FT4 level 95!!??

[Em2403]

I’m seeing endo on Monday to see what they can do treatment wise. I do not understand why my levels are so high! In November I had a thyroid storm and my FT4 was 124.6. In December it was 5.5! January it was 85 and now it’s 95!!?? I’m taking all my meds! I just don’t understand why it dropped to normal range and now has flew up again!!?? I’m on 300mg propylthiouracilal and 100mg propranolol.

[Lalatoot]

Have you had antibodies tested? Which ones were tested? What were the results?

Have you been diagnosed with Graves disease or with Hashimotos (autoimmune thyroid disease?

Both of these thyroid conditions can present with very high FT4 results. However the treatment is very different.

[Em2403 in reply to Lalatoot]

Just been told I’m Hyperthyroid. I’ve had antibodies tested and a ultrasound on thyroid gland. All normal

[Em2403 in reply to Em2403]

No one has found a reason why I’m ‘HYPER’ but my blood results are massively out of range??

[Lalatoot in reply to Em2403]

Listen to what helvella advises as they have lots of knowledge and experience.

I was hyper with no reason too. However my hyper did not fluctuate like yours. I had no antibodies and no family history of thyroid disease. However I had been taking vitamin tablets for 5 years that contained a daily dose of iodine. As I was not iodine deficient this may have been what set my thyroid off.

To get well with thyroid disease you must get a note of all your results and you need to keep track of them. This is the only way to spot trends. The doctors are great at saying normal but the range of results within their normal is wide and their normal may not be your normal.

Read up as much as you can about thyroid disease as this is the only way to get a handle on what is going on.

[helvella Administrator]

Do you feel that these test results reflect how you are feeling?

If not, or even if not 100% convinced, it would probably be best to consider the possibility of some sort of interference with the test.

Several possibilities exist for identifying that. First, getting the same tests re-run at a lab which uses a different technology. Second, checking whether your TSH, FT4 and FT3 are in accord with each other. Discordant test results require proper consideration and explanation. (If you have not had FT3 done, then getting all three done from one blood draw is an important step.)

If you have already suffered a thyroid storm, don't hesitate to go back to A&E or wherever if you think the same might be happening again. It is far too serious an issue to cross fingers and hope.

[Em2403 in reply to helvella]

I do feel awful. I’m just annoyed I think...nothing I can do about it though

[Em2403 in reply to Em2403]

I have had TSH and FT3 done but not sure what the numbers are. I need to get a print out