Hi, i was diagnosed hyperthyroid in 2010, with meds after about 4 years it finally calmed down and stopped and I am no longer having thyroid issues. It did however leave me with thyroid eye disease/Graves which at one point was so painful and distressing as i had all the symptoms and so many dreadful problems, and was of the two times in my life almost suicidal and asked the consultant to remove my eye as i could see no other wya of stopping the pain, double vision etc. With hind sight i don't think the consultant explained it all to me, he was very terse and had little compassion and aftera few harsh words and a desperate letter to him i was referred to someone else, who i have to say was amazing. It took approx 4 years for it all to calm down and be in "remission" as it were before i could have surgery in the eye muscles, thankfully it was only 1 eye, in both eyes it would have done for me. Post surgery was dreadful and it took me 8 months to recover, but that's more an issue with me and anaesthetic and surgery as i swell up so much which makes recovery long and apinful. I then had an eye lid lift 2 years later.. glutton for punishment i think, but my peripheral vision was so poor it had to be done. Again massive issues with inflammation, infection in the stitch line that I was still having pain in 4 years later i was told there was nothing else they could do, given the slight protrusion on my left eye which the consultant didn't advise having surgery for, given the massive issues i have with anaesthetic, surgery and recovery.
I have never however been told by any of the consultants I have had what the legacy and fall out of T.E.D is, it seems it's a case of there is nothing we can do get on wiht it. I still feel i have eye issues, dry eye, very painful eye muscles at times, light sensativity and general eye pain.
What are everyone elses experiences of life after surgery, is what i have within the remit of lfe with/after Graves. thank you and sorry for the long post x