I read (but not very widely) that there is a link between MS and hyperthyroidism. Does anyone out there know if untreated hyperthyroidism (like for years) can lead to MS or is it the other way round: if you have MS it can lead to hyperthyroidism. My hypothesis is the former, I am hoping that if we can slow down my friend's hyperthyroidism then maybe we can slow down the progression of the MS.
This question pertains to a friend of mine (our new roommate) who you all were kind enough to set on the path to getting her hyperthyroidism under control. My friend has mild MS but her hyperthyroidism is just so obvious, I wish she would take it seriously - but, you know, it's sometimes difficult to convince someone to go to the docs and discuss something that they think is just normal. "Just normal?" last night she refused to stop cleaning our windows until way beyond bed time! Eventually I sat out there with a flash light in the hope that she could finish before midnight. She was doing such an amazing job I didn't think it was the time to tell her she was seriously hyperthyroidic.
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LAHs
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Hope these help you sort this out. I hope your friend attends to her condition - maybe if you show her these, it will register. Wishing you both the very best.
That second ref (endocrinweb) is absolutely fascinating. It does look as if treatment for MS (at least the Lemtrada (alemtuzumab) variety), can cause hyperthyroidism. I do not know yet which medication my friend is on, I will have to ask. Thanks for that ref.
Hi vocal: In my research for above, I came across a few articles about MS and hypothyroidism, and also, what drugs can cause it or improve it - but because LAHs was asking about hyper, I only focused on that for the links above. If you type "MS and hypothyroidism" in your search box, those articles will come up (and I know you're a good researcher as I read your posted articles often!). There's quite a bit written about Hashis and MS - and a few good scientific articles about that. Hope that helps, and all the best to you!
Yes, I would get these amazing bursts of energy that lasted a short time and collapse afterwards for the rest of the day. And i would be exhausted the next day too. And sometimes just doing nothing I would be exhausted from being hyper.
An absolutely perfect description! And then the batteries would die and the bunny would keel over!! So much for keeping going and going ..... thanks for that!
I was totally shattered when I was hyperthyroid - aching,weak muscles, out of breath, racing heart, constantly running to the loo, constant sweats & tremors. Is there anything else going on with your friend?
No tremors, I looked at her outstretched hands - steady as a rock. Lots of running to the loo however. Sweats I am not sure, she grew up in Nevada and Southern California so she is OK in the sun (unlike me).
I have multiple sclerosis diagnosed in 2004 and was diagnosed with HYPOthyroidism at the same time. After several years of poorly managed hypothyroidism by the Endo’s in the same hospital, I had further investigation. I was then diagnosed as SECONDARY Hypothyroid. It was assumed that it was MS lesions on the Pituritory gland that had then caused hypothyroidism. However after another more recent MRI, it showed that there are no lesions present on the Pituritory. During my time spent with both Neuros and Endos, neither are that ‘certain’ of any particular link between MS and the onset of thyroid issues, other than when there is the presence of lesions on the Pituritory gland. So that maybe worth some consideration....
Yes, she has had a lot of MRIs but I don't think she knows much about them. I will try to get hold of them and ask some questions of people who might be able to interpret the images.
Could both be autoimmune diseases? Hashimotos causes hypo and hyper episodes and M.S is an autoimmune disease. My brother has M.S and I have Hashimotos. He has Pernicious Anemia there's a connection there too. That's a Vitamin B12 problem.
It is worth to try resrveratrol. Permanent dose is something about 10 mg a day with very colorated juice. In capsules there are big doses. This doses should be taken like antibiotics. Could try big dose to see effect. It has similar effect on bacterias and body. It stops grow of bacterias and body cells too. Normally just open capsule and make doses of approximately 10 mg. I think It is not imunostimulans which is not advised in autoimmune troubles. There is a lot written on internet about resrveratrol.
Marymary7 A few months ago when I was diagnosed with PA, my symptoms started with what semed to me to be very like MS symptoms.Am pleased to say that symptoms are very much improved now while on B12 si every other day.
B12 deficiency (and folate) is not surprisingly an issue in MS as the myelin sheath around nerves relies on B12 and folate. Autoimmune attacks in MS attack the myelin sheath, which is already compromised due to low B12.
