Dizzy : Hi, following tests I’ve been told to... - Thyroid UK

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Dizzy

Molly139 profile image
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Hi, following tests I’ve been told to reduce levothyroxine GP said drop from 125mcg to 100mcg daily but I’m reducing steadily 125/100 on alternate days. I started this on Friday last week and have had 4 dizzy spells, I’m having one now and feel nauseous. My vit D levels are low and I’m waiting for my supply (D, 365 magnesium and K2-mk7) to start this.

Can anybody help it’s a bit worrying. Thank you

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Molly139 profile image
Molly139
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SlowDragon profile image
SlowDragonAdministrator

Previous post shows you already had LOW Ft3

healthunlocked.com/thyroidu...

So reducing dose of levothyroxine will only make this worse

You have poor conversion of Ft4 to Ft3

Improving vitamin levels to optimal levels frequently improves conversion

Vitamin D was very low

Have you had coeliac blood test done yet

Molly139 profile image
Molly139 in reply toSlowDragon

Now I’m really getting confused! GP said reduce to 100 Daily from 125, you suggested alternate days

SlowDragon profile image
SlowDragonAdministrator in reply toMolly139

Reducing levothyroxine may improve conversion of Ft4 to Ft3 slight....but it may just lower Ft3

Getting started on vitamin D ASAP

Molly139 profile image
Molly139 in reply toSlowDragon

I am taking Meds on alternate days. GP is arranging celiac test and asked me not to cut out gluten until I’ve been tested.

SlowDragon profile image
SlowDragonAdministrator in reply toMolly139

Yes correct you need to eat gluten at least twice a day until tested

When is test, easy to do. GP could arrange this week

Molly139 profile image
Molly139 in reply toSlowDragon

I’ll message him today about the test and I’ll also ask about the dizziness.

Have you any thoughts on the dizziness?

SlowDragon profile image
SlowDragonAdministrator in reply toMolly139

Reducing dose can make you feel very weird

Low vitamins especially low B12 ...

Molly139 profile image
Molly139 in reply toSlowDragon

My vit B was good. I’ve messaged GP so hopefully it is just the dose change

SlowDragon profile image
SlowDragonAdministrator in reply toMolly139

If they insist on reducing levothyroxine, your highly likely to need addition of small dose of T3 alongside levothyroxine

Email Dionne at Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance.

But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor



please email Dionne at

tukadmin@thyroiduk.org

Professor Toft recent article saying, T3 may be necessary for many, otherwise they need high Ft4 and suppressed TSH

rcpe.ac.uk/sites/default/fi...

Molly139 profile image
Molly139 in reply toSlowDragon

Thanks SlowDragon I’ve emailed Dionne. I know it’s earlier days since lowering my dose (Friday) would it be worth trying 100/112.50mcg levo or staying as I am 100/125?

Again 🙏

SlowDragon profile image
SlowDragonAdministrator in reply toMolly139

Guidelines on dose by weight of levothyroxine is 1.6mcg per kilo of your weight

What dose do the guidelines suggest you take?

Some people need more than guidelines

I would consider going back on 125mcg daily and work on improving all low vitamin levels

Plus strictly gluten free diet as soon as done coeliac blood test. Buy one online if GP won’t test within 2 weeks

Molly139 profile image
Molly139 in reply toSlowDragon

I’ve worked the dose as per body weight and i should take 122 mcg. The GP lowered my prescription to 100 last week! I seem to be taking 1 step forward and 2 back 😂

SlowDragon profile image
SlowDragonAdministrator in reply toMolly139

Low vitamin D will make conversion of Ft4 to Ft3 poor

Getty vitamin levels optimal should help improve conversion

Molly139 profile image
Molly139 in reply toSlowDragon

And the strange thing is I only get dizzy the morning after I’ve took my 125mcg dose day , so before I take 100mcg

I had dizzy spells when my cortisol was very low - and I threw up most days.

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