Please can someone give me some advice, I feel horrendous,my anxiety is through the roof and just driven to psychiatric unit my son has been admitted to because he is schizophrenic and hasn't taken any meds for over 2 years, so was kind of inevitable. My own health is deteriorating rapidly, my depression and anxiety are the worst they've ever been and was driving like a maniac in car. This is what I call "self destruct mode". Apart from that I'm having difficulty using my hands today trying to write and use a knife and fork,I have pain everywhere but particularly in my back and radiating into my chest,neck and jaw and I know it's not my heart as tests done 2 weeks ago. I feel like I really would be better of dead than carry on feeling like this. Planning to ring GP tomorrow but doubt he'll do anything. I feel I need to reach out o others who may understand how I feel as my husband cares, but doesn't understand at all and says it's all in my head.
Update for advice.: Please can someone give me... - Thyroid UK
Update for advice.
I can sympathise with you, I have had a very similar experience at the moment. Nephropathy pain in my neck forehead and ears/jaw. Aches and pain in varying degrees and all over my body!
I have been to A&E about 6 times in the last month spoken to three different doctor at my GP surgery. My thyroid has been up and down and round and round. Nobody seems to really think there is anything wrong. I have had many tests and been sent home again. I feel like im a hypochondriac but my thyroid blood test did show some abnormalities but I have to just try a dose change and wait 4-6 weeks but in the mean time I am really suffering but I am trying to tell myself its just anxiety. It really is not nice is it and i am only discovering myself recently anxiety is a very horrible viscous circle. I cant wait for this corona hoax to end and we can try and have our appointments back !
I am so sorry to hear about your trauma. I've read through your prior posts and it sounds like you think you might carry the gene for poor conversion of LT4. If you're still hypothyroid at the current dose, you could experiment with stopping the LT4 for three or four days and see if you feel any better. It would take nearly a month for you to use up all the hormone that's currently in your body. Hypothyroidism would produce many of the physical symptoms you're describing.
As concerns your depression and anxiety and your son's condition, I'm wondering if you've ever heard of the MTHFR genetic mutation. It's fairly common among people of northern European ancestry. What happens is that the normal form of folate found in foods and multivitamins cannot be methylated (converted) into a usable form, and the various systems of the body, including brain, become severely stressed by deficiencies in all of the metabolites that are produced the liver and other organs and at the cellular level.
The most common results of the MTHFR mutation can include:
Chronic B-12 deficiency
Scizophrenia, BPD, depression, anxiety
Here's a recent clinical journal article describing the MTHFR mutation and schizophrenia: nature.com/articles/s41598-...
Note that this article discusses only one of the several known mutations and only schizophrenia. People can go their whole lives mostly functioning well enough to survive, but struggling to thrive, and burdened with numerous unsolved health problems. Sadly, clinicians are nearly universally ignorant.
The typical L-methylfolate found in multivitamins is a very small dose, inadequate to the task if you carry the MTHFR mutation. Since B vitamins (all of them, and not just B12) are required for the proper operation of your bodily systems, brain included, inadequate folate will literally bring you to your knees.
There are relatively inexpensive genetic tests available for MTHFR mutations now. Or you could try a simple trial of several weeks with a daily15 mg mega-dose of MethylPro L-Methylfolate 15 mg - (15000 mcg) Professional Strength Active Folate, 5-MTHF (30 Capsules). It's a bit pricey, but definitely worth it if it improves how you feel about living.
Another helper molecule that your body may be lacking is SAM-e. It supports a variety of vital reactions in the body pertaining to energy production, and in the US is commonly prescribed in doses up to 1200 mg per day for depression as well.
Good luck and hang on. Your family and your community need you.
Hi RockyPath, this is really interesting and something I haven't tested in myself yet (I'm always on a quest to feel better). Can you recommend any companies that do these tests? Many thanks Jo
I sent saliva to 23andMe, paying for health as well as ancestry. Then I downloaded my raw genetic data. Then I shared the data with StrateGene and XCode, who provided two different views of the kaleidoscope of genetic understanding, and gave very interesting reports. It was a rather long process that I started in 2018. Probably there are companies that take a cheek swab by now. The important thing to me was to have the raw data, because the things that can be reported on fro the data it will grow over time, and the process of extracting DNA only has to be done once.
