Evening folks, I am due to see the docs on Wednesday was diagnosed hypo end of Jan this year. Started on 50 starter dose of Levo, increased it myself as not feeling any better, increased it again myself after few months as still rough, now currently on 100. Still have symptoms. My question is first of all I do not understand the print out of blood tests they gave me, there is a lot of stuff on there non of which is mentioned in posts as I read them. I want to ask definitively what blood I need to ask the doc to do. They say I’m hypo with anti bodies. I want to be able to walk in there and say, ok you tested me for blah and blah but not this and that, why not, test it now. If they give me the well you don’t need them I will ask for a referral to someone who knows what they are talking about.
Just need a list of the bloods test I need to request if someone would kindly supply, I would be most grateful.
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Swannybird
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So you know you have high thyroid antibodies which confirms cause of your hypothyroidism is due to autoimmune thyroid disease also called Hashimoto's
For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Ask GP to test thyroid levels including FT3 and FT4 plus vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Do you always get same brand of Levothyroxine
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
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