Long Covid: what we know so far

[helvella]

Guardian article which, though strictly speaking could be off-topic, is nonetheless of possible interest and relevance.

I wonder if failure to restore thyroid hormone levels adequately could be a contributory factor - at least for some?

Long Covid: what we know so far

Lasting symptoms may not be down to a single syndrome but several different ones

theguardian.com/world/2020/...

That, in turn, follows another issue that has recently been reported:

Covid may cause sudden, permanent hearing loss – UK study

Study team says Covid-19 patients in intensive care should be asked about hearing loss

theguardian.com/world/2020/...

[Tythrop]

I wondered rd much the same thing. How do you get the "experts" to do a T3 test on these poor sufferers. Also will they disclose the results?

[LindaC]

Thank you, again, for this/these interesting posts. Beware Long Covid.

CFS is clearly known to occur from post-viral illnesses. Dr S, on being given my A4 'Health History' immediately identified my thinking (March 1979) that I had a second bout of German Measles, he asked why I thought that, since I hadn't got to docs. Dr S questioned my whereabouts at that point in time, etc - college: Glandular Fever, he decided on. Boy did I suffer from end September1979 - for years, some reprieves, but never quite the same again - CFS now.

[amala57]

So many of the symptoms of long covid sound so similar to my experience of symptoms post RAI. Multiple symptoms coming & going. One day one thing & the next day something else. With brain fog & fatigue.

I've told people I know with long covid to get a full thyroid panel done.

I hope researchers look closely at thyroid function.

[AmandaK]

I find it astonishing that in this, as in other reports of Long Covid (online, in print and in radio programmes), chronic fatigue syndrome is recognised/acknowledged/promulgated as A Thing.

For decades, CFS/ME as a concept has been trashed and CFS/ME sufferers have been ridiculed, dismissed, told they are malingerers at best or hypochondriacs at worst. They've been told it's psychosomatic, that they are attention seekers, that it's just a case of being deconditioned. I could go on.

And those treating them have invariably been forced to work outside the NHS and/or have been subjected to the most dreadful measures by the medical establishment intent in quashing their voices, limiting their work or actively removing them from the profession.

My heart goes out to those who are suffering with Long Covid as to endure all these dreadful syndromes - not just CFS - is beyond comprehension.

How sad that it has taken a pandemic and the effects for an increasing number of Covid patients for the world and medical profession to wake up to the reality of chronic fatigue syndrome.

And maybe, just maybe, CFS/ME sufferers will be taken more seriously, apologised to even, and that resources will be found to support them, just as they will for those with Long Covid.

And that those treating them will find justice and reparation and will actually be consulted for their knowledge and expertise, and that their work - often lifelong - will be valued and utilised as part of the solution to the problem.

I live in hope.

[Angel_of_the_North in reply to AmandaK]

Yes, I don't see why those who get CFS/ME or whatever after allegedly having COVD-19 should be treated differently from those who got it for another reason, Can only hope that it means that all sufferers will be treated properly in future