After miscarriage : My daughter has had another... - Thyroid UK

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After miscarriage

Footello profile image
Footello
•13 Replies

My daughter has had another silent miscarriage this time after 15 weeks. Twice this year. 😪She’s on levo 100. She’s always had a very racy heart (she’s been on levo for 6 years) sometimes over 100 but her bloods are normal. Now after losing this baby her heart rate is normal 65/70 . She’s now concerned somethings wrong! I think her body may be back to normal now. Thoughts?

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Footello
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Marz profile image
Marz

So very sad for your daughter. You mention in your previous post about headaches and fast heartbeat. Has your daughter had her B12 - Folate - Ferritin and VitD tested. Often low when Hypo. Low iron can cause headaches and heart issues.

You say her thyroid bloods are normal - which means they are in range but possibly not optimal. Do you know which tests were done ?

Footello profile image
Footello• in reply toMarz

Last November at her annual test.

Marz profile image
Marz• in reply toFootello

Which tests were done ?

Footello profile image
Footello• in reply toMarz

Just the NHS one to check her levels. I’m sure I posted them before but don’t know how to find them!

shaws profile image
shawsAdministrator• in reply toFootello

Click on your name and it will take you into your past information. Copy and paste the information about your daughter's results into this thread for responses.

Marz profile image
Marz• in reply toFootello

Have read your other posts. Click onto Footello and you can view them too. It appears you have two daughters with thyroid problems so not sure which results are relevant ...

fuchsia-pink profile image
fuchsia-pink

I'm sorry - terrible to lose one baby; devastating to lose more.

Can she get a full set of blood tests done - that means TSH, free T4, free T3, thyroid antibodies, ferritin, folate, vit D and B12? Post those results and the lovely people here can help you (and her) to interpret them.

Far too often, people are told their results are "normal" or "in range" - but that's not really good enough. She wants them "optimal" - and that ain't struggling along at the bottom of a range, no matter how often a GP says it's "normal". I understand that if you care trying to conceive, GPs concede that you need TSH at the lower end of the range - under 2.5 [where everyone start to feel better anyway] - and you should take an extra 25 mcg of levo a day in pregnancy - but hopefully others will confirm. Bu in any event, you need those blood results to know if that's enough.

Lots of people get private blood testing if the NHS won't do it: SlowDragon often has invaluable tips on the various tests around.

Hope she has better news soon x

Footello profile image
Footello• in reply tofuchsia-pink

Thankyou x

Footello profile image
Footello• in reply toFootello

She also didn’t lose them normally the heart just stopped and both were healthy days before. She had to have procedures to remove them as they didn’t come away.

SlowDragon profile image
SlowDragonAdministrator• in reply toFootello

She should have had FULL thyroid testing as soon as pregnancy confirmed

Guidelines recommend 25mcg increase in levothyroxine immediately get positive pregnancy test

Essential to regularly retest vitamin levels too

shaws profile image
shawsAdministrator

This is a link re pregnancy when hypothyroid.

thyroiduk.org/?s=pregnancy

SlowDragon profile image
SlowDragonAdministrator

Was her levothyroxine increased by 25mcg as soon as pregnancy was confirmed?

Just testing TSH is completely inadequate

For full Thyroid evaluation she needs TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if she has autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Absolutely essential to have optimal vitamin levels BEFORE TTC

Spinal cord is formed before you would even test positive as pregnant

Both B12 and folate are Goldilocks hormones...you need enough ...but not too much. High folate levels can be as bad as too little

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

Suggest she gets tested 6-8 weeks after miscarriage ....need time for levels to settle

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Medichecks - JUST vitamin testing including folate - DIY finger prick test

medichecks.com/products/nut...

Medichecks often have special offers, if order on Thursdays

Before considering TTC thyroid and vitamin levels need to be stable

verywellhealth.com/infertil...

Pregnancy guidelines

thyroiduk.org/having-a-baby-2/

gp-update.co.uk/files/docs/...

Very important See pages 7&8

btf-thyroid.org/Handlers/Do...

Footello profile image
Footello

Thankyou. I had 9 miscarriages between children - I have 2 beautiful daughters I’m so lucky xx

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