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[dandiliontilt]

Hello folks

After reading a recent article through this amazing site I had a light bulb moment understanding similar correlation to my own health conditions.

I was sure I saved it to refer to, but now I can’t find the article. I wonder if anyone could help.

The article was relating to how the lack of certain hormones or imbalance due to thyroid dysfunction created nerve endings not to function properly creating painful joints or muscles. I’m sure that’s not the exact interpretation but I’m desperate to find the article again. It resonated with my search for a healthier way forward.

Thank you, in anticipation.

[Lalatoot]

Just wanted to say that I had aching joints and muscles. I was so stiff and it took me ages to straighten up from sitting. That has all gone now I have added t3 to my levothyroxine.

[dandiliontilt in reply to Lalatoot]

Thank you Lalatoot, how did you know how much T3 to take ? I have been on 150 Levothyroxine for at least a year. Would I get it from my specialist? Do I wait for him to offer it?Ever since my total thyroidectomy 6 years ago I feel in a hampster wheel of different meds. I’m just exhausted with it. Managing the pain is debilitating at times.

I have a phone appointment on Friday I want to be focused and informed, thank you for your time.

[Lalatoot in reply to dandiliontilt]

You don't know how much to take - it is trial and error. It has taken me a year to adjust doses. Some folks need a lot of T3 and not much levo; others need only a little T3 added to levo.

All the symptoms I had could have been diagnosed as fibromyalgia but being hypo I knew it was low FT3. Fibromyalgia sufferers can also have low FT3 but no thyroid problems.

I would have the conversation with the specialist to see if you can get a trial. How you start on it depends on your FT4 and FT3 results but we can guide you on here.

Your folate, ferritin, B12 and Fit D all need to be in the top half of their ranges too so get them checked and supplement if necessary. Again we can help on here with guidance.

So start with vitamin level tests and thyroid level tests. You need TSH, FT4 and FT3. Post your results and we will help.

[dandiliontilt in reply to Lalatoot]

Thank you Lalatoot - I went to the hospital yesterday and was given a full blood test. Is this the same thing.

Also tested for Calcium, Liver, and Kidneys

I have another appointment on Monday with my local doctor, should I be asking for what you’ve mentioned above also.

Or will the hospital tests cover all. So sorry to sound ignorant, I’m just trying to find my way through the fog.

Thank you

[dandiliontilt in reply to dandiliontilt]

I’ve bit the bullet and just rang my doctor (via the receptionist) that when I come for my test On Monday I would like the following tested.

TSH, T3,T4, folate, ferritin, vit D, and vit B12.

So hopefully the Dr will authorise this if not I’ll save and get a private test.

I’m just so tired of facing each day with exhaustion and pain.

[Lalatoot in reply to dandiliontilt]

That should cover it. Biting the bullet is the first step! And you've done it!

I found that I had to learn all about hypo from this site and my symptoms and then become pushy and firm in my knowledge with the doctors - specialists included. You have to fight for yourself and your health.

[shaws Administrator in reply to dandiliontilt]

I have my thyroid gland and am doing fine on T3 only. However, many members find that a T4/T3 combination works well for them.

I don't know how people who've had a thyroidectomy can cope with levothyroxine alone and believe that the very least should be a T3/T4 combination. I have my thyroid gland and can only feel well on T3 alone.

T4 (levothyroxine) causes me to be very unwell.

Many endocrinologists no longer prescribe T3 because the price increased so high that that it was withdrawn for a while. It has now been restored but few endos will prescribe it seemingly to believe that levo alone will relieves symptoms. It does for many but some who cannot improve on the combination, might do o.k. on T3 alone.

Patients who do well on levothyroxine and feel good will not be on the computer searching for information.