Hashimoto question

[Blister4]

Hi,

Just wondering how high thyroid antibodies have to be for it to be diagnosed as Hashimoto?

My Thyroglobulin ab result...229 range <115

[SeasideSusie Remembering]

Thyroid antibodies over range are positive. Yours is 229 and the range is "less than 115".

Howeved, raised TG antibodies on their own doesn't necessarily give a diagnosis of Hashi's with the NHS as there can be other reasons for TG antibodies to be raised. Were TPO antibodies also tested?

Is this your son's result? Doesn't he already have a diagnosis of Hashi's?

[Blister4 in reply to SeasideSusie]

No this is me!

I’m all in a tizzy cause I feel so rubbish and ill with all the miserable hypo symptoms but yet my Gp says I’m not Hashimoto and my labs are all “normal” I hate that word!

I’m trying to make sense of what is wrong.

Yes TPO antibodies tested I can’t remember exact result but they were not above the given range.

[SeasideSusie Remembering in reply to Blister4]

You've said in previous posts "I'm Hashimoto's but not medicated".

Ask for thyroid ultrasound scan, that can show up Hashi's.

[Blister4 in reply to SeasideSusie]

I ignorantly just presumed I was but as I read more on this site i realise that I may not be and as my doctor says I’m not...it got me thinking and worrying!

[SeasideSusie Remembering in reply to Blister4]

You can have Hashi's with raised Tg antibodies:

medlineplus.gov/lab-tests/t...

Thyroglobulin antibodies (Tg). These antibodies can also be a sign of Hashimoto disease. Most people with Hashimoto disease have high levels of both Tg and TPO antibodies.

What do the results mean?

•Positive: antibodies to TPO and/or Tg were found. This may mean you have Hashimoto disease. Most people with Hashimoto disease have high levels of one or both of these types of antibodies.

[Blister4 in reply to SeasideSusie]

Thankyou for that information it’s reassuring x

[sy28 in reply to SeasideSusie]

Hi SeasideSusie, out of interest what other reasons may cause TG antibodies to be raised (previously 3000, currently 1,115) when TPO antibodies are within range.

[SeasideSusie Remembering in reply to sy28]

Information here, see "What do the test results mean?"

healthline.com/health/antit...

As yours are very high my guess is autoimmune thyroid disease.

[sy28 in reply to SeasideSusie]

Thank you, I am afraid the consultant I am seeing refuses to accept Hashimoto's diagnosis despite consistently high TGAB results. Her response last week was that I see a health psychologist in order to explore my health journey. If I do not agree, she is removing me from her clinic. T3 cost is driving her approach. I have tested negative for other autoimmune conditions. I am grateful for your reply.

[SeasideSusie Remembering in reply to sy28]

I am afraid the consultant I am seeing refuses to accept Hashimoto's diagnosis despite consistently high TGAB results.

From healthunlocked.com/thyroidu...

I have Hashimoto's. The final paragraph of her most recent letter confirms this.

So what's changed?

And there's nothing they can do for Hashi's anyway, it's the hypothyroidism that's treated.

I have had DIO2 gene test, the result being Heterozygous variant genotype TA ie decreased ability of the enzyme to generate the active T3 hormone.

You need to find an endo who accepts this and will grant a trial of T3, touched on by SlowDragon in that thread. NHS or private. Or source your own T3 as many of us have to do.

[Blister4]

I’ve never been offered an ultrasound neither has my son!

It’s such a lottery on how your health is managed. The endo refused thyroid meds for my son but yet a wonderful dermatologist has authorised it ....I’m not complaining!

Thanks for replying x

[Eddie83]

When I finally found out (after a lifetime of gluten intolerance) that my TPO antibody test was showing the presence of antibodies, but the level was not all that high (well under 115), I knew that was why I had become hypothyroid. The lesson is: a low level of antibodies, over a long period of time, can destroy your thyroid just as well as a high level of antibodies over a short period of time. I just wish these STUPID docs would stop insisting that a low level of antibodies is OK. Once again, it's all about minimizing expense on patients rather than fixing their problems early.

[greygoose in reply to Eddie83]

It's not the antibodies that destroy the thyroid.

[Eddie83 in reply to greygoose]

It's my understanding that antibodies cause inflammation/oxidation/cytotoxicity, which then results in thyroid destruction. The fact that antibodies indirectly result in destruction, doesn't seem like something patients need to focus on.

[greygoose in reply to Eddie83]

Just because that's what you understand, doesn't mean it's true.

hashimotoshealing.com/under...

[bubbatetley in reply to greygoose]

Hi Greygoose, I forgot to mention that I have never had Thyroglobulin and Thyroid Antibodies bloods done , are they necessary and what other bloods do I need please, my Endo only does

T3

T4

TSH

Vit D

Sorry to be a nuisance, but I feel desperate and have lots of awful symptoms from head to toe

Once again thank you

Kind regards

Bubba

[Lora7again in reply to Eddie83]

I have high CRP it is about 9 which means inflammation in the body which is being caused by Graves' disease imho

[Eddie83 in reply to Lora7again]

Yes, both Graves and Hashi's produce inflammation. I previously had problems with CRP and Homocysteine. Are you avoiding foods like gluten/dairy/soy, and have you done a web search for the various recommendations of supplements to take for CRP and Homocysteine?

[Lora7again in reply to Eddie83]

I tried a gluten free diet it didn't work. I don't eat bread because I don't like it but I know gluten is in other things. My Step Dads brother was gluten intolerant so I do know about it. As for dairy free I have two coffees a day with milk in because anymore makes me not sleep like now ... I shouldn't have had that second coffee today at costas never mind I will know better next time. I did try taking curcumin (turmeric) tablets they didn't work.

[Eddie83 in reply to Lora7again]

There are, of course, things other than gluten that can precipitate Hashi's. There are alternative/functional/chiro/pharmacist docs on youtube that talk about the problem of finding the root cause. Many mainstream MDs are clueless about Hashi's.

[Lspillane]

I wonder too. Mine was 650

[Lora7again]

Mine were very high a couple of months ago and have been for several years they are about 4000. My Gp thinks they don't mean anything but I know it means my thyroid is being attacked by my own antibodies.