Should I be concerned : Does anyone have very... - Thyroid UK

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Should I be concerned

Batty1 profile image
36 Replies

Does anyone have very light feeling of intern tremors? I been having these for a while never gave much thought assumed it was something mechanical in my house vibrating on floor, but now I’m feeling it all the time mostly in my feet and no matter where I’m at. I ask constantly to anyone near me do you feel that vibration and they all say NO including my hubby at home.

I take 100mcg synthyroid and 10mcg Cytomel and I’m not sure if the T3 is causing this ....I’ve been on T3 for 3 yrs and never had issue with this.

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Batty1 profile image
Batty1
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36 Replies
Lora7again profile image
Lora7again

I sometimes get an internal buzzing which I think is caused by doing too much. So I usually relax for half an hour with a book or do some colouring to try to relax me.

Batty1 profile image
Batty1 in reply to Lora7again

If I did any less I be dead ....lol. It’s super weird because sometimes I’m ok.

Lora7again profile image
Lora7again in reply to Batty1

I am sorry to hear that. I can remember being too weak to even get dressed or have a wash. My husband came home from work to see me still lying in bed and told me I should make more of an effort .... if only I could I would have ...

cazmania7 profile image
cazmania7

I’ve just started T3 and feel a bit tremory. Bit like the readybrek kid. Assuming it’s my settling on the meds or maybe slightly overdosed on it. Staying as I am for a bit though to see if it settles..

Batty1 profile image
Batty1 in reply to cazmania7

I’ve been on T3 for the past 3 yrs and my recent blood test was fine.

cazmania7 profile image
cazmania7 in reply to Batty1

If you were on T3 for three years and it only just started it’s unlikely to be that I guess?

I read a lot about cortisol which I guess feels a bit rushy/adrenaline-y? Strange symptom you have anyway 😂

I've been getting a sort of vibration in my chest, usually noticed when lying down. I think it must be "Palpitations", though my wrist pulse feels normal, or maybe a bit stronger than usual. But never heard of them in the feet!

However, did a search and came up with a few possibilities. It seems most likely some kind of nerve condition - such as caused by anaemia or vitamin B12 deficiency:

massagerexpert.com/stop-vib...

Have you had any tests lately? Are you diabetic? That could be another possible cause.

Batty1 profile image
Batty1 in reply to

You mentioned diabetic and oddly enough after my thyroidectomy I had horrible time with sugar surges (what I call this) after couple of hours eating I would appear drunk, slurring my words and issues maintaining balance and it only happened after eating and of course all my sugar test came back good and I haven’t had issues like above since (I did nothing different) to make it stop and I tell my doctor every time I see her I tell her I have something going on with my sugar. She says No!

I wonder if swallowing that thick sugar substance they do for diabetic testing will give better results then just blood test?

humanbean profile image
humanbean

I would suspect an adrenal problem - either too little or too much cortisol. But in order to find out you would need to test because symptoms of too much and too little cortisol have a lot of overlap, and it is important to treat the right problem - if indeed cortisol is the problem in the first place.

Batty1 profile image
Batty1 in reply to humanbean

Hi humanbean

I have been under a ton of stress recently I’m remodeling my kitchen and it’s been one panic attack after another because this remodeling company is driving me batty!

Could I be doing this internal vibration thing to myself, worrying about everything and causing unneeded stress ?

Things I’ve learnt about kitchen remodeling, it takes way longer then you think it should, most professional tradesmen have gotten their license from a cereal box , it’s not cheap to remodel anything regardless of the size and sleeping is a luxury and stress kills.....The one thing I know I won’t ever do again is remodel anything.....horrible!

Maybe this is my issue the stress of remodeling and all the stupidity that comes along with it is cause me to vibrate.

humanbean profile image
humanbean in reply to Batty1

I don't think you've done it to yourself, and there is no blame involved. People who have thyroid problems often have adrenal issues as well.

In healthy people thyroid hormone levels can fluctuate as and when needed according to the stresses they place on their body, and the adrenals can fluctuate freely too.

In people like those on this forum the thyroid hormone levels are usually determined (and fixed) by a doctor who looks only at the TSH (which, as we all know, is not a thyroid hormone), has no clue what an optimal level of anything in the body is, assumes that the patient's life experiences and stresses don't fluctuate and when they do fluctuate doctors often blame the patient's mental health for any repercussions, they don't really care what the patient's nutrients are doing, nor do they check the adrenals very often, if ever.

As a short-term thing you could try taking an adrenal cocktail once or twice a day.

stopthethyroidmadness.com/a...

therootcauseprotocol.com/fa...

If the adrenal cocktail doesn't help then just stop taking it.

In the longer term you should do an adrenal saliva test and find out whether your adrenals are working adequately.

You might find this link of interest :

ibrainandbody.com/the-stres...

Also do a web search for articles on the subject of the "connection between adrenal and thyroid glands".

Batty1 profile image
Batty1 in reply to humanbean

Human bean, have you tried the adrenal cocktail?

humanbean profile image
humanbean in reply to Batty1

Yes, I've tried it.

Sadly, no it didn't help me, but my problem is mainly high cortisol. I think it usually helps people with low cortisol. None of the ingredients are in any way dangerous though, so I think it is worth trying.