Lots of possible connections with other autoimmune illness, but that's not very reassuring. What is encouraging is learning about how to manage these mineral and vitamin deficiencies that may be instrumental in recovery, or at the very least, help with damage limitation, especially with fighting inflammation.
Your friend needs to research nutritional as well as behavioural (lifestyle and appropriate rather than erratic physical exercise) methods to help minimise the impact that both of these conditions are having on her. For example, MTHFR issues could mean that she is not absorbing b12 or folate properly and needs methylated b vitamins. Her heart could be under great strain - so Magnesium and Co Enzyme Q10 will help to calm that down (Magnesium will also reduce anxiety).
PS. Low vitamin d is common in both conditions. It would not surprise me if she were already taking high dose vitamin D supplements. She MUST take Magnesium with these. Only a few doctors are aware of the importance. Insomnia and restlessness is a sign of induced Magnesium deficiency from taking high doses of vitamin D. Epsom Salt baths are a good start - especially as oral supplements can cause a laxative effect when hyperthyroid.
If it's methylcobalamin and methylfolate (or folinic acid) that will work far better than cyanocobalamin and folic acid. However, it'd be so much better for her if she knew her baseline levels from a blood test. Ideally asap. because being low in b12 may mean she's entitled to b12 injections - blood (not cellular) levels could increase temporarily and put doctors off treating her if she supplements in the meantime.
It'd be worth it to come back here and repost with blood work and allow other thyroid patients to comment from their experience.
I think you all need to read up about auto immune triggers. Ask why you have developed these conditions. It will be a perfect storm of diet, hereditary, and environmental factors plus infections.
Read about leaky gut and auto immune. You’ll be amazed how simple things like eating dairy and gluten can make you feel so unwell. Physically and mentally.
I have hashimotos and have been trying to change my diet and lifestyle, to control my symptoms. It’s helped. But it’s a constant struggle. Eating out invariable leads to a headache and itchy rash on my face.
The worrying thing is the symptoms you don’t see. The brain fog, inflammation throughout your system. The vitamin deficiencies which your gp should routinely test for but doesn’t due to lack of knowledge and cost.
LAHs i have MS too (diagnosed over 25 years now) and only in the last three years was I diagnosed as being hypo. How long has your roommate been diagnosed with MS? The reason I ask is that maybe she hasn't taken it all onboard yet. As MS is a daily struggle in the first place.
If your hypothesis is correct (which I doubt, but having said that I wish it was) then we would have a cure for MS.
Just to add, because we have one auto immune disease does make it more likely (or so they say) to have another one. be it hyper or hypo and anyother type of ai come to think of it. (
My sister-in-law had boundless energy and thought that her condition was normal and all other people were lazy slackers. Her hyperthyroidism was finally discovered a d her thyroid removed. (Her surgeon was very unskilled leaving her with a large ugly scar across the bottom of her neck.) MS ran in the family. Her mothers sister was wheel chair bound. Later her daughter was Dxd with MS and died at the age of 27. One son has severe Type 1 diabetes. I have to wonder how all these tie together. Both my sons in their 40s have no sign of MS but how much at risk are my 11 grandchildren?
I remember you telling me about your sister in law. Hopefully your grandchildren will be OK - the key will be when they are old enough to be aware of their medical history so they can take good care of themselves. Hopefully, your sons are aware of family medical history and will be sure to monitor your grandchildren. The prime age for MS from what I have read is in the 30s and skewed female, so hopefully your sons are out of the woods for it.
It's lovely of you to help your friend, LAHs. Your friend may already be aware, but just in case I thought I'd mention a couple of things on the MS front. Does she know about Dr. Terry Wahls and the Wahls Protocol? She recovered from secondary progressive MS using diet and lifestyle interventions. Many of the things she advocates can be helpful for managing a variety of chronic autoimmune diseases. She's got a website, has authored books and given a popular Ted talk. terrywahls.com/
Also, there is interesting research on the association of some variants of MS and Chlamydophila pneumoniae. A medical microbiologist named David Wheldon has shared some good information on the research and possible treatments.
Yes, this is new information, I never knew that. My cat is hyper and I have to give her medication (Methimazole) she has been bouncing around the house and garden now for a couple of years!
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be it hyper or hypo and anyother type of ai come to think of it. ( 
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