veritgo

[Carlylouise90]

Help. Anyone else got severe veritgo from taking levo?! I only get it when i take levo!

[suztango]

Yes. But after a few weeks of the new dose it settles down. I’m very sensitive to changes in hormones.

[Carlylouise90 in reply to suztango]

so am j but it's to the point i went to a and e cause it's constant. been on it for 4 weeks and its getting worse . I have an intolerance to it ;(

[suztango in reply to Carlylouise90]

Oh no that awful Hate vertigo

Can you try a different brand of Levo?

Do you have any blood results? What dose are you on now? Did you go up or down a dose recently?

[Carlylouise90 in reply to suztango]

I've tried 5 different brands they do the same to me.

endo put me on a trial of t3 and beta blockersand I got chest pain and trapped wind and was in agony

my tsh 4 weeks ago was 88 now its 26 so the levo is doing its job but my tongue swells up and itch everywhere I take a antihistamine but doesn't help. I take 50 . Every other day. ;(

[suztango in reply to Carlylouise90]

Poor you Sounds awful

What dose of T3 did you try?

[Carlylouise90 in reply to suztango]

20.. 10 in morning and 10 at night.. and than reduced to it 5 in morning and 5 st night and had heart palptations insomia diareh

[suztango in reply to Carlylouise90]

I’m not a doctor, but sounds like you are very sensitive to hormonal changes. I’m not sure what to recommend. You definitely need the medication, though, as you are so hypo.

Have you had your vitamins tested? Apparently having low B12 can cause vertigo too.

[Carlylouise90 in reply to suztango]

its on the lower side. it was 560 when i felt so poorly in March and than went to 460 in May but getting tested on Monday for it all again Been taking a b12 spray x. my ferritin was low but now in range but im still supplmenting iron. x

[suztango in reply to Carlylouise90]

I found that increasing the Levo dose = vertigo

Decreasing the Levo dose = vertigo

Adding T3 = vertigo

Stopping my HRT = vertigo

Starting my after 3 days HRT = Vertigo but a bit less

I’ve learned that I need to do the changes really slowly. And wait for my body to adjust. And try not to change 2 things at once. As this can make me really unwell.

My endo wanted me to take 25mg of Levo in the morning plus 10mg T3 twice daily. I was on 100mg Levo. Far too much change for me. So I’m adding in my T3, deacreasing my levo, much more slowly.

[Carlylouise90 in reply to suztango]

Did you have ear problems aswell as vertifo? i get bad migranes and ringingin ears can see flashy lights and sensitive to light and sound x

[suztango in reply to Carlylouise90]

Not ear problems. But I do get s lot of headaches / migraines. Have you been referred to ENT yet?

[marvalrus in reply to suztango]

Have you ever had your cortisol tested? Every insert of thyroid medication says "Contraindicated in those with Adrenal Insufficiency". Funny how that's stated yet doesn't trigger any doctor to check adrenal status prior to dispense.

[crazycatlady100 in reply to Carlylouise90]

I am scratching alot, i have for years i try rubbing my area as cramp can follow

[crazycatlady100]

Not now ,i did years ago. speak to the doctor i do sometimes trip over but no dizzyness.

[AliF]

I am permanently light headed. Like being slightly drunk. V unpleasant. It varies from day to day but never goes away. Don’t know if it is the Levo or the Hashi’s or something else. Had various scans which show nothing. Can’t get rid of it though which is very frustrating and quite debilitating.

[Carlylouise90 in reply to AliF]

only way to see is to stop taking levo. but i get it when i take levo and once I stop I feel better ;(

[AliF]

I suspect mine is the same. It takes several weeks for Levo to clear your body so if it goes after a few days Dr’s would say it’s not the Levo. Are you light headed or socket a it vertigo. Vertigo is if everything around you is spinning rather than you feeling light headed.

[Carlylouise90]

both but I think it's more veritgo!!! everything is moving where im not x

[greygoose]

Have you had your B12 tested?

[Carlylouise90 in reply to greygoose]

it was 500 in May. always been 500 in past and never has q problem x

[greygoose in reply to Carlylouise90]

OK

[Carlylouise90 in reply to Carlylouise90]

I'm having it checked Monday though cause it could have gone down the lowest is 450 if was but dr said that shouldn't xause severe veritgo x

[AliF]

I don’t think we are the only ones with hypothyroidism who have this problem. Amongst other possibilities are the ears or the blood vessels in the neck supplying oxygenated blood being narrow. But I think there are lots of reasons for vertigo.

