Not sure if thyroid or something else’s - Thyroid UK

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Not sure if thyroid or something else’s

Bethcox19 profile image
7 Replies

Hello everyone! So I thought I would come on here in hope that some off you maybe have experienced the same or similar to myself.

My symptoms started after I had my little girl who is now 12 months old. She was about 2 months when I started feeling off.

I began to get weird symptoms so I went to doctors and had bloods they said I was borderline low b12 and to take tablets so I did no difference. I then saw another doctor who said I needed injections so I had them done but no change happened. I will list symptoms I have been experiencing down below.

- lump sensation in throat

- feeling like I am being chocked

- spasums all over body. Throat, face, arms, legs, feet everywhere you can think

- feeling very weak and shakey/ shakey hands

- horse voice on and off

- most recently vibrating feeling in left foot and leg and it feels weak and sore almost like pins and needles

- really fatigued and tired

- I lost a lot of hair when baby was 1-6 months but now grown back

- dry eyes and eye floaters

- getting unwell easily. Sore throats, colds

- tinnitus

- headaches

- heart palpitations

- cold then hot

- mood swings

(I have probably missed a few but I won’t bore you with all off them haha.

I am at my Last straw and have had enough of feeling this way I spend my day searching the web asking doctors and just getting no where. I feel like I’m dying and it scares me.

So if anyone could give some advice or relate to this I would be so grateful. :)

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Bethcox19 profile image
Bethcox19
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7 Replies
SeasideSusie profile image
SeasideSusieRemembering

Bethcox19

Have you had any thyroid tests carried out? If not and you suspect it could be thyroid related then ask your GP to test

TSH

FT4

FT3

Thyroid antibodies

Are you still on B12 injections?

It would be worth testing Folate, ferritin and Vit D.

Bethcox19 profile image
Bethcox19 in reply to SeasideSusie

Thankyou for replying ♥️ And only had bloods taken when my little girl and myself had our first checkup and that’s it they never said anything about thyroid so assuming levels must had been fine 😕and no not having anymore injections I had my weeks worth and that’s all. I have just done an online form so hopefully they will contact me tomorrow xxx

SeasideSusie profile image
SeasideSusieRemembering in reply to Bethcox19

Bethcox19

Ask the receptionist (not a doctor) for a print out of your past results. Post them on the forum when you have them and include the reference ranges which will be on the print out (usually at the side of the results). It doesn't matter when the tests were done, in the UK we are legally entitled to our test results.

When you speak to them, ask if you can have a full thyroid function test because you think you may possibly be showing signs and symptoms of hypothyroidism. Ask for the vitamin tests as well saying that you understand low nutrient levels can have symptoms similar to hypothyroidism. You could say that you have spoken to the charity ThyroidUK who have suggested these tests (don't mention the Internet or forum, just say ThyroidUK) .

Bethcox19 profile image
Bethcox19 in reply to SeasideSusie

Okay Susie I will ring and get the levels tomorrow :) and when I talk to the doctor tomorrow I will say just that thankyou for replying to me means a lot :) xx

humanbean profile image
humanbean

If you were prescribed B12 by your doctor then the dose was likely to have been completely inadequate.

What have you been taking and what dose was it?

Bethcox19 profile image
Bethcox19 in reply to humanbean

I haven’t been taking anything I was just put on 1 weeks worth off b12 injections not sure what the names are and dosages sorry x

SlowDragon profile image
SlowDragonAdministrator

Recommend you get FULL thyroid and vitamin testing done

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels and thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

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