Carbimazole

[Me1951]

Anyone out there taking Carbimazole I’m so worried about starting them it’s the side affects.. can any one help and give me some feedback please

[Hennerton]

I had no general side effects and have never seen anyone mention them here but there is something you need to be aware of. I am sure you were told that if you start with a sore throat, you need a blood test immediately to ensure it is not affecting your blood. I cannot remember now ( long time ago) exactly what and I had no problem in the year I was on it. Someone will come along with proper info soon but do not worry unnecessarily and if you definitely have Graves and your antibodies have been tested and are high, you must start it now urgently. It is far more important to do that than worry about something that may never happen.

[Lalatoot]

You need to take the medication as hyperthyroidism is serious. The medication is designed to help. Please do not let your hyperthyroidism go untreated. The longer you delay the longer the body will be out of kilter.

I have only known 1 person who hadsude effects and came out in a rash. She was quickly taken off carbimazole and received other treatment.

[Qwerty12345]

I was on carbimazole for 4 weeks or so. I had no side effects at all but it did make me feel much, much better. After 4 weeks I developed a rash (hives) which may or may not have caused by the carbimazole. Just in case, I was changed from carbimazole to ptu. I continued to feel better. The rash was not a big deal at all and my overwhelming feeling on the treatment was gratitude that I was feeling better at last.

[greygoose]

Hi Me1951.

How was your hyperthyroidism diagnosed? Did you have antibodies tested? Do you have a copy of your results? If so, post them here, and let's have a look.

[Loveeachother]

It's a week now since I started on carbs but haven't experienced any, just can't wait to gain weight.

[cbraffe]

I was on carbimozole fron june 2015 till july of this year. I was started off on very high dose. I had no side effects whatsoever. I went form being sick I could not do anything was off work for 3 months to being so full of energy I forgot I even had a medical condition. I had a total thyrodecotomy this year as my antibiotics were so high I was at risk of other medical condition. I feel the hyperthyroidism was easier to manage that being hypo. Mo regrets I am where I am and starting to feel good again after the valuable advice from this forum. In addition to carbimozole I took selenium and other supplements. I also went gluten free. It is a journey embrace it without fear. Good luck.

[Lora7again in reply to cbraffe]

My antibodies are 4000 but I have no intention of ever having my thyroid removed. I have Graves' and I am in remission for the second time in about 12 years my last remission lasted 4 years. Fingers crossed this one might last longer because I feel great and have lost a stone in weight my TSH is 0.70 which suits me.

[Hurtlocker]

If you can gind a way of not taking them do... I Took them before RAI to block and replace because I was hyper and had Graves.. didnt realise at time but they were responsible for all sorts of side effects including excess bleeding during eye surgery!! They had to stop op to control bleeding...only realised this was causing it when I had second op after coming off it and No problems at all.other probs were knee pain..aches..wobbly balance and pressure behind my eyes!!stopped taking it and all went away...now just have side effects with levo to contend with as I became hypo after RAI..aint life grand !!!

[Graves1234]

I took Carbimazole for 18 months for Graves Disease which was found doing a TFT. I then came off the meds for 6 months to see if the thyroid had regulated, the test showed even worse Graves l. I was offered Radio Active Iodine or surgery to remove thyroid, I chose RAI wHich worked too well ... so now Hypothyroid rather than Hyper. I didn’t really have side effects and felt much better in that paplutatations, anxiety etc were lessened with the Carbimazole.

[Lora7again]

I took Carbimazole but it brought me out in a rash so I swapped to PTU. Just don't let your Doctor overdose you on the medication like mine did. I ended up with a TSH of 9 from a TSH of 0.002 in 3 months. You need regular blood tests because it can rarely affect your liver so insist on a liver function test as well.

Here is a link about the drug.

netdoctor.co.uk/medicines/a...

[crusaders1]

I was taking 20mg of carbimazole daily while waiting on Radioiodine therapy for relapse hyperthyroidism. I had no problem with them and didn't have any bother 14 years ago and I was on them for 18 months. Your GP/Endo doc should monitor your bloods regularly to make sure all is well. Good luck

[FiMason]

On my first Graves diagnosis in 2004 I developed acute hives / urticaria all over within a week of starting on carbimazole. I was swapped onto propylthiouracil (PTU), the allergy cleared up and I did very well on that for the following 2-years. You do need the medication, just listen to your body and go back to your GP if you develop anything that concerns you. In my experience side effects/allergies present quite quickly.

[purple64]

Ive been on Carbimazole for 18 months now and had no side effects. It's really important that you take the medication as being hyper your body and metabolism is working at such a fast pace and there is too much T4 and too little TSH. So the meds will help to balance this out. It won't happen overnight but gradually your levels will start to level out with a few med tweaks along the way. Don't be scared just take it and try to feel better.

[Billyboy2u]

I’m on it now without any side affects.

I felt awful for months then the G.p. give me a blood test Within 4 hours I was in hospital as my bloods were off the scale My G.p. stayed all night with me and a crash team were on stand by all night. They told me later they had never seen reading that high before.

I’m currently on 40 mg carb and 150 levo. There giving me a trial coming off bloc and replace in 2 month.

I’m crapping myself in case it doesn’t work and I have to have it out. Don’t want that.

I’ve been told the chances I’ll relapse is very high.

[Lora7again in reply to Billyboy2u]

Try not to worry I have had Graves' Disease for 12 years and have been in remission twice now, this is my second remission and I feel fine at the moment. I have no intention of having my thyroid removed because it is not cancerous ... I have a multi-nodular goitre which they scan every 2 years to check if the nodules have grown any bigger.

[Fruitandnutcase]

I took 40mcg carbimazole a day for a year while my Graves was being treated - no problems. I kept very well. On the advice of my pharmacist though I took 1000mcg slow release vitamin C with zinc every day and I’m sure that helped - the day I started the carbimazole he came out specially to tell me to do that.

[Billyboy2u]

Thanks for that ....

Above all. As the guys say take the Carb. It will help you.

[vocalEK in reply to Billyboy2u]

Only if she really has Graves disease. Some people have been prescribed Carbimazole when what they really had was not HYPER but HYPOthyroidism -- specifically Hashimoto's thyroiditis. With Hashi's, thyroid hormones go up and down. When they are up, it's called a flare. Hashi's flares are often mistaken by doctors for hyperthyoridism when they don't know or understand which antibodies they need to test to make a differential diagnosis.

[Angel20]

It is amazing that all these people that have taken carbimazole had no side effects, these will show up up to 2 months of taking this drug. The drug information categorically states the side effects. I am just wondering …….