[marvalrus]

The first time I took it, I was ok on 50. Then got upped to 75. I began having issues but it was the amount to keep my thyroid numbers in check. Then my doc had an idea to go back on the 50's and take 1-1/2. Yep, that worked. I have no idea why. How is your Vit D status? How about your iron? And esp your adrenals. Saliva cortisol is a good test. All thyroid meds come w/insert that says contraindicated for those w/adrenal insufficiency. So get your adrenals tested. Why docs ignore this is beyond me, so better remind them. Could be a bout w/vertigo too and they do linger for quite some time. It is awful to feel like this continuously. I thought after a while of taking my levo that it was the culprit, so I got a new Rx and told the pharmacist I didn't want any from the last batch. She said it was newer. Yep, it was better. Another time I had surgery and got a new refill and about a week later I was having heart palps. I thought it was the surgery. It was scaring me but held out while recovering. But since it continued, it scared me so much one day I went to the ER. EKG all this was ok, even blood marker. Then I thought OMG, I got a refill after surgery. So I told the pharm I wanted a new refill and she said it was a new batch since the other, and yep, as soon as I started that, all heart palps went away. There is def something in them and they're obviously don't have good quality control, but it is the one I've taken the longest cuz it causes the least amount of problems. I'm unable to take any NDT as I immediately get dizzy. And I can't take a spec of T3 cuz it does the same thing. So I stick to this levo I'm on and 'test/trial' every new Rx. I hope you find your solution. Im in the USA and the generic is made by what used to be Lannett and is now Amneal.

[jendwall in reply to marvalrus]

The reason you do well using only 50's may be because that strength doesn't have any dyes in it. My Levoxyl 50's are white, unlike all the rest of the strengths which all have different colors. I think other colored strengths didn't agree with me.

[marvalrus in reply to jendwall]

Yes, that's right, I should've added that thought. Could be the dye in the 75's. It is a lavender color. Looking at the list of ingredients, there's quite a bit less of everything in the 50s and is even gluten free. It was suggested I try Levoxyl but was coincidentally unavailable at that time. I believe it is back, but kinda just afraid to change. I heard Levoxyl was like the best one, people loved it, when it came back it changed. Terrible that they do this.

[jendwall in reply to marvalrus]

There's so many hoops to jump through, to think of, in the thyroid circus for sure. Yes, all the back orders and med reformulations cause so much more stress on we already tired, stressed thyroid patients.

[marvalrus in reply to jendwall]

It is so terrible. It's as if they're thinking is "Oh it aint broke, so let's break it!" I was stressing when the mfr changed to Amneal, but it is identical and the pharmacy "promised" me it's the same. Seems to be. When I was Dx'd w/Hashi's I was reading about Armour. Seems to be one of the worst mistakes ever made when this company sold out and the new mfr reformulated. It's so bizarre how one mfr over the other can make or break our day. I just cannot fathom what the problem is.

[jendwall in reply to marvalrus]

I was affected by the Naturethroid reformulation. Returned hypo symptoms and labs went south. Switched to NP Thyroid, and now people are struggling with it. Waiting for the ball to drop with NP now.

[Wetsuiter in reply to marvalrus]

my 100s are all white. every dose Ive ever had ve been white

[helvella Administrator in reply to Wetsuiter]

All UK levothyroxine tablets are white.

The USA and Greece (to my knowledge -though there will be others) use colour to distinguish the various dosages available. Usually, the 50 microgram tablets are white which allows those sensitive to the colouring agents to opt for an uncoloured product.

[Wetsuiter]

did you say you re only on 50?

[Carlylouise90 in reply to Wetsuiter]

I'm on 50 cause even 25 or even splitting thatin half gives me bad migranes and veritgo. so i cant win. tried 100 and obvuously was eben worse can'tpast a a week.

[jendwall in reply to Carlylouise90]

Levoxyl is a U S. drug. Other levo drugs outside of the U.S. may be formulated differently.

[saritadelmar]

I woke up with dizziness two weeks ago, so I took a homeopathic remedy, cocculus indicus 30 c for it, and it went away. Phosphorus 30 c might work as well. You have to experiment with homeopathics. They normally don't have side effects, unless you get into the 500 dosages. Also, don't take any when you don't feel dizzy, as it might bring on those symptoms. That's how homeopathics work, they counter the problem you have if you are experiencing the symptom the remedy normally causes.

[salmanc1]

Dizziness can also be caused by untreated diabetes if everything else checked out.

Check your sugar levels through the day and see if they are fluctuating wildly.

Also if you are not drinking enough water or your sleep has been disturbed for a long time.

You may also have inner ear issues possibly from an injury or something else

Keep deducing what it is till you get to the root cause - takes time but the good thing is you have or are in the process checked many of the major thyroid related things

There are other vitamins you can check aswell - calcium, magnesium and potassium for mild balance issues and dizziness

[Carlylouise90 in reply to salmanc1]

thanks. Dr won't do a diabetes check as apparently i look don't like someone with diabetes very weird. .. but i get it so bad only when i take levo. endo is calling me today to discuss going forward as i cant go on like this.. ;(