After the advice on here I finally managed to get my GP to test my antibodies. It took a little time for my results to come though but got it today. I would appreciate any advice into the result as I have a GP appointment next fri and want to have all the information before I go. Thanks
TRAb 32.1 (0 to 0.9)
As you can see, TRAb is over range. What about TSI? And what diagnosis do you have currently?
I don't have a TSI result it was hard enough to get this st the surgery. I don't have a diagnosis as of yet still in diagnostics phase.
Hello Hkm2281
A positive TRab blood test result generally is indicative of Graves Disease.
Looking back at your previous post your results show low suppressed TSH and over range T3 and T4 levels, so these results look like an over active thyroid.
What symptoms do you have ?
I would think your doctor will take advice from endocrinology and start you on an anti thyroid medication until your hospital endocrinology appointment comes through.
The AT drugs should block your own thyroid hormone production and thereby you should find some relief of symptoms.
Graves is an autoimmune disease and read it can be triggered by a sudden shock to the system, like a car accident or sudden death. The thyroid is the victim in all this, not the cause - the cause is your immune system mistakenly attacking your thyroid.
The thyroid is a major gland responsible for full body synchronisation, your physical, emotional, mental, psychological and spiritual well being, your inner central heating system and your metabolism.
You might like to take a look at the Elaine Moore Graves Disease website.
This lady has the disease and after going through treatment in the 1990's found no help with her health issues, so wrote a book, Graves Disease A Practical Guide - to help others in the same position. She is a medical researcher and now runs a well researched and respected website for all Graves patients worldwide.
It does appear to be a poorly understood and badly treated autoimmune disease and suggest you take some time to read up on all the options and what you may need to be considering in order to reduce the auto immune component of the disease.
Thank you, yes I suspect that's what the GP will do start treatment now on the advice of the endocrinologist.
As far as symptoms go I have a fast heart rate, I can't control my temperature very well, my hair has fallen out in large amounts and I can feel shakey although I'm on propanolol and that has helped lots.
Yes I'm beginning to look at Elaine's Moores literature but I wanted to ensure it was graves first.
OK - this may sound silly, but you need to try and relax and stop worrying.
Graves thrives on stress and anxiety.
Your body clock is running fast and you're not turning ' off ' - bit like a pilot light not cutting out when the required temperature has been met - you may well find your eating more than ever but loosing weight and having a loose bowel, you may also experience sore gritty eyes and insomnia.
It is very important during this difficult period that you make sure your core strength is maintained : ferritin, folate, B12 and vitamin D need to be checked out and need to optimal in the ranges and not just anywhere.
It's good the betablocker is working and suggest a sick note might be worth considering.
Again this may sound ridiculous seeing as you have a new baby but if you can, be selfish, and do something that is for you.
It's very true, even when I'm still I feel like I'm still racing around. I finding it hard to relax even when I am if you know what I mean. I'm definitely going to ask if the GP will check vitamin levels although beginning dec they weren't too bad just about in range. You right too I'm eating so much junk and yet I haven't even put a pound on.
Hey there again,
Just looking back at your previous posts, and your T3 and T4 are rising month on month - when you see the doctor on Friday could you ask if he will prescribe some AT medication now and/or fast track your endocrinology appointment.
The doctor may need to seek instruction from the endo but at least you will then be with some medication to block any further overactivity of your thyroid.
Yes they have all increased over the past 8 weeks except the TSH that stayed the same at 0.010, although the GP said that's the lowest number they record on these tests.
Sorry what does AT medicine mean?
Anti thyroid medication - there is Carbimazole and one called, for short, PTU :
These drugs will block your own thyroid production so your T3 and T4 will start to come down again and back into the normal range.
Graves antibodies attack and can sit on the TSH driving it down to low suppressed levels, which is what has happened and as your TSH has gone down your T3 and T4 have gone up.
When on medication with AT drugs, the TSH may come up, BUT it may not, as it can get stuck - mine is at 0.01 : I am not over medicated but my doctor would disagree.
Sadly doctors in primary care only seem to test a TSH and simply presume this gives the right answer - BUT it doesn't if you have Graves Disease or with other auto immune thyroid disease issues.
A TSH reading in Graves patients is not reliable and looked at in isolation means diddly squat.
This is why so many people on this forum have to get their bloods tested privately.
The hospital will run the relevant tests and in my experience, monitored my progress.
Thank you for explaining this to me, it's all new till me at there moment.
Well yes, but that's ok, I don't mind helping if I am,
I was there once - but remember, back in 2003 there wasn't much information, and I simply believed everything I was told.
I'm not suggesting for one minute that you disregard what you maybe told, but it's nice to have some knowledge as it puts you in a better position to question when things don't necessarily ' sit right ' with you.
I completely agree with this, it's important to be informed. I respect health professionals and i work in healthcare mistakes are made and its essential to look out for yourself. We're are more thay these days information is much easier to obtain
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