Why have my thyroid levels changed after years?

[Amberruby]

I posted recently saying that my gp had lowered my levothyroxine. Does anyone know why my thyroxine needed lowering from 150 to 125 after being on 150 for about 12 years? Can your thyroid suddenly start performing better?

Thank you

[SeasideSusie Remembering]

Amberruby

It will be based on your thyroid test results. Replies to your last post mentioned that you need your test results and you said you were going to discuss this with your GP.

Did you find out what was tested and the results? If so then post them - test name, result, reference range, so that members may be able to answer your question.

You only need to ask the receptionist for your results, ask for a print out rather than accept verbal or handwritten results (mistakes can be made if they're not on a print out).

Maybe read through replies to your last post again:

healthunlocked.com/thyroidu...

The tests you need are listed there, also how to get them privately if your GP can't or wont do them all. Come back with full results/ranges so that we can comment.

[Amberruby in reply to SeasideSusie]

Okay, I will enquire. Thank you.

[Amberruby]

Okay, thank you very much.

I’m still on oestrogen.

[SlowDragon Administrator]

More likely the recent (incorrect) obsession with trying to get TSH “within range”

Many, many patients on correct dose of levothyroxine have suppressed TSH...it’s irrelevant.

Most important results are Ft3 followed by Ft4

How do you feel?

Bloods should be retested 6-8 weeks after any dose change

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies or especially after dose of levothyroxine is reduced

Ask GP to test vitamin levels

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin

medichecks.com/products/thy...

Medichecks often have special offers, if order on Thursdays

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

Strongly recommend you find out EXACTLY what was tested and actual results and ranges BEFORE dose was reduced

Never ever agree to dose reduction based solely on TSH