Batty1 profile image
Batty1 in reply to humanbean

How can you tell if it's working or not? I can't find real answers.

humanbean profile image
humanbean in reply to Batty1

I didn't feel any better when I took it.

Hey Batty, had internal vibrations in my right leg like someone out a vibrating phone under it. Very annoying. Normally when my dose is off I get it..maybe it's time to do tests?

Batty1 profile image
Batty1 in reply to

I just had a test about a month ago it was fine.

in reply to Batty1

I see, however you test was done after 2.5 hrs of taking your dose, so I don't think it's really accurate :( for example, I tested 8.5 hours after taking meds and my readings were top range (which is a bit too high for me).

Batty1 profile image
Batty1 in reply to

Yes, unfortunately I was not aware that I was going to have labs that day, I was on a second opinion consult for thyroid cancer recurrence and normally 2nd opinion appts don’t do blood test. However I had a normal blood test late last year and it had similar results.

in reply to Batty1

I understand, that does happen. But even looking at your results previously and also your posts about water retention, I wouldn't feel great with these results. You could be on same dose for a long time only to find out that things get worse, especially if you are on it for a long time and the illness gets worse. There are of course other reasons why you could have these vibrations like low b12 or peripheral neuropathy etc.

Batty1 profile image
Batty1 in reply to

My lab results have always been wonky and sadly as most people here understand what you feel vs. your labs dont necessarily result in and increase of meds .....labs rule what I'm feeling is totally irrelevant with the Endos.

I'm hoping my new Endo holds true to his word and focuses on how I feel before labs.

in reply to Batty1

Absolutely, they should really go by symptoms and from what I've seen from your posts you have some. It's always good if Endo agrees to tweak the dose to see if it helps, as you said, labwork doesn't necessarily say everything. Personally my labwork doesn't say everything, it just gives me some direction, in which I'm moving. Hope you get some answers soon, and a good Endo , big hugs!

Have you by any chance changed brands? I have just looked at my T3 info.( MP )

It mentions tremors.

I am concerned myself as I do not feel at all well on my latest prescription 20mcgs Mercury Pharma T3 which is a change of brand for me.

I have also put myself back down to 10mcgs to see how I feel.

Batty1 profile image
Batty1

No, my T3 is same brand.

CW12 profile image
CW12

Have you had your b12 tested. I had similar symptoms with a b12 deficiency. Have iron , D , folate and other nutrients tested if you have not already .

Batty1 profile image
Batty1 in reply to CW12

No I haven't had Vit D or B12 tested in a long time and I've been slacking off taking my D3,Vit K, Magnesium but I did take it last night and woke this morning to less pains....this is a good thing.

Once my remodeling is finished I'm going to the doctors and talk to her about this vibration thing and also the numb hands and feet I get off and on .....it's never ending.

TaraJR profile image
TaraJR

I had internal tremors, amongst many other symptoms including utter exhaustion, for months when I was really ill. After I started on T3 all my symptoms stopped. Are you on a high enough does for you? Internal tremors are not at all nice.

Batty1 profile image
Batty1 in reply to TaraJR

If you go by lab tests yes I'm on enough T3. I also have psoriatic arthritis that attacks my tendons and often wonder if PSA can cause this issue with vibrating....hmm

TaraJR profile image
TaraJR in reply to Batty1

The more usual symptoms of hyper can include tremors, but they can be seen by others eg outstretched hands. Mine were internal, no one could ever see them and they were very unnerving. Are yours the same? I go by my symptoms and how I feel, as well as lab tests. Have you got up to date test results levels, with their ranges?

Batty1 profile image
Batty1 in reply to TaraJR

I would believe hyper if it were other places instead of just my feet and my recent labs are where near being hyper.

TaraJR profile image
TaraJR in reply to Batty1

It sounds more like internal tremors to me. I'm not an expert, just saying what happened to me! Do you want to post all your lab results with their ranges, then perhaps people can hep a bit more?

SuD7 profile image
SuD7 in reply to TaraJR

Hi Tara, you mentioned that uou had

internal tremors when you were “hyper”. Im having some and notice since Endo increased my dose though my lab results dont look high. TSH is on low end. I couldnt sleep for past two weeks so I dropped a little of my dose (additional 2.5mcg at lunchtime) and have solid sleep past three nights. Grateful if could chat? Thanks

TaraJR profile image
TaraJR in reply to SuD7

I only had these internal tremors when I had very low T3. My T4 was well up in the range. When I started taking T3 they all went away.

P/m me if you want to, if I can help any further?

SuD7 profile image
SuD7 in reply to TaraJR

Thank you. I will pm x

DogLover518 profile image
DogLover518

My doctor has told me my tremors are from the hashi’s and meds (Synthroid). I have then in my hands. I sometimes end up dropping things or spilling my coffee, etc. It’s frustrating. I was very concerned as a 35 year old woman who has been dealing with Hashimoto’s since age 12. Hang in there.

Batty1 profile image
Batty1 in reply to DogLover518

Hi DogLover, I believe my tremors were caused by statins and stress due to a kitchen remodel at the time of this post.

I have had a lot of unwanted statin side effects.

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