ndt confused: so over the span of a year or more... - Thyroid UK

Thyroid UK

141,244 members166,489 posts

ndt confused

ramsfs10 profile image
17 Replies

so over the span of a year or more i have slowly increased by 4th grain or ndt naturethroid every 6-8 weeks based on symptoms and bloods.. i reached 3.5 grains and stayed there for 2.5 months feeling great! good pulse and blood pressure. i thought ide finally reached my dose until now past 2 weeks i feel extremely hyper. ive lowered my dose down to 3 grains and now 2.5 grains and my pulse stays in 90s or 100s! this whole year went pretty smooth and im so confused. is it possible i just overdosed had a delayed reaction maby to t4 buildup and just need time to clear the excess?! i thiught lowering dose would relieve it which ive done in past

Written by
ramsfs10 profile image
ramsfs10
To view profiles and participate in discussions please or .
Read more about...
17 Replies
greygoose profile image
greygoose

Do you have Hashi's?

ramsfs10 profile image
ramsfs10 in reply togreygoose

i tested negative twice no antibodies. but from what i read that doesnt mean anything.. so if i do have hashis how do people deal with flareups?! do they just decrease meds till it goes away. ive been so miserable and on edge. afraid to do anything or my pulse goes roof.. i know ndt has alot of t4 which takes time to clear so im hoping its that

greygoose profile image
greygoose in reply toramsfs10

They deal with them the same way as anybody else, by reducing, or stopping their thyroid hormone until they start to feel hypo again.

Yes, you're right, you can still have Hashi's even if you never have high antibodies. And, it sounds like you do. :)

ramsfs10 profile image
ramsfs10 in reply togreygoose

thank you just an update ive been on 2.0 grains about 4-5 days now and my pulse is finally coming down. that was extremely scary. just gonna go by symptoms and maby only increase to 3 grains this time. i was on that dose for a while and no problems

greygoose profile image
greygoose in reply toramsfs10

You have to do as you feel best, as your body is telling you. But, if I were you, I wouldn't increase by 1 whole grain in one go, take it slowly. :)

humanbean profile image
humanbean

The way I've dealt with this issue myself is to stop treatment altogether until I start to feel a tiny, tiny bit hypo. It only takes a few days usually. When I start to feel hypo again I re-start my treatment at a lower dose. If the "hyper" problems come back then I repeat the procedure until I find a dose that works.

When the apparent "hyper" phase ends and I start to feel hypo all the time I start raising my dose again.

Edit :

I just had a thought... Sometimes people can get mixed up between hypo and hyper symptoms. There is a surprising amount of overlap and it can take a long time for an individual to learn to identify what their symptoms are telling them. If giving up Levo quickly makes people feel worse i.e. their apparent "hyper" symptoms get worse, then they should go probably back to taking Levo as soon as possible. They may have been under-medicated rather than over-medicated. This is why getting blood tests done is so important before making changes to any hormones taken.

ramsfs10 profile image
ramsfs10 in reply tohumanbean

wow as soon as i think im normal again it hits me like a freight truck. but i gotta stay strong. thats great advice.. ive never dealt with hyper like that for that long... that was horrible. at least now i know for future. thanks

ramsfs10 profile image
ramsfs10 in reply tohumanbean

and how often should i expect a hashi flair up like this.. was hoping once i find a correct dose i could live my life in peace lol

humanbean profile image
humanbean in reply toramsfs10

There are absolutely no rules that I know of about Hashi flares. They could last a couple of days, a couple of weeks, a couple of months. One could stop and it might be days, weeks, months or years before the next one.

The only things I can suggest are that you try and maximise your health in every other respect. Whether it might delay or shorten any Hashi flares you might have, I don't know. But it might be worth a try, and couldn't make things worse as far as I know.

For info on Hashimoto's Thyroiditis read the website of Izabella Wentz. She calls herself The Thyroid Pharmacist. She has written a book or two, and has a Facebook page as well as her website. See this link :

thyroidpharmacist.com/

humanbean profile image
humanbean in reply tohumanbean

ramsfs10

I added an edit to the post that I'm replying to, which I think is important for you to read.

ramsfs10 profile image
ramsfs10 in reply tohumanbean

thanks but i actually take ndt. and ive stayed on reduce dose. feel sooooo much better. pulse is back in 70s hoorayyy!! have pulse in 100s for 3 days straight was horrible

Diana58 profile image
Diana58 in reply toramsfs10

What ndt?

ramsfs10 profile image
ramsfs10 in reply toDiana58

natuethroid

Diana58 profile image
Diana58 in reply toramsfs10

The new one is good for you?

Diana58 profile image
Diana58 in reply toramsfs10

I was taking wp and then it and naturethroid changed

I switched to armour

It gave me a rash

Switched to np

Feel almost perfect

Just heard they’ve changed their formula

I’m in USA

I’ve heard naturethroid wasn’t working

If it’s working for you, that’s great news!

ramsfs10 profile image
ramsfs10 in reply toDiana58

yea naturethroid works. my doc prescibes that and np

humanbean profile image
humanbean in reply toramsfs10

Brilliant! Long may it continue. :)

Not what you're looking for?

You may also like...

ndt what to do now

so was on 2.5 grains of naturethroid for 8 weeks with both t3 and t4 at high end of range and...
ramsfs10 profile image

ndt summer time

felt like i finally hit right dose 2.5 grains of naturethroid been steady for 2-3 months.. but now...
ramsfs10 profile image

Anyone on variable doses of NDT?

Hi everyone - I'm having trouble getting my dose of Armour optimal. I was on 2.5 grains during...
Clarebear profile image

Fast pulse

I have recently reduced my dose of Armour from 2.75 grains to 2.5 grains, as I was feeling slightly...
Clarebear profile image

Adjusting NDT dose from 2 grains to 2.25?

Hi there! I'm struggling again with NDT dosing. It's been a long haul, since swapping over ( from...
Sophie01 profile image

Moderation team

See all
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.