Frustrated with doctors!!!

[Larai]

So... I just posted to my doc.. all I can say atm is Grrrr!!! Although..I can't help but feel he's not gonna listen to me this time any more than he has the last two times I've written to him.. he's 130 mile round trip to see in person, no longer does "telemed" conferences for his rural patients.. I am Beyond frustrated.. he says my vitamin D2 is good to cut back to every other week.. B-12 I can cut back on as well.. I had soo much more strength at the .150 mcg.. Gettin Really tired of doc's messin with my dose.. who are they tryin to help.. because after ad nausea posts and discussions.. I am annoyed to say the least, and due to this change also very irritable!!.. and That my friends is NOT me. I very much dislike how I become because some doc won't listen to me.. Very frustrating.. I hate doctor shopping!.. and FFS its not like I'm asking for Narcotics! *sighs* I am finding myself randomly throughout the day, staring off into space... 1000 yard stare.. Not cool..

Message body:Hi Dr. Kuhadiya,

Ok, I thought I'd give that .107 mcg a shot, til I see you next. Here is my problem, Firstly during our first telemed conference you told me you'd go by how I feel, NOT by lab results. Ok, so How I feel since you lowered my dose: Very frustrated with my fatigue total lack of energy & depression, Which I didn't have til you lowered my dose! I find myself staring off into space. I Need for you to please put me back at my .150 mcg as that is where I & my body are happiest! Honestly, I am gettin really tired of docs second guessing, for all intents, my 58 years experience with my body. I am getting very tired of doctors not listening to their patients. I didn't ask for my world to be turned upside down by this. But it is.

Addendum to last post, since they don't give enough room to state my biz in one post, I'm having to split it into two posts. Before you lowered my dose, I was actually starting to feel somewhat better, since my chemo. I had been able to do things around my house. Not so since you dropped my dose, which I presume was lower than you intended me to be that quickly. But I will say again, .150 mcg is my optimum dose for MY Body!! My brain works better sharper and faster. This new dose has made me a space cadet! I can't think. I can't process & this is what happened when Andrea Thompson lowered me, & the reason for seeking you out in the first place. I quit searching for a doc, because I thought you were going to listen to me, guess not!

[m7-cola]

I totally get your frustration! Getting doctors to listen to their patients is often tiresome and unrewarding. The effects you mention on your ability to manage your life are obviously very debilitating. Sometimes a doctor’s erroneous or sloppy prescribing lead to actual harm, as I know from my husband’s experience. I wish you strength to persevere in getting the treatment you need.

[Larai in reply to m7-cola]

Thank you m7-cola!

[Angel_of_the_North]

Surely you can just buy your own vitamins and ignore doctor.

[Larai in reply to Angel_of_the_North]

Hi Angel, Well sure I can and do buy my own vitamins, I could ignore this doc.. but there will come a time when I'll need a refill on my levo. I do have somewhat of a surplus of the .150 mcg. I will be seeing a new pcp January 31rst, I'll see what she has to say!..

[Angel_of_the_North in reply to Larai]

How will he even know if you are doing what he says about vitamins? Just get your levo prescription and ignore him for everything else.

[Larai in reply to Angel_of_the_North]

Yes, that's the plan...when I get switched to this new pcp in january I can address this with her.. in the mean time I have plenty of the .150.... he had me doing the .150 5 days a week, which he calculated would bring me to the .137 mcg but he miss calculated, and it dropped me too far, from .150 mcg to .107 mcg.. it's very frustrating.. So yes..I'll be stepping myself back up to the .150 mcg..

[humanbean]

You should read this :

saveourbones.com/the-huge-d...

I'm not aware of vitamin D2 (ergocalciferol) being prescribed in the UK. I think most doctors would prescribe vitamin D3 (cholecalciferol). But I could well be wrong.

I've never actually been prescribed vitamin D so I'm judging the above by comments on this forum. I always buy my own anyway because I'm positive a doctor-prescribed dose would be much too small.

[LAHs]

If you felt well on 150mcg, then go back to 150mcg. Don't bother to argue with your doc, get your blood tests done privately (Medichecks) and post the results here. Your doc probably noticed that your TSH was lower than what he thought was OK, i.e. he is a TSH and T4 doc. I do not believe docs and/or pharmacists keep track of how fast your meds run out, well, to be honest they are beginning to but the leeway is very large, e.g. you can't get a refill after two weeks on two months supply of a medication - but your running out time if you take 150 by cutting up your 112s will not be that great and will not show up.

Sadly, until docs get better education in things thyroid, we have to decouple to some extent. My doc and I have a written understanding, he prescribes 1.25 grains of NDT and I take 1.5, this way he is "covered" and I am well.

Btw, if you want to take 150 mcg and only have 112 mcg s take your 112 pill and cut a second one into thirds (that will be 37 mcg per third), take one of the thirds with your 112 pill. If you are a bit inaccurate, it will all average out over the week. You might take a bit extra one day but a bit less the next and Levo has a half life of 7 days, so no harm done.

[Larai in reply to LAHs]

Thank you!.. Started on the regime he suggested on the 11 of Sept.... These results were done on Oct. 22

Free T-4 1.92 ng/dL - standard 0.53 to 1.43 ng/dL0.53 - 1.43 ng/dL .... H

T3,Free 4.13 pg/mL - standard 2.40 to 4.20 pg/mL2.40 - 4.20 pg/mL

T3 110.0 ng/dL - standard 60.0 to 181.0 ng/dL60.0 - 181.0 ng/dL

TSH 0.020 uIU/mL - standard 0.380 to 5.330 uIU/mL0.380 - 5.330 uIU/mL.... L

[LAHs in reply to Larai]

Oh, those numbers look pretty darn good! But you feel well on 150 but not on 112. That's a new one to me. Don't let him reduce your dose further just because your TSH is a bit low. I 'll have to think about this one. In the mean time, bring all of your vitamins and minerals up to par, you don't need a doc to take vitamins. You will need D, B12, Iron (Ferritin if you can get it), MethylFolate (not Folic acid). I usually include Selenium but it looks as if you are a good converter (of T4 to T3) , so don't take that. These can all be bough OTC. But this is a bit of a mystery. Maybe someone better educated in medicine can offer suggestions.

[Larai in reply to LAHs]

Hi LAHs, It' s odd for sure I totally get that... When we texted back n forth, he estimated I am taking .107mcg, As I am taking the .150mcg Monday-Friday skipping Saturday & Sunday..per his calculations. put me at .107mcg.

I can't explain why I feel better on the .150mcg, But I am going to continue until my next blood work on his calculation of the .107mcg.. Maybe I just need more time to adjust to this dose, as it was a rather drastic drop.

As of Yesterday, I will have been on this modified dosage 2 months.. my pcp said that my weight had stabilized at 110 lbs, I'm 5'1... So Not minding that at all.. now if my brain can catch up.. We shall see.