidence of going through both phases; approximately 1/3 of patients will manifest both phases, while 1/3 of patients will have only a thyrotoxic or hypothyroid phase. The thyrotoxic phase lasts for 1-3 months and is associated with symptoms including anxiety, insomnia, palpitations (fast heart rate), fatigue, weight loss, and irritability. The hypothyroid phase typically occurs 1-3 months after the thyrotoxic phase and may last up to 9 – 12 months. Typical symptoms include fatigue, weight gain, constipation, dry skin, depression and poor exercise tolerance. Most patients (~80%) will have return of their thyroid function to normal within 12-18 months after the onset of symptoms.
Treatment is started with thyroid hormone replacement for hypothyroidism due to Hashimoto’s thyroiditis (see Thyroid Hormone Treatment brochure). In patients who are symptomatic with the hypothyroid phase of subacute, painless and postpartum thyroiditis, thyroid hormone therapy is also indicated. If the hypothyroidism in these latter disorders is mild and the patient has few, if any, symptoms, then no therapy may be necessary. If thyroid hormone therapy is begun in patients with subacute, painless and post-partum thyroiditis, the treatment should be continued for approximately 6-12 months and then tapered to see if it is required permanently."
Source:thyroid.org/thyroiditis/
Good luck finding someone to care for you who is sensitive to your situation.
Thank you so much for that. I hope so. Lots of people here have been more helpful and caring then the 4 endos I've had for sure. Thank you
I was looking up references on PPT the other day in a reply to a post...Some sources /studies quote 50% rather than 80% as the number who go on to be permanent. I suppose it's not easy to know for sure . as i bet that quite a few cases are not tapered off to find out.Also opinions seem to vary about when to try tapering off Levo, I've seen some medical opinions that write it should resolve within 12 months of birth if it going to. Whereas the one above gives a longer time of up to 18 months.
This is what I mean. Some do say 12 months after birth and 18 after birth. Some even said from the time the thyroids start to play up its the 12month up to 18 months. For me is been 18 months since my daughter was born.
in my case i wasn't treated with levo till about 4/5 years after birth, so i'm certain mine wasn't going to get better.I didn't gain much weight so no one checked thyroid for ages.
I am having the side effects now. Even then this lump when I swallow is nightmare and horrible. By my blood test results are within range. I am gaining weight as well and I am gluten free and have a clean diet as well. You poor thing. I feel so bad for you. Thats horrible it was not picked up sooner. What was your symptoms?
went a bit hyper , lost too much weight despite eating well, went a bit nuts, quite a lot of shouting and hitting things, then slowly over a couple of years turned into a sloth doing an impersonation of a cabbage. Spent a lot of time sitting in the car in the car park after going out somewhere, cos i was too exhausted to walk down the hill to home. Used to tell people i was listening to the end of a radio programme , rather than admit how tired i felt, cos it looked like there was nothing wrong with me. Social life went down the pan.
Oh I am so sorry to hear that. That's exactly how I am feeling now. Are you in medication now?
Yes . Levo , that was in 2003 !
I am so sorry that you did not beat that. I recon I am in the same boat at the moment. Having kids if a job but has destroyed our bodies. Would not change it for the world still.
Too true , and it's leaky boat ... they tell you having kids is expensive , but nobody warns you it might cost this much. But it's still possible to be a brilliant mum, and end up with brilliant kids.... in some way's it's good for em cos they learn to do washing up, and laundry, and cooking much better than some other peoples kids do 
so you end up producing better humans.I'm still crossing my fingers for you that you'll feel better.....
but keep an eye on those thyroid results over time, and if your TSH starts moving upwards point it out to a doctor , and keep pointing it put , and whatever you do don't just think " i'm just not as good at managing as everyone else is " i should have pestered the Doc's a lot sooner than i did.
I am certainly keeping an eye on it as is in range at the moment but my cortisol is at the higher end so will certainly monitor myslef and do repeat tests. Thank you for all your help xxx
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