Hi Rockypath, thanks for getting back to me. I've actually had a genetic test done a few years ago so I might try these two companies to interpret the data for me. I did see a functional practitioner who was supposed to be able to read the raw data but it was a waste of money seeing her really.
The StrateGene product was quite reasonable, and downloaded after the report is generated. The functional medicine specialist was helpful, until I came to the end of her knowledge. But it was educational to see how to determine therapeutic doses of vitamins, minerals, amino acids, probiotics, etc
I understand what you mean about self destruct mode.
You could try some Bach Flower Remedies " Rescue Remedy" which is very helpful to calm you down.
I used to use it a lot, but had forgotten about it until i read a post about it on here a couple of days ago about it . Sorry cant link as still haven't learned how to copy and paste yet !
All the worry about your son, and anxiety in general, will likely be causing tension in your muscles which will be making everything hurt even more, on top of whatever else is going on in your body. It's not all in your head!.... but you head is involved in your body ( i hope !)
I'm sure Lot's of people value you highly, even when are a mess .
And you noticed you were driving like a nutter , so that makes you a responsible driver really 
....... it's them that don't notice that are really dangerous !
Keep your chin up ....... This Too Will Pass.
Tat
x
Sounds like you are having an awful time. Just reaching out and sending hugs - socially distanced of course!
I had very bad anxiety before I was diagnosed with hashimoto’s - i even had to give up work. What treatment are you having? For thyroid or for mental health? What are your bloods? Rest assured it will pass in time and with the right treatment. Hang in there and I hope your son gets better too poor lad xx
I can associate with your negative feelings. I often feel as if I would be better off not here. But following a complete thyroidechtomy and frontal lobe brain tumour removal in 2018, appearing to recover quite well I went through an awful year last year, emotionally, financially and suffering severely from depression and anxiety. Now under psychiatrist and been having counselling through Mind, none of which I have found overly helpful.
Oh well onwards and upwards I hope trying to stay positive....hoping in a few years this period will seem like a bad dream. Sorry not much help or advice but plenty of empathy
Overwhelming anxiety is the most awful feeling ever. I went from a person who thrived in a stressful job to someone who just can't cope with any stress at all after thyroid removed. My Dr, endo, family and hubby all thought is was in my mind!!!! Tbh I don't care if it was in my mind, it didn't make my suffering any less.
Counselling, cbt just made me angry and anxious, then i would have to drive home after. Anti depressants waste of time, diazepam helped. My whole brain would close down, I would cry and shake.
I started to get better on T3 only, my adrenals never recovered, I am on 10mg hydrocortisone daily. I lacked the energy to do anything back then.
For me I had to prioritise stuff, I stopped being available to anyone including my husband. I had to keep myself calm, the telephone ringing would set me off so I unplugged it. I had to feel I had some control. I liked gardening and walking the dogs. I limited myself to an hour of work a day and I did it on laptop in bed. I no longer cared what people thought, I lost/dumped a few friends who were draining me. I spent lots of time in bed.
Take time to think what you need to do to feel safe and calm, block the noise out. I have seen friends fall apart over covid SWITCH THE NEWS OFF. Eat healthy food, make yourself your priority.
You can get better, I did but took time. I remember not wanting to go on anymore. I am sending you love xx
Hi, you can get Liposomal vitamin B which the body can absorb better. B vitamins are so important for mental health. A warm shower ,warm comfortable chair , your favorite beverage, your favourite music feet up , take notice of your breathing and gradually gently try to slow breathing down , if you can slow your breathing down to where it's comfortably slow for you , you should feel better , if your able to meditate even better. The more often you can repeat this the grater benefit progressively you will get out of being relaxed. Apart from that when you think negative thoughts stop them immediately and re place them with a picture in your mind of a positive outcome . Its our negative thoughts that cause us most anxiety and that makes us feel physically sick.This works for me ,I hope it works for you. Cheers.
The MTHFR theory is possible, but so is a Pyrrole disorder....
mensahmedical.com/pyroluria...
I'm inclined to go with the latter simply because my son who had executive function issues (ASD, anxiety and ADD) as well as low thyroid has benefited the most from the nutrients recommended for that.
Look it up.... it runs in families.
Update on me
Advice please...
Little update
