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[Rufusjill]

In response to my earlier post

[SlowDragon Administrator]

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you did these tests?

Only TSH tested....completely inadequate and never ever agree to dose reduction based solely on TSH and Ft4

FT4 was only 64% through range....you were not over treated

chorobytarczycy.eu/kalkulator

Folate too low.

No B12

No vitamin D

Ferritin ok

Now your TSH is too high ....likely extremely low Ft4 and Ft3

Recommend getting full thyroid and vitamin testing

[Rufusjill in reply to SlowDragon]

Thankyou slowdragon, last June I had full bloods done with medichecks , my folate was 3.35 , my Ft4 was27.3 and my Ft 3 was 5.8

The doctor said that taking 75 Levothyroxine caused me to be slightly over ,and was probably the cause of my difficulty in getting to sleep , he said that to alternate the 50 and 75 would hopefully balance things out

But now I feel under medicated , and wondering if this is causing the chills

Regards jill

[SlowDragon Administrator in reply to Rufusjill]

Poor sleep is linked to low vitamin D, folate and B12

All three were low in this Medichecks test

healthunlocked.com/thyroidu...

Have you had levels retested since?

Folate was still too low in November

Vitamin D - improving to around 80nmol or 100nmol may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

insomnia linked to low vitamin D As explained by Dr Gominack

drgominak.com/sleep/vitamin...

healthunlocked.com/thyroidu...

[SlowDragon Administrator]

Have you ever had thyroid antibodies tested?

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.

So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

[Rufusjill in reply to SlowDragon]

Would the TPO andTG been done on the medi checks , can’t seem to find anything that corresponds with this

[SlowDragon Administrator in reply to Rufusjill]

Yes normally....you did a weird Medichecks test previously

Most popular is this - Thyroid plus ultra vitamin

Often on offer at £79

medichecks.com/products/thy...

[Rufusjill in reply to SlowDragon]

I’ve just checked , I had the well woman test at 150 pounds , I’ve decided to have the thyroid one that you recommend, will let you know the results .

I do feel under medicated at the moment , since January 2019 , I have been treated for helicobacter pylori , gall stone removal under active thyroid , gum decease , nail psoriasis all within 6 months , I’m sure there is a connection somewhere , prior to this I have always been fit and healthy, never needed the doctors , but now never seem to be away

Thankyou for listening

[SlowDragon Administrator in reply to Rufusjill]

H Pylori is common when hypothyroid (ie under medicated) as when hypothyroid this leads to low stomach acid which makes H pylori more likely

thyroidpharmacist.com/artic...

drhedberg.com/hashimotos-th...

Far, far too frequently we are left on too low a dose of levothyroxine or have dose inappropriately reduce